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Wednesday, August 10, 2022

Fw: Ref.: (LML) WHO Goodwill Ambassador's Leprosy Bulletin NO. 110, August 2022

 

 
Leprosy Mailing List – August 10,  2022

 

Ref.: (LML) WHO Goodwill Ambassador's Leprosy Bulletin NO. 110, August 2022

 

From:  Takahiro Nanri, Tokyo, Japan

 

Dear Dr. Schreuder and Friends,  

 

Warm greetings from Sasakawa Health Foundation/Sasakawa Leprosy (Hansen's Disease) Initiative in Tokyo. We have issued WHO Goodwill Ambassador's Leprosy Bulletin NO. 110 August 2022 "Don't Forget Leprosy" throughout the world. In this issue, we feature: 

 

MESSAGE FROM THE AMBASSADOR
When I heard that a friend of mine in Nepal was planning to climb Mt. Everest in May this year, I had the idea to ask him to have his photograph taken at the summit with the message "Don't Forget Leprosy."  Read More 

 

INITIATIVE NEWS

Survey projects supported as part of Don't Forget Leprosy campaign send in reports  

Sasakawa Leprosy (Hansen's Disease) Initiative has been running a campaign called "Don't Forget Leprosy" since August 2021 to send the message that leprosy must not be overlooked amid the COVID-19 pandemic.  Read more 

 

REPORT
Persons affected by leprosy in Indonesia investigate possible human rights violations - PerMaTa South Sulawesi

As a stigmatized disease, leprosy affects all aspects of a person's life, and experiences with social marginalization and discrimination can continue long after the disease has been cured. Read more 

 

REPORT
Survey of persons affected by leprosy and their family members in India's Chandrapur and Gadchiroli districts - Saksham Kushthanteya Swabhimani Sanstha (SKSS), India
Between January and May 2022, Saksham Kushthanteya Swabhimani Sanstha (SKSS), a community-based organization of persons affected by leprosy, carried out a project to collect data on the impact of leprosy and... Read more 

 

LETTER
Experience as a research project officer changed my life - Nwanneka Udoye, Research Assistant, RedAid Nigeria

My name is Nwanneka Udoye, and I am a 42-year-old female science laboratory technology graduate. I live in Enugu, Nigeria. I am a person affected by leprosy, and I have had struggles with stigma and discrimination. Read more 

 

VIEWPOINT
The Abidjan Declaration: Commitment to Zero Leprosy in Côte d'Ivoire - Bill Gallo, Secretariat Director, Global Partnership for Zero Leprosy (GPZL)
In the first week of June, the National Leprosy Programme of Côte d'Ivoire hosted meetings to mobilize the resources needed to end leprosy in the country by 2030.  Read more

 

REPORT
COSP15 side event on participation of persons with invisible and neglected disabilities in climate action and disaster risk reduction - Ashish Shukla, Communications Manager, Disabled Peoples' International (DPI)
In conjunction with the 15th session of the Conference of States Parties (COSP15) to the Convention on the Rights of Persons with Disabilities (CRPD), Disabled Peoples' International (DPI) partnered with the Sasakawa Health Foundation (SHF) to hold an online side event on June 16, 2022. Read more 

 

SPOTLIGHT
Ikoli Harcourt Whyte's songs to be published in dual notation with lyrics in English translation

Nigeria's best-known person affected by leprosy, Ikoli Harcourt Whyte (1905-1977), received his diagnosis in 1914, when lack of treatment was expressed in the Igbo saying: "Onwu bu Ogwu ya (Death is its cure)." Read more 

 

BACK ISSUES 
We hope that you would enjoy reading the latest Leprosy Bulletin. 

