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Friday, June 13, 2025

Fw: Ref.: (LML) What a newly diagnosed person can ask of their health professional

 

Leprosy Mailing List –  June 13,  2025

 

Ref.:  (LML) What a newly diagnosed person can ask of their health professional

From: Joel Almeida, Mumbai, India

 

 

 

Dear Pieter and colleagues,

Congrats to Linda Lehman and Pieter Schreuder for putting themselves in the shoes of a person with lived experience of HD (H. Disease). Ref.:(LML) "What determines a successful leprosy control program: preventing disability and relieving human suffering or Zero leprosy?" 30 May 2025

What would each of us ask from our health professional if we received a diagnosis of HD?

For example:

"You started me on treatment. Now it is your job to take me safely back to full health and well-being. I intend to co-operate. Please be honest with me and my family. Give us bad news and good news as needed. Help to inform them and reassure them about my treatment. I understand that for me to be safe, you must test my nerve function every 3 months for at least two years. Then you can stop nerve damage before it becomes irreversible. You must follow me for at least five years so that I can be protected. Do not give anti-microbials to my family members unless they show clear evidence of disease, and then treat them fully and safely just as you are treating me. Protect confidentiality for me."

 

Perhaps others would ask differently or for other things..

HD disproportionately affects neglected people, including some with very little schooling. So they might not know that 85% of new nerve function impairment occurs without signs of inflammation/reaction (Croft et al 2000). Or that live HD bacilli have anti-inflammatory and anti-apoptotic effects. Even health workers might not know. But they can be told. Then anyone who is newly diagnosed can be given a safer journey back to full well-being.

With all sincerity,

Joel Almeida

________________________________________________________________________________

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com


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Tuesday, June 10, 2025

Fw: Ref.: (LML) What determines a successful leprosy control program: preventing disability and relieving human suffering or Zero leprosy?

 

 

Leprosy Mailing List –  June 8,  2025

 

Ref.:  (LML) What determines a successful leprosy control program: preventing disability and relieving human suffering or Zero leprosy?

From: Kerstin Beise, Gowa, Indonesia

 

 

Dear Pieter,


May I send you a response from Al Kadri, Chairman of PerMaTa Indonesia, on the email by Linda Lehman and yourself ("What determines a successful leprosy control program: preventing disability and relieving human suffering or Zero leprosy?")


Thank you!


Regards


Kerstin Beise

 

From: Al Kadri, PerMaTa Indonesia


Dear All,


On behalf of people affected by leprosy around the world, I would like to strongly emphasize and agree with what Linda Lehman and Pieter Schreuders said in their message of 30 May 2025: 'What determines a successful leprosy control programme: the prevention of disability and the alleviation of human suffering or zero leprosy?'.


Indonesia is one of the many countries where POD and rehabilitation nowadays are almost non-existent. It is only thanks to unique efforts such as those of Dr Wim Theuvenet and Dr Ton Schreuders that a few people with leprosy-related disabilities have had access to surgery, while in many other cases it was too late. We sincerely hope that at the ILC in Bali the true situation of people affected by leprosy today will be discussed honestly.


Elimination is a noble goal, but the most important thing that we can achieve together, if we have the commitment, is zero disability and freedom from recurrent reactions.  

 

With best wishes

Al Kadri

________________________________________________________________________________

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com


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Sunday, June 8, 2025

Fw: Ref.: (LML) Infolep monthly overview of new publications on leprosy. June, 2025.

 

 


Leprosy Mailing List –  June 8,  2025

 

Ref.:  (LML)  Infolep monthly overview of new publications on leprosy. June, 2025.

From: Lukas Maass & Roos Geutjes, Amsterdam, the Netherlands 

 

 



Dear colleagues,

We are pleased to spotlight a free upcoming seminar on the basics of GIS for leprosy programs, organized by the Global Leprosy Mapping Initiative. This session is designed for leprosy control program staff and NGO workers, and will take place on July 9th near the ILC conference center. We encourage those involved in mapping, planning, or monitoring activities to attend.

