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Friday, March 7, 2025

Fw: Ref.: (LML) Infolep monthly overview of new publications on leprosy. March, 2025


 

Leprosy Mailing List –  March 7,  2025

 

Ref.:  (LML) Infolep monthly overview of new publications on leprosy. March, 2025

From: Roos Geutjes, Amsterdam, the Netherlands

 

 




Dear colleagues, 

We are pleased to announce that the ILEP ocular leprosy photo database has been successfully developed and integrated into the Infolep platform. As we prepare for its public launch, we are inviting ophthalmologists and other experts to contribute high-quality ocular leprosy photographs and metadata to help build a robust and comprehensive resource. Your contributions will be instrumental to populating the database and advancing training, research, integrated service delivery, and AI-based screening tools for ocular leprosy worldwide. Please find more information below on how to contribute to this initiative. 

Enjoy reading, and please let us know if we've missed anything or if you would like to share any resources through our platform.

Warm regards,

Roos Geutjes

www.infolep.org
info@infolep.org






Practical resources



Lecture On Leprosy (Hansen's Disease) Explained: Microbiology, Immunology & Clinical Aspects
Sinha S. 2025.


The Right to Health made workable for health professionals (Online course)
IFHHRO | Medical Human Rights Network . IFHHRO | Medical Human Rights Network. 2025.


Compassion and primary health care
Addiss D, Graham A, Richards A, et al. Word Health Organization. 2025.


Podcast: power and responsibility in global health
TDR: For research on diseases of poverty. 2025.


Massive Open Online Course (MOOC) on Embedding Social Innovation and Community Engagement in Implementation Research 
Special Ptrogramme for Research & Training in Tropical Diseases (TDR). 2025. 


Partner Capacity Strengthening (Online course)
INTRAC. 2025.


Advocacy Strategy And Influencing Skills (Online course)
INTRAC. 2025.


Monitoring, Evaluation, and Learning (Online course)
INTRAC. 2025.





ILEP Ocular Leprosy Database



We are pleased to announce that the ILEP ocular leprosy photo database has been successfully developed and integrated into the Infolep platform. As we prepare for its public launch, we are inviting ophthalmologists and other experts to contribute high-quality ocular leprosy photographs and metadata to help build a robust and comprehensive resource. Your contributions will be instrumental to populating the database and advancing training, research, integrated service delivery, and AI-based screening tools for ocular leprosy worldwide. 

Submission Guidelines
By clicking here, you will find a Guidance Document including:

  1. An overview of the ILEP Ocular Leprosy Photo Database and its objectives.
  2. The list of ocular leprosy conditions included in the database.
  3. The naming convention for photos and metadata forms.
  4. Detailed instructions on how to submit photographs and metadata.
  5. Basic guidelines for taking ocular photographs.

How to submit
Please follow the attached instructions to upload your photographs and metadata. You are welcome to submit multiple high-quality photographs. Note that each photo should be accompanied by its metadata form. In case of any technical difficulties or questions, please contact
Monty Mukhier, who would be happy to assist.
Thank you in advance for your contributions to the database. They will play a crucial role in improving awareness and prevention of ocular complications in leprosy.
We greatly appreciate your time, effort, and expertise in making this initiative a success.

Best regards,
The ILEP Ocular Leproy Database Team





Other new publications

Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal.



Disability inclusion or exclusion? Insights from rural community-based rehabilitation stakeholders
Chen N, Qi C. Informa UK Limited. Disability & Society. 2025.


Plasma irisin levels in newly diagnosed leprosy patients: a case-control study
Ali M, El Taieb M, Younis A, et al. Archives of Dermatological Research. 2025.


Health-related quality of life implications of plantar ulcers resulting from neuropathic damage caused by leprosy: An analysis from the trial of autologous blood products (TABLE trial) in NepalGibbs NK, Ochalek J, Napit IB, et al. Public Library of Science (PLoS). PLOS ONE. 2025.


