Leprosy Mailing List – July 8, 2024
Ref.: (LML) Infolep monthly overview of new publications on leprosy. July, 2024.
From: Roos Geutjes & Sophie Vissers, Amsterdam, the Netherlands
Dear colleagues,
We are excited to share several important updates and resources with you. This edition features:
- The WHO report on the recent meeting of Leprosy Programme Managers in the South-East Asia Region.
- Interesting publications addressing disability, stigma, discrimination, and mental health.
- A highlighted book chapter offering a comprehensive update on leprosy in Sub-Saharan Africa.
- A curated selection of articles available in Portuguese, Spanish, and Bahasa.
Additionally, we have some thrilling news about our website! This month, we are optimizing the navigation menu and search functionality on Infolep to enhance accessibility. We will keep you informed as these improvements are rolled out.
We are also delighted to welcome Sophie Vissers to our team. Sophie will be taking over from Josephine Breman-Srivastava during her leave.
Stay tuned for these updates and more content!
Warm regards,
Roos Geutjes & Sophie Vissers
www.infolep.org
info@infolep.org
Practical Materials
Regional Strategic Framework for sustaining, accelerating and innovating to end neglected tropical diseases in the South-East Asia Region, 2024–2030 [WHO technical document]
Resource Toolkit September 2022 What Works for Health Systems Strengthening [Resource Toolkit K4D, Brighton: Institute of Development Studies]
Disability Inclusive CVA [Open CBM Global Disability Inclusion course]
Loss and love [podcast episode]
The Leprosy Mission Australia. 2024.
Highlighted Publications
Meeting of Leprosy Programme Managers in the South-East Asia Region Kolkata, India, 11–13 April 2023
World Health Organization. Regional Office for South-East Asia . 2024.
Leprosy in Sub-Saharan Africa
Quao BO, Kawuma HJS, Doni SN, et al. Neglected Tropical Diseases - Sub-Saharan Africa. Springer International Publishing. 2024.
Is the WHO 'global' rate indicator an accurate reflection of the annual leprosy-associated disability burden experienced worldwide?
Quilter EEV, Butlin CR. Leprosy Review. Lepra. 2024; 95 (2) : 1-12.
Understanding the burden of poor mental health and wellbeing among persons affected by leprosy or Buruli ulcer in Nigeria: A community based cross-sectional study
Ossai EN, Ekeke N, Esmai-Onyima A, et al. PLOS ONE. Public Library of Science (PLoS). 2024; 19 (6) : 1-15.
Elimination of discrimination against persons affected by leprosy (Hansen's disease) and their family members
Miranda-Galarza B. Human Rights Council, United Nations. 2024.
Meeting summary - Human Rights Council Discusses the Elimination of Discrimination against Persons Affected by Leprosy, Violence against Women, and the Rights of Internally Displaced Persons
United Nations Information Service in Geneva . n.d.
New publications
Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal.
Applying geospatial methods in leprosy prevention and control
Taal A. Erasmus University Rotterdam. Erasmus University Rotterdam. 2023.
Clinical Profile, Transmission Factors, and Early Disability Prevalence of Leprosy: A Single Center Observational Study at Bunda Pembantu Abadi General Hospital Naob, East Nusa Tenggara, Indonesia
Ayleen Nathalie Jap , Hawari I. Community Medicine and Education Journal. Hanif Medisiana Publisher. 2024; 5 (2) : 517-524.
MIP vaccine in leprosy: A scoping review and future horizons
Narang T, Jain S, Kaushal I, et al. Indian Journal of Dermatology, Venereology and Leprology. Scientific Scholar. 2024.
Lepra Reactions: Mimickers and Mirror to Unmask Complex Cases of Leprosy
Kumari S, Verma GK, Negi AK, et al. Indian Dermatology Online Journal. Medknow. 2023; 15 (3) : 500-503.