In addition, TDR has issued two calls for proposals focused on implementation research:

  • Implementation of the WHO Global Research Agenda on Knowledge Translation (Deadline: 3 July, 2025)
  • Implementation research on communicable diseases (Deadline: 3 July, 2025)

As always, we invite you to explore the latest publications listed below. If full-text versions are not available on Infolep, feel free to reach out to us - we are happy to assist you with accessing articles or conducting literature searches.


Warm regards,

Lukas Maass & Roos Geutjes 

www.leprosy-information.org
info@infolep.org
 






Seminar 'Basics of GIS for leprosy programs'

The Global Leprosy Mapping Initiative will organize a one-day seminar for leprosy control program and NGO staff to introduce them to the basics of mapping using QGIS, and GIS data collection using KoboToolbox.

Participants will learn how to make maps, how to visualize epidemiological data and how to identify clusters of patients. They will also learn how to design a basic GIS data collection tool for Android devices. More information on the seminar and learning objectives can be found here

The seminar will take place in Grand Whiz Hotel, Nusa Dua, Bali , near the ILC conference center, on 10 July from 9 am till 5 pm. 

Participation is free but limited to maximum 20 participants. To register please send an email to:
eluymoeyen@itg.be.







Featured Research Spotlight


Pre-European contact leprosy in the Americas and its current persistence
Lopopolo M, Avanzi C, Duchene S, et al. Science. American Association for the Advancement of Science (AAAS). 2025;


Development, validation and reliability of knowledge, attitudes and practice questionnaire for people affected by leprosy reactions
Maulana AT, Putri AI, Mengistu BS, et al. Global Public Health. Informa UK Limited. 2025; 20 (1) : 1-17. 


Operational approaches and recommendations to interrupt transmission of Mycobacterium leprae
van Brakel W, de Jong B, Kunju J, et al. Leprosy Review. Lepra. 2025; 96 (2) : 1-18.


Examining the Narratives of Rural Healthcare Workers in the Implementation of Community-based Drug Rehabilitation Program
Victoria NV, Santos G. Journal of Interdisciplinary Perspectives. TWR Book Publishing Services. 2025.







New publications


Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal.



Borderline lepromatous leprosy with lymph node infiltration: Dermatology helps to clarify challenging diagnoses 
Reis VHMD, Miola AC, Ferreira CAZ, et al. Anais Brasileiros de Dermatologia. Elsevier BV. 2025. 


Wildlife hunting and the increased risk of leprosy transmission in the tropical Americas: a pathogeographical study
Aliaga-Samanez A, Deps PD, Fa JE, et al. Infectious Diseases of Poverty. Springer Science and Business Media LLC. 2025; 14 (1) : 1-14.


Outcomes and cost-effectiveness of an integrated holistic care package on persons affected by podoconiosis, lymphatic filariasis and leprosy and community members in north-western Ethiopia: an implementation research study
Ali O, Mihretu A, Hounsome N, et al. BMC Medicine. Springer Science and Business Media LLC. 2025; 23 (1) : 1-12. 


Poverty alleviation policies, programs and practices for people with disabilities: A scoping review and recommendations
Lindsay S, Phonepraseuth J, Leo S, et al. PLOS One. Public Library of Science (PLoS). 2025; 20 (5) : 1-24. 


Male sex is associated with a higher risk of multibacillary leprosy and leprosy-associated disability in northeast Brazil
Barreto JS, Cazzaniga RA, Bezerra-Santos M, et al. Transactions of The Royal Society of Tropical Medicine and Hygiene. Oxford University Press (OUP). 2025.


Sources of evidence, pathways, and processes to support disability-inclusive decision-making in low- and middle-income countries: A scoping review
Useh ER, Trafford Z, Changole P, et al. PLOS Global Public Health. Public Library of Science (PLoS). 2025; 5 (5) : 1-22.


Gender and exposure pathways to zoonotic infections in communities at the interface of wildlife conservation areas of Uganda: A qualitative study
Agaba C, Ferguson L, Emoto S, et al. Global Public Health. Informa UK Limited. 2025; 20 (1) : 2-15.


Spatial, Social and Serological Factors in the Prevalence and Risk of Leprosy in Areas of High Endemicity: An Integrative Review
Lages DDS, Maciel ICL, Vidal SL, et al. Infectious Disease Reports. MDPI AG. 2025; 17 (3) : 57. 