Fluorescent Microscopy: A Useful and Adjunct Tool in Leprosy Diagnosis: A Cross Sectional StudyJain SA, Walke VA, Asati D, et al. Farname, Inc.. Iranian Journal of Pathology. 2025; 20 (1) : 8.


A Multicenter evaluation of leprosy rapid test Fast ML Flow Hanseníase in BrazilSaavedra DP, Nobre ML, Guimarães RA, et al. Springer Science and Business Media LLC. European Journal of Clinical Microbiology & Infectious Diseases. 2025.


Insights into leprosy epidemiology from an isolated population located in the Brazilian Amazon
de Oliveira Mackert CC, Lázaro FP, Olandowski M, et al. Springer Science and Business Media LLC. Scientific Reports. 2025.


Risk factors for disabilities among leprosy patients: A systematic review
Kurane S, Dani P. South Eastern European Journal of Public Health. 2025.


A socio-ecological model of the management of leprosy reactions in Indonesia and India using the experiences of affected individuals, family members and healthcare providers
Putri AI, Peters RMH, de Sabbata K, et al. Springer Science and Business Media LLC. BMC Health Services Research. 2025.


Exploring the Neurological Manifestations of Leprosy: Clinical Insights and Implications
Rashidi M, Pitton Rissardo J, Byroju VV, et al. Springer Science and Business Media LLC. Cureus. 2025.


Molecular Detection of Mycobacterium leprae and the Process of Infection and Illness in Contacts of Leprosy Patients: A Systematic ReviewVidal SL, Batista LCF, Lages DDS, et al. MDPI AG. Tropical Medicine and Infectious Disease. 2025; 10 (2) : 14. 


Efeitos adversos no tratamento da hanseníase: uma revisão sistemática
Espanhol HA, Hamada JPCB, Antonio GLN, et al. Brazilian Journals. Brazilian Journal of Health Review. 2025; 8 (1) : 14. 


Terapêuticas de enfermagem para pessoas com limitações decorrentes da hanseníase
Manda AM, Fernandes MA, Costa RMPG. Revista Eletronica Acervo Saude. Revista Eletrônica Acervo Saúde. 2025.


Advancing health equity: Why guideline development must prioritize fairness and justice
Dewidar O, Pardo JP, Peña‐Rosas JP, et al. Wiley. Clinical and Public Health Guidelines. 2025.
 


Occurrence of leprosy among patients with cutaneous leishmaniasis in a hyperendemic area for both diseases
de Carvalho DA, Luz PJGG, da Mata MLKS, et al. Elsevier BV. International Journal of Infectious Diseases. 2025.


Estudo de casos novos de hanseníase no ano de 2022 em três municípios hiperendêmicos do MaranhãoAlves R, Carvalho G, Lima A. Estrabao. Estrabão. 2025. 


Belonging and pride in people with disabilities: An approach to counteract stigma.
Qin S, Isadore K, Chun J, et al. American Psychological Association (APA). Stigma and Health. 2025.


Harnessing digital health to achieve equitable and efficient health systems
Tangcharoensathien V, Labrique A, Rapeepong Suphanchaimat DL, et al. WHO Press. Bulletin of the World Health Organization. 2025; 103 (2) : 2. 


Understanding experiences of neglected tropical diseases of the skin: a mixed-methods study to inform intervention development in EthiopiaKaba M, Hailemichael Y, Alemu AY, et al. BMJ. BMJ Global Health. 2025; 10 (2) : 12. 


Health workers' adoption of digital health technology in low- and middle-income countries: a systematic review and meta-analysis
Wang M, Huang K, Li X, et al. WHO Press. Bulletin of the World Health Organization. 2025; 103 (2) : 16. 


Human Rights and Leprosy: A Bibliometric Analysis
Thahir PS, Agustina DL, Tofly H. Atlantis Press SARL. Advances in Social Science, Education and Humanities Research. 2025.


Development and validation of a machine learning approach for screening new leprosy cases based on the leprosy suspicion questionnaire
Mendonça Ramos Simões M, Rocha Lima F, Barbosa Lugão H, et al. Springer Science and Business Media LLC. Scientific Reports. 2025.


