Leprosy Mailing List – June 28, 2021
Ref.: (LML) SR Leprosy/Hansen's disease Newsletter
From: Alice Cruz, Quinto, Ecuador
Dear friends and partners,
My team and I are very happy to share with you the first edition of my mandate's newsletter.
By attached file the first edition of the biannual newsletter of the United Nations Mandate of the Special Rapporteur on the Elimination of Discrimination Against Persons Affected by Leprosy and their Family Members. With this newsletter I, Alice Cruz, aim at sharing information about my public activities as Special Rapporteur since the transition period from my first term to my second term (October/November 2020) until the end of the first semester of 2021 (more exactly mid-June of 2021). This newsletter is a part of a continuous effort undertaken by my team and I, as well as many other stakeholders in the field, to enable access to human rights related information to persons affected by leprosy and their family members. I encourage you to share this newsletter–and future ones- with people and organizations who might have an interest in this topic.
But first, a word on terminology: a discussion among persons with the personal experience of leprosy and their representative organizations about terminology regarding the disease and the people who experience it is ongoing, with some segments of the community preferring the terms "Hansen's disease" and "persons who have experienced Hansen's disease". I deeply appreciate such a discussion, but as Special Rapporteur it is not up to me to favor a particular term. Any change in terminology needs to result from a collective agreement between people with the personal experience of leprosy/Hansen ́s disease and their representative organizations. While I look forward to receive further guidance from them on this matter, I will employ in this first newsletter the terminology used by the Human Rights Council in its resolution 44/6.
Happy reading!
Alice
PORTUGUÊS
Queridxs amigxs e parceirxs.
A minha equipa e eu estamos muito felizes de partilhar com vocês a primeira edição do boletim de notícias do meu mandato.
Desejo a todxs uma boa leitura!
Alice
ESPAÑOL
Estimados amigxs y compañerxs,
Mi equipo y yo estamos muy contentos de compartir con ustedes la primera edición del boletín de mi mandato.
¡Les deseo a todxs una feliz lectura!
Alice
FRANÇAIS
Chers amis et partenaires,
Mon équipe et moi sommes très heureux de partager avec vous la première édition du bulletin de mon mandat. Souhaite à tous une bonne lecture!
Alice
LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
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