Evaluation of steroids efficacy in preventing and reversing nerve function impairment in multibacillary leprosy cases
Malkani R, Ghate S, Desai M, et al. Cosmoderma. Scientific Scholar. 2025. 


Unveiling hidden leprosy in underserved populations of the Amazonas state through active case‐finding—the Amazon Skin Health Program (2023)
Grana A, Chirano CA, Talhari S, et al. International Journal of Dermatology. Wiley. 2025. 64 (6) : 1079-1085.


Evaluating Machine Learning Models for Predicting Late Leprosy Diagnosis by Physical Disability Grade in Brazil (2018–2022)
Freitas LRSD, Freitas JAOD, Penna GO, et al. Tropical Medicine and Infectious Disease. MDPI AG. 2025; 10 (5) : 131. 


Machine Learning-Based Risk Prediction Model for Leprosy-Related Disability Among Leprosy Patients: A 39-Year Observed Cohort Study
Guo Y, Kuang Y, Zhang C, et al. Mayo Clinic Proceedings: Digital Health. Elsevier BV. 2025. 


Identification of HLA-B*13:01 allele in leprosy patients with dapsone hypersensitivity syndrome in Ambon, Indonesia
Menaldi SLSW, Priyanto MH, Widaty S, et al. Frontiers in Tropical Diseases. Frontiers Media SA. 2025. 


Lessons From the Past, Hope for the Future: A Qualitative Study on the Lives of Leprosy-Affected Residents of a Leprosy Settlement in Malaysia
Abdul Rahman N, Rajaratnam V, Rafee NHM, et al. Qualitative Health Research. SAGE Publications. 2025. 


Mycobacterium leprae Slide Positivity at Felege Hiwot Comprehensive Specialized Hospital, Northwest Ethiopia: Seven Years Retrospective Study
Erkihun M, Assefa A, Legese B, et al. Health Science Reports. Wiley. 2025; 8 (4) : 7. 


Bedaquiline Activity against Leprosy
Fomba A, Haidara FC, Kodio M, et al. New England Journal of Medicine. Massachusetts Medical Society. 2025; 392 (21) : 2174-2176. 


Quality of life among leprosy patients: An analysis of associated factors
Edin A, Towfik Z, Tesfaye D, et al. PLOS Mental Health. Public Library of Science (PLoS). 2025; 2 (5) : 1-19. 


Preliminary evaluation of a neurological clinical pathway for the early detection of leprosy in low-endemic settings: A single-center exploratory study
Chen X. Scientific Reports. Springer Science and Business Media LLC. 2025.


HANSENÍASE EM IDOSO: CARACTERÍSTICAS EPIDEMIOLÓGICAS, CLÍNICAS E DERMATONEUROLÓGICAS EM ÁREA ENDÊMICA DA REGIÃO NORTE
Silva AWCD, Rosario RRS, Silva Filho JD, et al. REVISTA FOCO. Brazilian Journals. 2025; 18 (5) : 1-22.


ACESSO GEOGRÁFICO À SAÚDE E DISTRIBUIÇÃO DE HANSENÍASE EM SANTARÉM-PA: ANÁLISE DA COBERTURA DAS UNIDADES BÁSICAS EM ÁREA HIPERENDÊMICA DA AMAZÔNIA
Conde V, Carvalho M, de Matos W, et al. Revista Aracê. Seven Publicações Acadêmicas LTDA.. 2025; 


Desafios encontrados na adesão do tratamento de pessoas com Hanseníase: uma revisão integrativa
Santos NDS, Camara BADA, Martins MCM, et al. Journal of Medical and Biosciences Research. Nilton Lins University. 2025; 2 (3) : 387-403. 


Fatores associados à ocorrência dos episódios reacionais da hanseníase em Mato Grosso, Brasil
Arruda VLD, Lima JC, Dominguez OAE, et al. Hansenologia Internationallis hanseníase e outras doenças infecciosas. Instituto Lauro de Souza Lima. 2025;


Estudo epidemiológico da Hanseníase na cidade de Belém e região metropolitana, 2014-2023
Tavernard MR, Krischer RS, Dias SM. Brazilian Journal of Health Review. Brazilian Journals. 2025; 


Cirurgia de neurólise na dor em pacientes com hanseníase no território da Amazônia
ocidental: estudo retrospectivo

Ferrari DA, Coqueiro EDS, Casseb FS, et al. Brazilian Journal of Pain. Sociedade Brasileira para o Estudo da Dor. 2025.