Challenges associated with dapsone for leprosy treatment in Indonesia - urgent need for access to alternative antimicrobial drugs
Krismawati H, Harianja M, Oktavian A, et al. Elsevier BV. The Lancet Regional Health - Southeast Asia. 2025. 


Urine-based ELISA using a recombinant chimeric protein for the diagnosis of paucibacillary and multibacillary leprosy
Câmara RS, Pereira IA, Espíndola GC, et al. Elsevier BV. Tuberculosis. 2025.


Neglected tropical diseases in Yemen: a systematic review of epidemiology and public health challenges
Alhothily IAA, Dapari R, Dom NC. Springer Science and Business Media LLC. BMC Public Health. 2025.


Força de preensão palmar e grau de participação social em pacientes de hanseníase
Ferreira SSP, Martins KKS, Rolim CMS, et al. Brazilian Journals. Caderno Pedagógico. 2025; 22 (2) : 16.


Insight into Paediatric Versus Adult Leprosy: A Comparative, Analytical Study from India
Pandhi D, Gupta P, Singal A, et al. Ovid Technologies (Wolters Kluwer Health). Indian Journal of Dermatology. 2025. 
 





Case Reports


A Case Report on the association Between Leprosy, Type 2 Diabetes Mellitus, and Peripheral Neuropathy causing Diabetic Foot Ulcer
Suhail Z, Askari S. Journal of Pakistan Endocrine Society. 2024.  


Type II Lepra Reaction With Idiopathic Intracranial Hypertension: A Case Report With Challenges in Diagnosis and Management
Zhu R, Jiang Y, Zhan Y, et al. Ovid Technologies (Wolters Kluwer Health). International Journal of Dermatology and Venereology. 2025.  


Anetoderma as a Cutaneous Manifestation of Leprosy: A Report of Two Cases
Palaniappan V, Pavithren T, Youvalakshmi S, et al. Ovid Technologies (Wolters Kluwer Health). Indian Dermatology Online Journal. 2025.  


Erythema nodosum as the initial presentation of leprosy in a 15-year-old boy: a case report on Ethiopia's persistent elimination challenges
Tukeni KN, Aga TM, Abadiko EA, et al. Frontiers Media SA. Frontiers in Medicine. 2025. 


Misdiagnosis of Leprosy with Severe Reversal Reaction as Psoriatic Arthritis: A Case Report and Literature Review
Gunawan H, Hidayah R, Ruchiatan K, et al. Informa UK Limited. Clinical, Cosmetic and Investigational Dermatology. 2025.


Necrotic erythema nodosum leprosum – A case of severe lepromatous reaction in a multibacillary leprosy patient
Nagarajan HDP, Kamaraj B, Selvanathan K, et al. Elsevier BV. IDCases. 2025. 


Lucio phenomenon: a case report on an overlooked reaction in lepromatous leprosy
Sajjachareonpong N, Sudtikoonaseth P, Kampirapap K, et al. PAGEPress Publications. Dermatology Reports. 2025. 


Miiase nasal em paciente com diagnostico de Hanseniase atendido no serviço de otorrinolaringologia da Fundação Hospital Adriano Jorge: um relato de caso|
Guimarães ACPDA, Ferreira FDS, Dantas JM, et al. Brazilian Journals. Brazilian Journal of Health Review. 2025; 8 (1) : 10.  


Rare Masqueraders of Pure Neuritic Leprosy: A Report of Four Cases
Sadhukhan S, Bhardwaj A, Kumar S, et al. Ovid Technologies (Wolters Kluwer Health). Indian Dermatology Online Journal. 2025; 16 (2) : 6. 







News & Events




Call for Funding (Global Health Innovative Technology Fund)


Second global meeting on skin-related neglected tropical diseases (skin NTDs) 
March 24-26, 2025; hybrid; Geneva, Switzerland.


Conference on Neglected Tropical Diseases 2025
May 16, 2025. Windhoek, Namibia.