 

Takahiro NANRI, Ph.D.
Executive Director, Sasakawa Health Foundation

 

*********************************************************
Sasakawa Leprosy (Hansen's Disease) Initiative
Sasakawa Health Foundation
Tel
81-3-6229-5377, Fax81-33-6229-5388
email: hansen@shf.or.jp
website: https://sasakawaleprosyinitiative.org/,  https://www.shf.or.jp

Subscribe our email newsletter

  

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 


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Thursday, August 4, 2022

Fw: Ref.: (LML) Infolep monthly overview of new publications on leprosy - Aug '22

 

 
Leprosy Mailing List – August 4,  2022

 

Ref.:  (LML) Infolep monthly overview of new publications on leprosy - Aug '22

From:  Anniek Akerboom, Amsterdam, the Netherlands

 



Dear colleagues, 

Infolep has been working together with the Global Partnership for Zero Leprosy to create the first in a series of factsheets summarising major topics in leprosy research. We are happy to announce that the first one-page factsheet on SDR-PEP (post-exposure prophylaxis) is now available >>. The factsheets will become available in English, French, Portuguese and Spanish.

I would like to inform you that this is my last day working as the Infolep Coordinator as I will continue my career at another organisation. I really enjoyed managing Infolep and being of service to all of you. Thank you for your appreciation over the past 2 years, that made my work even more valuable. The upcoming newsletters will be shared by my successor. If you would like to receive a full-text version of a publication or need assistance with literature searches on Infolep, please contact info@infolep.org.

Enjoy reading the latest publications on leprosy.

Wishing you all the best,

Anniek Akerboom

Infolep Coordinator
www.leprosy-information.org
a.akerboom@infolep.org
 

 



 



Highlighted

 



Factsheet on SDR-PEP: The latest research on single-dose rifampicin post-exposure prophylaxis
Global Partnership for Zero Leprosy, Infolep. 2022.
 

Online Course - Leprosy: epidemiology, pathology, immunology, prevention of disability and stigma
Lockwood DN. HS Talks. 2022.
 

Online Course - Leprosy: clinical features and treatment
Lockwood DN. HS Talks. 2022.
 

RehApp 2.0 Mobile app - Rehabilitation Knowledge Base for fieldworkers
Enablement. 2022.
 

A Guide to Improving MDA Using Qualitative Methods
Fitch E, Krentel A, Bardosh K, et al. RTI International. 2021.
 

 



 



Leprosy & COVID-19

 



COVID-19 and Neglected Diseases in the face of inequalities in Brazil: a matter of sustainable development
Diniz DS, Teixeira EDS, Almeida WGRD, et al. FapUNIFESP (SciELO). Saúde em Debate. 2021; 45 (spe2) : 43-55.

 



 



New publications


Feel free to contact me to receive full-text versions if these cannot be found through the Infolep portal.

 



Multibacillary leprosy with an incubation period exceeding 50 years.
Taggart M, Kelly A, Stell R, et al. BMJ case reports. 2022.
 

Regulatory T cells in erythema nodosum leprosum maintain anti-inflammatory function.
Negera E, Bobosha K, Aseffa A, et al. PLoS neglected tropical diseases. 2022; 16 (7) : e0010641.
 

Investigating drug resistance of Mycobacterium leprae in the Comoros: an observational deep-sequencing study.
Braet S, Jouet A, Aubry A, et al. The Lancet. Microbe. 2022.
 

The Armadillo as a Model for Leprosy Nerve Function Impairment: Preventative and Therapeutic Interventions.
Pena M, Lahiri R, Ebenezer G, et al. Frontiers in medicine. 2022.
 

Forecasting models for leprosy cases: a scoping review protocol.
Ascef B, de Oliveira G, Coriolano C, et al. BMJ open. 2022; 12 (7) : e062828. 
 

Leprosy: A Review of Epidemiology, Clinical Diagnosis, and Management.
Chen K, Lin C, Bin Su S, et al. Journal of tropical medicine. 2022.
 

Peripheral neuropathy in leprosy: Clinical manifestations and disability in a Colombian national referral center.
Trujillo-Ramirez L, Palacios-Ariza M, Pradilla I, et al. Dermatology reports. 2022; 14 (2) : 9308. 
 