Strategi Program Pengendalian dan Pencegahan Penyakit Kusta di Kabupaten Serang
Adelah I, Mustopa , Sukmayadi A. Jurnal Ilmu Kesehatan Masyarakat. Universitas Indonesia Maju. 2025; 


Studi Kasus Implementasi Pemberian VCO dan Edukasi Kesehatan pada Keluarga Penderita Penyakit Kusta di Wilayah Kerja Puskesmas Sukodono
Rahmawati PM, Suhari , Sulistyono RE, et al. Binawan Student Journal. Universitas Binawan. 2025; 7 (1) : 52-61. 


Penatalaksanaan Proses Fisioterapi pada Kasus Pressure Ulcer e.c Morbus Hansen di RSUD Sumber Glagah Mojokerto : A Case Report
Ardhita Hilwa Zakia , Isnaini Herawati , Ayu Dwi Lestari . Jurnal Medika Nusantara. Sekolah Tinggi Ilmu Kesehatan Kesdam IV / Diponegoro Semarang. 2025; 3 (2) : 107-115.


Association between psychological comorbidities, leprosy reaction, cortisol and C-reactive protein levels in people on leprosy treatment
Loures LF, Mármora CHC. Leprosy Review. Lepra. 2025; 96 (2) : 1-11. 


Interrupting transmission of Mycobacterium leprae: synthesis of new evidence and research recommendations
Hasker E, Cambau E, Geluk A, et al. Leprosy Review. Lepra. 2025; 96 (2) : 1-28. 


Unmet needs of households and people living in leprosy colonies in India
Jain A, Chakrabartty A, Nayak PK, et al. Leprosy Review. Lepra. 2025; 96 (2) : 1-12. 


A descriptive study of non-neuropathic ulcers in leprosy: a retrospective study in a tertiary hospital in India
Bains A, Bhatia D, Mandiya S, et al. Leprosy Review. Lepra. 2025; 96 (2) : 1-12. 


Efficacy of Multidrug Therapy (MDT) and exclusion of transplacental transmission in a pregnant woman with multibacillary leprosy
Argentina F, Bernolian N, Sakina M, et al. Leprosy Review. Lepra. 2025; 96 (2) : 1-5. 


Classic and new candidate markers for drug resistance in a large cohort of leprosy patients from the Amazon state, Brazil
Ferrreira CDO, Leturiondo AL, dos Santos CG, et al. Antimicrobial Agents and Chemotherapy. American Society for Microbiology. 2025; 


Disabilities Among Newly Reported Leprosy Cases in Visakhapatnam District, India: A Cross-Sectional Study of Prevalence and Associated Factors
Jalakam Venkata SP, Lotheti S, Bhimarasetty DM. Cureus. Springer Science and Business Media LLC. 2025; 


Health Seeking Behaviour of Leprosy Patients Attending Dermatology OPD of a Tertiary Care Health Centre of Western Odisha: A Cross-Sectional Study
Meher TK, Pradhan K, Bhue PK, et al. Journal of Contemporary Clinical Practice. Kuwait Scientific Society. 2025.


Clinical data on diffuse reflectance and autofluorescence spectra of leprosy affected skin
Baral S, Plorina EV, Acharya B, et al. Leprosy Review. Lepra. 2025; 96 (1) : 15. 










Case Reports


Ocular and Periocular Leprosy Confirmed by Polymerase Chain Reaction and Histopathology with Therapeutic Insights
Shambu SK, Nagaraj K, Ramesh S, et al. Ocular Immunology and Inflammation. Informa UK Limited. 2025; 


Vasculonecrotic Reaction Caused by Mycobacterium Lepromatosis Infection—A Case Report of an HIV/Leprosy-Coinfected Patient
Amador-Lara F, Mayorga-Garibaldi JL, Bustos-Rodríguez FJ, et al. Infectious Disease Reports. MDPI AG. 2025; 17 (3) : 58.