European Congress for Tropical Medicine and International Health 2025
September 29-October 2, 2025, Hamburg
Save the Date! ECTMIH 2025 is currently still in the planning stage. All information is expected to be available from January 2025 and registration will be possible from then on.


16th Annual NNN Conference 2025
Save the date for the 16th Annual NNN Conference 2025, which will take place in Kampala, Uganda, from September 30 to October 2. Further details will be shared soon.


Tailored guidelines and reduced stigma needed to tackle leprosy, Irish case study reveals
Stewart L.


Funding Opportunity: Host a World Skin Day 2025 Event
Members, supporters, and partners are invited to apply for funding to host a local or regional event for World Skin Health Day (WSHD) 2025. Applications are open until 15 March 2025.


 

Global Disability Summit 2025 
April 2-4, 2025; Berlin, Germany. 
The Global Disability Summit aims to galvanize global efforts to realize disability inclusion around the world. It is a mechanism bringing together a wide variety of high-level stakeholders, engaging and discussing the progress in disability inclusion: governments, multilateral agencies, the private sector, academia and civil society organizations, organizations of persons with disabilities, and foundations. Registration is open.


The Twelfth EDCTP Forum
June 15-20, 2025; Kigali Convention Centre, Kigali, Rwanda
The theme for the 2025 Forum is "Better health through global research partnerships". Registration is open.


3rd Global Forum of People's Organizations on Hansen's Diseas
ILEP member Sasakawa Health Foundation, in consultation with persons affected by leprosy and other stakeholders, is organizing the 3rd Global Forum of People's Organizations. This will be held in Bali, Indonesia from 4-6 July.


22nd International Leprosy Congress 
July 5-9, 2025; Bali Nusa Dua Convention Centra (BNDCC), Bali, Indonesia 
This year the 22nd International Leprosy Congress (ILC) will be held in Bali, Indonesia! The congress uphold the theme: "Towards a World with Zero Leprosy". The theme aims to enhance the evidence into the clinical care in leprosy early diagnosis and therapeutics in the global era and prepare to face the new perspective of dermatology practice. The deadline of abstract submission is 28th of February and the deadline for late registration is July the 6th.





Links



Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
 


ALLF - Official website of the Association des Léprologues de Langue Française
 


LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
 


InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)


ILEP newsletter archive


GPZL newsletter subscription


WHO Goodwill Ambassador's Leprosy Bulletin


Leprosy Review


Leprosy Review Repository (1928-2001)


Fontilles Revista de Leprología


Indian Journal of Leprosy


Hansenologia Internationalis


HARP - database of Hansen's Disease Antimicrobial Resistance Profiles




GDPR & the Infolep newsletter

 
New EU data protection regulations came into force on 25 May 2018. We have been reviewing our practices with regards to the GDPR, including our
privacy statement and mailing list.

Infolep sends out monthly e-mails with an overview of recent publications on leprosy and related issues. The purpose of this activity is to keep subscribers up to date.

Infolep will only process the data we have (names, email addresses) for the purpose of sending you the newsletter. We take your security seriously and will never share your contact details with anyone else.

You can
update your preferences or unsubscribe from this list at any time.



________________________________________________________________________________


LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 


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Tuesday, March 4, 2025

Fw: Ref.: (LML) The Star July-December 2024

 

 

Leprosy Mailing List –  March 4,  2025

 

Ref.:  (LML) The Star July-December 2024

From: José Ramirez, Carville, USA

 

 

Dear Pieter

 

For 100 years the publication, The Star, has endeavored to "radiate the light of truth on Hansen's disease."  It began in the 1930's when patients at the treatment center for leprosy in Carville, Louisiana, United States, embarked on a journey to educate others about this extremely misunderstood disease. 

 

Since then, The STAR has had eight Managing Editors. All eight were patients--sent involuntarily--to Carville. Now, their combined compassion, makes The STAR a publication worth reading for those associated with Hansen's disease, as a medical expert or advocate.  

 

 We hope you enjoy this issue.

 

José Ramirez, Jr., LCSW

Managing Editor, The Star

Chair, Board of Directors, IDEA

 

 

________________________________________________________________________________


LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com


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