Ref.: (LML) Disease Management, Disability and Inclusion Data Survey

 

 

 

Leprosy Mailing List – June 1,  2021 

  

Ref.:  (LML) Disease Management, Disability and Inclusion Data Survey

From:  Melissa Edmiston, Greenville, USA 

 

Dear Pieter, 

 

American Leprosy Missions (ALM) is conducting an LRI-funded study to assess electronic data collection tools, pathways and possible health management information system (HMIS) integration for leprosy and lymphatic filariasis (LF) data related to disease management or morbidity data. 

 

Would it be possible for LML to help disseminate the survey link for us? We are hoping to have responses back by June 30th.  

 

If your organization is using a digital tool (tablet, software, app etc.) to collect data for LF or leprosy patient care, would you mind participating in the survey found at this link?  

 

This will help the survey team understand what tools exist, what indicators are collected and user experience. Disease management or morbidity data may include tracking patient visits, level of disability or morbidity, follow-up, treatments etc.  

 

We do ask that respondents provide their name and email for follow-up questions as needed, however you have the option to remain anonymous. 

  

To those who participate in the survey, ALM will gladly share findings and lessons learned. For questions, please email Melissa Edmiston at medmiston@leprosy.org. 

 

 

Melissa Edmiston 

Director of Data and Analytics  

 

American Leprosy Missions  | The AIM Initiative 

One ALM Way, Greenville, South Carolina 29601 

Direct: 318.294.1291 | Toll-Free: 800.543.3135 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder 

LML blog link: http://leprosymailinglist.blogspot.it/ 

Contact: Dr Pieter Schreuder << editorlml@gmail.com