IgG seroprevalence of Toxoplasma gondii and Leishmania infantum in leprosy patients: Implications for screening and management of co-infections
Grossi de Oliveira AL, Brito RMDM, Siqueira WF, et al. Diagnostic Microbiology and Infectious Disease. Elsevier BV. 2024; 110 (1) : 116405.
Primary health care professionals' practice in the face of leprosy: a scoping review
Macêdo MS, Barbosa NS, Almeida PD, et al. Revista Brasileira de Enfermagem. 2024; 77 (2) : 1-9.
Clinico-Epidemiological Profile of Leprosy Cases in Post-Elimination, Post Covid Era at a Tertiary Care Center
Tripathi S, Singh Dhakar J. International Journal of Current Pharmaceutical Review and Research. 2023.
Primary infertility in leprosy: a neglected underdiagnosed consequential manifestation.
Antakanavar G, Bahadur A, Dev T, et al. International journal of dermatology. 2024.
Lepra at one hundred years: A century of innovation and research
Innes J, Lockwood D. Leprosy Review. Lepra. 2024; 95 (2) : 1-5.
The impact of leprosy-related stigma and coping mechanisms of people affected: A qualitative study from a suburban area in Northern district of Gresik, Indonesia
Kinanti H, Alinda MD. Leprosy Review. Lepra. 2024; 95 (2) : 1-11.
Training and Motivation of Grass-Root Level Workers in Leprosy are Critical to Accelerate Reaching Zero Leprosy Goals in India
Baghotia K, Rao P. Indian Journal of Leprosy. 2024.
Experience with Administering Single Dose Rifampicin as Post-Exposure Prophylaxis (SDR-PEP) for Leprosy Through Blanket Approach in Uttar Pradesh, India
Singh R, Agarwal A. Indian Journal of Leprosy. 2024.
Correlation between TGF-β Levels and Degree of Wound Healing in Leprosy Ulcer Patients: An Observational Study at dr. Rehatta Regional Hospital Jepara
Alfarizi R, Yuniati R, Putra Mundhofir FE, et al. Jurnal Kedokteran Diponegoro . 2024.
As vulnerabilidades das mulheres na hanseníase: uma revisão integrativa de literatura
Mendes DSGJ, Soares FDS, Da Silva MV, et al. Cadernos Ibero-Americanos de Direito Sanitário. Cadernos Ibero-Americanos de Direito Sanitario. 2024; 13 (2) : 29-40.
Estudo comparativo de instrumentos de autoavaliação para triagem de casos de hanseníase: revisão integrativa
Costa LG, Ignotti E, Frade MAC, et al. Revista Eletrônica Acervo Saúde. Revista Eletronica Acervo Saude. 2024; 24 (5) : 1-9.
Perfil Epidemiológico Da Hanseníase No Estado Do Amazonas (2018- 2023)
Bentes AADS, Lima KDS, Souza RRD, et al. Brazilian Journal of Implantology and Health Sciences. Brazilian Journal of Implantology and Health Sciences. 2024; 6 (5) : 2081-2096.
Ampliando Horizontes: o potencial do podcast como ferramenta de educação inclusiva – uma Revisão Sistemática de Literatura
Queiroz ADM, Bedin E. Revista Exitus. Universidade Federal do Oeste do Para. 2024.
Any resurgence of leprosy cases in the Togo's post-elimination period? Trend analysis of reported leprosy cases from 2010 to 2022
Bakoubayi AW, Haliba F, Zida-Compaore WIC, et al. BMC Infectious Diseases. Springer Science and Business Media LLC. 2024; 24 (1) : 1-9.
Report of the sixth meeting of the WHO Diagnostic Technical Advisory Group for Neglected Tropical Diseases: Geneva, Switzerland, 14–15 February 2024
World Health Organization, Control of Neglected Tropical Diseases team, Diagnostics Technical Advisory Group team . 2024.