Early detection of sensory nerve function impairment in leprosy under field conditions
John AS, Govindharaj P. Scientific Scholar. Indian Journal of Dermatology, Venereology and Leprology. 2022.
 

An evidence and reasoning based differential diagnosis of a case of leprosy reinfection from reaction and relapse.
Kumar V, Arora M, Gupta V, et al. Indian journal of medical microbiology. 2022.
 

Case Report: A Case Series of Immunobiological Therapy (Anti-TNF-α) for Patients With Erythema Nodosum Leprosum.
Mendes A, Gomes C, Kurizky P, et al. Frontiers in medicine. 2022.
 

High prevalence of resistance to anti-leprosy drugs in leprosy cases with chronic erythema nodosum leprosum: A matter of concern
Jindal R, Singh I, Bhardwaj S, et al. Medknow. Indian Dermatology Online Journal. 2022; 13 (4) : 511.
 

Neuropathic ulcers in leprosy: clinical features, diagnosis and treatment.
Serrano-Coll H, Cardona-Castro N. Journal of wound care. 2022; 31 (Sup6) : S32-S40.
 

Transmission features of Mycobacterium leprae throughout the decline of leprosy incidence
Shukla R, Seth D, Shukla A, et al. Universidad Tecnica de Manabi. International journal of health sciences. 2022.
 

Leprosy is down but not yet out: new insights shed light on its origin and evolution
Roberts C, Scollard DM, Fava VM. Oxford University Press. Palaeopathology and Evolutionary Medicine. 2022.
 

Epidemiological features of leprosy in China, 2020
Jia-Yi P, Sun P, Wang L, et al. Ovid Technologies (Wolters Kluwer Health). International Journal of Dermatology and Venereology. 2022.
 

Ma'i Lepera : Representation of Leprosy in selected Hawai'ian-American Literature
Indriyanto K. Petra Christian University. k@ta. 2022; 24 (1) : 1-10.
 

Hanseníase: um problema além da cura
Silva ACMD, Jesus CSD, Dias AK, et al. Research, Society and Development. Research, Society and Development. 2022; 11 (9) : e14611931660.
 

A Historical Study of Leprosy Control Policies in Western Nigeria, 1896-1945
Onobhayedo AO. KIU Journal of Humanities. 2022; 7 (2) : 71-78.
 

Análise do perfil clínico e epidemiológico de hanseníase em menores de 15 anos nos últimos 10 anos em um município localizado no sudoeste do Maranhão
Carvalho MLDS, Carvalho MLDS, Oliveira IRN, et al. Revista Eletronica Acervo Saude. Revista Eletrônica Acervo Saúde. 2022; 15 (7) : e10641.

 


Landscape analysis of NTD diagnostics and considerations on the development of a strategy for regulatory pathways
Choi HL, Ducker C, Braniff S, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2022; 16 (7) : e0010597. 
 

Correction of ulnar claw hand – A comparative study of extensor carpi radialis longus (ECRL) and flexor digitorum superficialis (FDS) as the motor unit of choice
Sajid I, Ahmad S. Lepra. Leprosy Review. 2022; 93 (2) : 102-114. 
 

Right to health and Hansen's disease: the voice of girls and women affected by Hansen's disease
Brandão PS, Duarte NIG, Soares PG, et al. Lepra. Leprosy Review. 2022; 93 (2) : 161-165.
 

Sensitivity of different DNA extraction methods and PCR to detect resistance in patients with leprosy stratified by the bacilloscopic index.
Sevilha-Santos L, Aquino D, Neto G, et al. The Brazilian journal of infectious diseases : an official publication of the Brazilian Society of Infectious Diseases. 2022; 26 (4) : 102381.
 

Hansenapp: Development of a mobile application to assist primary healthcare providers to control leprosy.
Matos D, Torres M, da Silva L, et al. Tropical medicine & international health : TM & IH. 2022.
 

A Five Year Retrospective Study of Profile of Leprosy Patients in a Teaching Tertiary Care Centre in Uttarakhand
Joshi K, Rizvi G, Kaushik A, et al. Indian Journal of Leprosy. 2022.
 