Systematic Reviews


Educational Technologies to Promote Self-Care in People Affected by Leprosy: A Systematic Review
Sales JKDD, da Silva KN, Martins AKL, et al. Aquichan. Universidad de la Sabana. 2025; 25 (1) : 1-20. 


Prevalence of depression, suicidal ideation, and its risk factors in leprosy patients: A systematic review
Keerthana G, Neeraja S, Padmakar S, et al. Ethics, Medicine and Public Health. Elsevier BV. 2025;


The role of high-resolution ultrasonography (HRUS) in detecting peripheral neuropathy in leprosy patients and household contacts: a systematic review
Tjiaman MP, Zaidan MZ, Ausath ZF, et al. Leprosy Review. Lepra. 2025; 96 (1) : 13. 


Capacitação para a equipe de saúde da atenção primária sobre a hanseníase na Atenção Primária à Saúde: revisão de escopo
Bolorino N, Tiroli CF, Ravagnani JKDS, et al. Caderno Pedagógico. Brazilian Journals. 2025; 22 (6) : 26. 


Leprosy: health education with children and adolescents – systematic review / Hanseníase: educação em saúde com crianças e adolescentes – revisão sistemática
Francisco MM, Albuquerque MIND, Santos LMDS, et al. Revista de Pesquisa Cuidado é Fundamental Online. Universidade Federal do Estado do Rio de Janeiro UNIRIO. 2025.





News & Events




World Health Assembly adopts historic Pandemic Agreement to make the world more equitable and safer from future pandemics


Progress for NTDs: two resolutions adopted at WHA78
 

Global efforts to eradicate Guinea-worm disease gain fresh momentum with a new WHO resolution, reinforcing the 2030 eradication target and calling for integrated human-animal-environmental strategies amid rising animal infections.

Meanwhile, Member States have also declared skin diseases a global public health priority, urging coordinated action to address their burden, improve early detection, and integrate care into primary health system.


Strengthening One Health leadership through implementation research in Francophone Africa


Webinar: Strengthening leadership on One Health through implementation research in Francophone Africa / Renforcer le leadership en One Health grâce à la recherche sur la mise en œuvre en Afrique francophone


Call for Applications 2025-2026: Implementation of the WHO Global Research Agenda on Knowledge Translation (2025)

Proposals should align with the 2024 - 2029 TDR strategy, emphasizing country-led implementation research to improve health systems and access to interventions. Priority will be given to projects addressing major global health challenges through a One Health lens;

Deadline for submission: 3 July 2025


2025-26 Call for Applications for the Joint WPRO/TDR Impact grants for regional priorities focused on implementation research on communicable diseases

The WHO Western Pacific Regional Office (WPRO) and TDR invite proposals for the 2025–2026 Joint Impact Grants focused on implementation research to improve health outcomes in low- and middle-income countries in the Western Pacific Region.

Deadline: 16 July 2025 (23:59 PHT)


Health Products Manufacturing Policy Study Tour Gives Africa a Strategic Boost


Practical Geospatial Mapping: A Hands-on QGIS 3.4 Workshop








Links



Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
 


ALLF - Official website of the Association des Léprologues de Langue Française
 


LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
 


InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)


ILEP newsletter archive


GPZL newsletter subscription


WHO Goodwill Ambassador's Leprosy Bulletin


Leprosy Review


Leprosy Review Repository (1928-2001)


Fontilles Revista de Leprología


Indian Journal of Leprosy


Hansenologia Internationalis


HARP -  Hansen's Disease Antimicrobial Resistance Profiles




GDPR & the Infolep newsletter

 
New EU data protection regulations came into force on 25 May 2018. We have been reviewing our practices with regards to the GDPR, including our
privacy statement and mailing list.

Infolep sends out monthly e-mails with an overview of recent publications on leprosy and related issues. The purpose of this activity is to keep subscribers up to date.

Infolep will only process the data we have (names, email addresses) for the purpose of sending you the newsletter. We take your security seriously and will never share your contact details with anyone else.

You can
update your preferences or unsubscribe from this list at any time.




________________________________________________________________________________

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com


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