Toxoplasma gondii infection and high levels of IgE are associated to erythema nodosum leprosy (ENL)
Nascimento LS, de Castro YS, Figueira JDA, et al. PLOS ONE. Public Library of Science (PLoS). 2024; 19 (6) : 1-12.
Leprosy health technologies in Primary Health Care: a scoping review
Martins RMG, Alves DDA, Alves SAA, et al. Revista Enfermagem UERJ. Universidade de Estado do Rio de Janeiro. 2024.
Nerve function impairment and quality of life in patients with leprosy: a prospective, observational study
Sharma A, Narang T, Takkar A, et al. International Journal of Dermatology. Wiley. 2024.
A Cross-Sectional Study of the Success of the Leprosy Elimination Strategy before and after a 10-Year Eradication Period in a Referral Hospital in Tamil Nadu, India
Sundaramoorthy A, Hemachandran K, Abilash VG, et al. Medical Research and Its Applications Vol. 6. B P International. 2024.
Human Skin as an Ex Vivo Model for Maintaining Mycobacterium leprae and Leprosy Studies
de Paula NA, Leite MN, de Faria Bertoluci DF, et al. Tropical Medicine and Infectious Disease. MDPI AG. 2024; 9 (6) : 135.
Leprosy Screening Through Image Processing Methods
Agrawal P, Anand A, Sharma M, et al. CRC Press. 2024.
Effectiveness of Competency-based Training of Village Rehabilitation Workers in Strengthening Their Community-based Rehabilitation Domains: A Policy Implication
Channaveer R. Journal of Social Policy, Social Change and Development. 2024.
Asymptomatic leprosy contacts present asymmetrical skin temperature in hands by infrared thermography
Sabino EFP, Fernandes Santos D, Eulálio Antunes D, et al. Leprosy Review. Lepra. 2024; 95 (2) : 1-10.
Prevalence and health-seeking behavior of leprosy patients at Universitas Mataram Hospital
Putri WJK, Hapsari Y, Kusuma DR. BKM Public Health & Community Medicine. 2024.
A study on the role of High-resolution Ultrasonography in Leprosy neuropathy
Srinivas Prasad DD, Saiteja DG, Sowjanya DC. International Journal of Life Sciences, Biotechnology and Pharma Research. 2024.
The effect of antireaction medications on the association between periodontitis and leprosy reactions: An important methodological issue in periodontal medicine
Sacramento IDS, Gomes‐Filho IS, Cruz SSD, et al. Journal of Periodontology. Wiley. 2024.
Stigma Masyarakat dan Upaya Edukasi Berbasis Keluarga Terkait Penyakit Kusta
Lamonge AS, Polii GB, Mawuntu ADP, et al. Jurnal Ilmiah Perawat Manado (Juiperdo). 2024.
Karakteristik Penderita Lepra (kusta) yang Menjalani Pengobatan Rawat Jalan di Puskesmas Tamalate Makassar Periode 2017 - 2022
Pratama Mahfud M, Yuniati L, Adharia A, et al. Jurnal Pendidikan Tambusai. 2024.
Avaliação dos impactos sociais e psicológicos no tratamento de hanseníase: Um estudo longitudinal
Duarte ALM, Santos CT, Roriz PHP. Research, Society and Development. Research, Society and Development. 2024; 13 (6) : 1-9.
Estado reaccional de enfermedad de Hansen como causa de fiebre de origen desconocido
Montiel Centurión JN, Da Ponte Rojas MN, Gómez Núñez MG, et al. Revista Virtual de la Sociedad Paraguaya de Medicina Interna. Instituto de Investigaciones en Ciencias de la Salud. 2024; 11 (1) : 1-10.
Case Reports
The use of intravenous immunoglobulin as a rescue therapy for refractory parainfectious leprosy-related neuritis: a case series
Léo JGP, Siqueira CB, Motta JDOCD, et al. Anais Brasileiros de Dermatologia. Elsevier BV. 2024.