Quality of Life in Patients with Leprosy using WHOQoL-Bref Questionnaire: A Pilot Study
Pai VV, Vhora S, Shukla P, et al. Indian Journal of Leprosy. 2022.
 

Video-dermoscopic Assessment of Capillaroscopic Pattern in Hansen's Disease
Sudhakar Rao KM, Smitha SV, Aruna MS, et al. Indian Journal of Leprosy. 2022.
 

Validação de um instrumento simples e de aplicação rápida para rastrear incapacidade em pacientes com hanseníase
Pinho AB, Freitas MMD, Fontes CJF. Georg Thieme Verlag KG. Revista Brasileira de Ortopedia. 2022.
 

Nasal septal perforation in advanced lepromatous leprosy: A report of two cases with endoscopic findings.
Sambangi J, Prabhakaran N, Annam C, et al. Tropical doctor. 2022.
 

Leaving no one behind. A qualitative study about the accessibility of leprosy healthcare services
Lemmens L. Vrije Universiteit Amsterdam. Athena Institute. 2022.
 

A Bibliometric Analysis of Leprosy during 2000-2021 from Web of Science Database.
Li X, Yang J, Zhang L, et al. International journal of environmental research and public health. 2022.
 

Incidencia de lepra en el municipio santa cruz del sur, Cuba. treinta años de estudio
Delgado RME, Curra Buitrago IC, Bárzaga IO, et al. Revista de leprología. 2022; 33 (3) : 171-186. 
 

Ventajas de administrar dosis altas de clofazimina
Butlin CR, Maghanoy AA. Revista de leprología. 2022; 92 (4) : 427-432. 
 

Prevalencia y factores de riesgo para discapacidades de grado 2 entre los niños y adolescentes recién diagnosticados de lepra: un análisis basado en las historias clínicas de la India
Upputuri B, Vulchi N, Singh R, et al. Revista de leprología. 2022; 93 (1) : 79-88.
 

Design of a specific peptide against phenolic glycolipid-1 from Mycobacterium leprae and its implications in leprosy bacilli entry.
Arenas N, Pieffet G, Rocha-Roa C, et al. Memorias do Instituto Oswaldo Cruz. 2022.
 

Definition of 'close contacts' in leprosy studies: protocol for a scoping review
Ronse M, Nieto-Sanchez C, De Coninck S, et al. F1000 Research Ltd. 2022.
 

Fisiopatologia da hanseníase: resposta imunológica relacionada às formas clínicas
Yonemoto ACF, Choptian Júnior MC, Mattara VADO, et al. Research, Society and Development. Research, Society and Development. 2022; 11 (9) : e42211932058.

 



 



 



Events

 



COR-NTD Research Review: Peer Support Models for NTDs
26 July | Recording
 

NNN Conference
13-15 Sep 2022
Kathmandu & Virtual
 

 


COR-NTD Annual Meeting 2022
4 - 5 Oct | Virtual
 

21st International Leprosy Congress
8-11 Nov 2022
Hyderabad & Virtual

 



 



Links

 



Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
 

ALLF - Official website of the Association des Léprologues de Langue Française
 

LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
 

InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)

 


ILEP newsletter archive

GPZL newsletter subscription

WHO Goodwill Ambassador's Leprosy Bulletin

Leprosy Review

Leprosy Review Repository (1928-2001)

Fontilles Revista de Leprología

Indian Journal of Leprosy

Hansenologia Internationalis

 




GDPR & the Infolep newsletter

 
New EU data protection regulations came into force on 25 May 2018. We have been reviewing our practices with regards to the GDPR, including our privacy statement and mailing list.

Infolep sends out monthly e-mails with an overview of recent publications on leprosy and related issues. The purpose of this activity is to keep subscribers up to date.

Infolep will only process the data we have (names, email addresses) for the purpose of sending you the newsletter. We take your security seriously and will never share your contact details with anyone else.

You can update your preferences or unsubscribe from this list at any time.

 

 


LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

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