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Monday, June 28, 2021

Fw: Ref.: (LML) SR Leprosy/Hansen's disease Newsletter


 

 
Leprosy Mailing List – June 28,  2021

 

Ref.:  (LML) SR Leprosy/Hansen's disease Newsletter

 

From:  Alice Cruz, Quinto, Ecuador

 

 

Dear friends and partners,

 

My team and I are very happy to share with you the first edition of my mandate's newsletter.


By attached file the first edition of the biannual newsletter of the  United Nations Mandate of the Special  Rapporteur on the Elimination of Discrimination Against Persons  Affected by Leprosy and their Family Members.  With this newsletter I, Alice Cruz,  aim  at  sharing information about my public activities as Special Rapporteur since the transition period from my first term to my second term (October/November 2020) until the end of the first  semester of 2021 (more exactly mid-June of 2021). This newsletter is a part of a continuous effort undertaken by my team and I, as well as many other stakeholders in the field, to enable  access to human rights related information to persons affected by leprosy and their family members. I encourage you to share this newsletter–and future ones- with people and organizations who might have an interest in this topic.


But first, a word on terminology:  a discussion among persons with the personal experience of leprosy and their representative organizations about  terminology regarding the disease and the people who experience it is ongoing, with some segments of the community preferring the terms "Hansen's disease" and "persons who have experienced Hansen's disease". I deeply  appreciate such a discussion, but as Special Rapporteur it is not up  to me to favor a particular term. Any change in terminology needs to result  from a collective agreement between  people with the personal experience of leprosy/Hansen ́s disease and their representative organizations. While I look forward to receive further guidance from them on  this matter, I will employ in  this first newsletter the terminology used by the Human Rights Council in its resolution 44/6.


Happy reading!

 

Alice

 

PORTUGUÊS

Queridxs amigxs e parceirxs.

A minha equipa e eu estamos muito felizes de partilhar com vocês a primeira edição do boletim de notícias do meu mandato.

Desejo a todxs uma boa leitura!

Alice

 

ESPAÑOL

Estimados amigxs y compañerxs,

Mi equipo y yo estamos muy contentos de compartir con ustedes la primera edición del boletín de mi mandato.

¡Les deseo a todxs una feliz lectura!

Alice

 

FRANÇAIS

Chers amis et partenaires,

Mon équipe et moi sommes très heureux de partager avec vous la première édition du bulletin de mon mandat. Souhaite à tous une bonne lecture!

Alice

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

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