A case of De-Novo histoid leprosy with keloid-like nodules
Aulia TU, Djawad K, Amin S. Journal of Pakistan Association of Dermatologists. 2024.
Near fatal case of Lucio leprosy with Lucio phenomenon with pleomorphic features and its successful management from a non-endemic area
Daniel SJ, Rajan M, Ruba MV, et al. BMJ Case Reports. BMJ. 2024.
A case report and literature review: Mycobacterium leprae infection diagnosed by metagenomic next-generation sequencing of cerebrospinal fluid
Zhao C, Liu Z. BMC Infectious Diseases. Springer Science and Business Media LLC. 2024; 24 (1) : 1-7.
Leprosy Presenting as Distal Acquired Demyelinating Symmetric Variant of Chronic Inflammatory Demyelinating Polyneuropathy: An Atypical Manifestation of Hansan's Disease.
Ranjan A, Kumar A, Sinha N, et al. International journal of mycobacteriology. 2024; 13 (2) : 218-220.
De-novo Histoid Leprosy: A Case Report and a Review of Literature
Siddiqui M. Indian Journal of Leprosy. 2024.
A case report on imaging findings of rare segmental necrotizing granulomatous neuritis of leprosy involving ulnar nerve.
Netam S, Gupta N, Chandrakar N. Qatar medical journal. 2024; 2024 (3) : 1-7.
Borderline leprosy with unilateral blepharoptosis in reversal reaction
Palaniappan V, Raveendran P, Karthikeyan K. Oman Journal of Ophthalmology. Medknow. 2024; 17 (2) : 299-300.
Hansen's disease with lepra reaction presenting as a rheumatological disease
Kori D. Indian Journal of Case Reports. 2024.
Erythema nodosum leprosum necroticans: a case report of an atypical severe type 2 leprosy reaction and literature review.
Alfieri A, Dewi S, Siswati A, et al. Le infezioni in medicina. 2024; 32 (2) : 248-253.
Fitness to Work in a Hansen's Disease Worker With a Disability: A Case Report.
Soemarko D, Adi N, Sofyan M. Journal of UOEH. 2024; 46 (2) : 215-220.
Case report: Myelitis and ganglionitis, an atypical presentation of Hansen's disease.
Spitz C, Pitta I, Andrade L, et al. Frontiers in medicine. 2024.
Intervenções terapêuticas ocupacionais com a aplicação do Protocolo de Atividade Exercício (PAE) para a reabilitação física de paciente com sequelas hansênicas: Relato de experiência
Souza ABDS, Borges JVS, Morais VHMD, et al. Challenges and Research in Health Sciences: A Multidisciplinary Approach. Seven Editora. 2024.
Central Serous Chorioretinopathy in a Patient with Hansen's Disease with Type 1 Lepra Reaction - A Case Report
Singh T, Narang T, Yakang D. Indian Journal of Leprosy. 2024.
An Atypical Presentation Of Tuberculoid Leprosy On The Heel
Barranco C, Krishnamurthy K, Stepien A. HCA Florida Orange Park Hospital. 2024.
A case of borderline leprosy revealed by immunosuppressive treatment for systemic lupus erythematous
Zangrandi A, Tagliaferri G, Priante G, et al. International Journal of Travel Medicine and Global health. 2024.
Hansen's Disease Presenting as Erythroderma in a Tribal Woman of South Gujarat
Chaudhari D, Bharti A, Vasava D. Indian Journal of Leprosy. 2024.
Lepromatous Leprosy in an Immunosuppressed Patient Due to Renal Transplantation Associated with Glucose-6-Phosphate Dehydrogenase Deficiency: A Diagnostic and Therapeutic Challenge
Fernández-Vela J, Romaní J, Martin-Ezquerra G. Indian Dermatology Online Journal. Medknow. 2024.
News & Events
Regional consultation on leprosy elimination in Africa
July 17, 2024; 13:00-15:00 (UTC+1)
Online meeting to strengthen leprosy elimination efforts in the WHO African Region. Intepretation in English, French and Portuguese is available. Please make sure to register in advance.
NHIR Global Advanced Fellowships - Round 1
The Global Advanced Fellowship will create a career pathway for Global Health researchers from the UK and low and middle income countries for postdoctoral researchers at all levels to become research leaders. This £750,000 award will fund research projects, training and development, and institutional capacity strengthening. Please check out the website for all eligibility criteria. Deadline for applications is 11th of July, 2024.
Change of dates! 7th Conference – 7th Community Based Rehabilitation (CBR) /Community Based Inclusive Development (CBID)
September 9-12, 2024; Entebbe, Uganda.
The 7th Community Based Rehabilitation (CBR) /Community Based Inclusive Development (CBID) Africa Conference is organized by CBR Africa Network (CAN) and hosted by the Government of Uganda spearheaded by the Ministry of Gender, Labour and Social Development (MGLSD). The three-day CBR/CBID Africa conference will provide a platform for various stakeholders to come together, exchange ideas on the role of CBR/CBID in promoting disability inclusive development. Early bird registation deadline is August 15th.
The Royal Society of Tropical Medicine & Hygiene hosts several events including their annual meeting, webinars with interesting guests, events foccused on early career researchers and a regional meeting taking place in Nigeria focussing on West-Africa. Please check out their website for all the events.
COR-NTD Meeting for the Pacific Islands
September 25-26, 2024; Brisbane, Australia.
The 2nd annual Regional COR-NTD Meeting for the Pacific Islands will take place from September 25 to 26, 2024 in Brisbane, Australia. The goal of this meeting is to bring together key stakeholders to address how to eliminate lymphatic filariasis, scabies, trachoma, leprosy and other NTDs from the region.
Transforming the Life of Leprosy Patients in Uganda (WHO article about the Zero Leprosy roadmap and the national strategic plan for TB and Leprosy in Uganda)
Request for Proposals | Robert Carr Fund
The Robert Carr Fund invites global and regional civil society networks and consortia of networks led by, and/or serving inadequately served populations to apply for a grant to support their core funding and activity needs for a three-year period (2025-2027). Deadline for proposal submission via online application portal 22 July 2024 12:00 (noon) CET.
The 3rd International Training Program on Leprosy for Developing Countries
October 13-26, Taian City and Jinan City, China.
The objective of the program is to update new technology for leprosy prevention and treatment, to promote global partnership in addressing current challenges. Deadline to register is July 31st. For more information e-mail the contact person Dr. Yonghu Sun.
NNN Conference 2024
October 1-3, 2024; Kuala Lumpur, Malaysia.
The NNN Annual Conference 2024 will take place from 1st of October - 3rd of October, 2024, in Kuala Lumpur Malaysia. The theme for the conference is: "Collaboration for Change: Fostering Global Equity and Strengthening Community Engagement in NTDs." Registration is open.
Conference on Neglected Tropical Diseases 2024
November 14-16, 2024, Nairobi; Kenya.
The 1st edition of the Conference on Neglected Tropical Diseases, organized by AME is tentatively scheduled from 14-16 Novermber in Nairobi, Kenya, as a hybrid meeting. The abstract-driven conference proposes a platform to disseminate new advancements, real-world data, implementation challenges, and novel governing models to discuss and generate solutions for cross-cutting topics and ultimately reduce the disease burden and societal impact of NTDs. This proposal supports the progress in foundational pillars of the WHO Roadmap by facilitating evidence-based program implementation, leveraging the cross-cutting approach, and providing a forum to discuss a paradigm shift toward country ownership of elimination programs.
Links
Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
ALLF - Official website of the Association des Léprologues de Langue Française
LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)
WHO Goodwill Ambassador's Leprosy Bulletin
Leprosy Review Repository (1928-2001)
Fontilles Revista de Leprología
HARP - database of Hansen's Disease Antimicrobial Resistance Profiles
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