Leprosy Mailing List – October 6, 2022
Ref.: (LML) Infolep monthly overview of new publications on leprosy, October 2022
From: Marente Mol en Roos Geutjes, Amsterdam, the Netherlands
Dear colleagues,
Our sincere apologies for the delay in sharing the Infolep newsletter with you. As mentioned in the August newsletter, Anniek Akerboom has left her role as the Coordinator of Infolep. We are pleased to announce that Roos Geutjes will be the new focal point for Infolep (in addition to InfoNTD), and we welcome Marente Mol who has joined Infolep & InfoNTD in a supporting role. We hope that you will enjoy reading this month's overview. Please feel free to contact us should you have any questions, suggestions, or wish to disseminate information or updates via the Infolep platform.
From the 13th to the 15th of September, the annual NTD NGO Network (NNN) conference took place in Kathmandu, Nepal. NTD professionals from around the globe connected in-person and/or virtually to share updates and lessons learned, and attended workshops to discuss the way forward in beating NTDs. We thank the NNN for organizing an amazing event. Many interesting, thought-provoking presentations and workshops were held that led to interesting discussions. Follow the @NNN to stay up to date!
In one month, the 21st International Leprosy Congress (ILC) is taking place in Hyderabad, India. Have you already registered and claimed your (virtual or physical) spot?
Are you involved with leprosy-related work in a Portuguese-speaking country? Attend the First Luspohone Forum to Fight Leprosy on the 5th and 6th of October!
More information about these and other upcoming leprosy-related events can be found at the bottom of this newsletter.
Check out the latest edition of Leprosy Review for interesting new papers on leprosy! This issue includes an editorial by Tucker and colleagues, in which they advocate for greater transparency in leprosy research funding. In case you are interested in this topic, the Leprosy Research Initiative and Global Partnership for Zero Leprosy are hosting a plenary session on this at this year's ILC.
The WHO has published the latest epidemiological data on leprosy in the Global leprosy update for 2021: moving towards interruption of transmission.
Enjoy reading these and other latest publications on leprosy that are listed below. Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal.
\Warm regards,
Marente Mol & Roos Geutjes
www.leprosy-information.org
info@infolep.org
Highlighted
Global leprosy (Hansen disease) update, 2021: moving towards interruption of transmission
World Health Organization . Weekly epidemiological record. 2022; 97 (36) : 429-452.
Improving funding transparency to advance leprosy research
Tucker A, Cassard C, Scollard D. Leprosy Review. Lepra. 2022; 93 (3) : 288-289.
Social stigma and mental health impairment in people with leprosy: An integrative review
Costa RMPG, Fernandes MA, Santos GPG, et al. Leprosy Review. Lepra. 2022; 93 (3) : 254-264.
Wound and Lymphoedema Management 2nd Edition: Focus on Resource-limited Settings
Keast DH. World Alliance for Wound and Lymphedema Care. 2022.
The "Wound-QoL": A short questionnaire measuring quality of life in patients with chronic wounds based on three established disease-specific instruments
Blome C, Baade K, Sebastian Debus E, et al. Wound Repair and Regeneration. Wiley. 2014; 22 (4) : 504-514.
Leprosy & COVID-19
Health seeking behaviour of leprosy affected patients at a tertiary leprosy hospital during the COVID-19 pandemic
Paul S, D S, R S, et al. Leprosy Review. Lepra. 2022; 93 (3) : 243-253.
New publications
Feel free to contact me to receive full-text versions if these cannot be found through the Infolep portal.
A Comparative Study on the Quality of Life of Leprosy Patients in Kilifi and Kwale Counties in Kenya
Ong'ang'o JR, Matu S, Karugu M, et al. African Journal of Health Sciences. 2022.
Stigma and art therapy with Brazilian leprosy patients
Fernandes MDLG, Souza ARND, Kenedi MDT, et al. Leprosy Review. Lepra. 2022; 93 (3) : 265-287.
Perception of Leprosy Patients towards the Disease in a Tertiary Care Hospital of High Prevalent District in West Bengal, India: A Qualitative Study.
Datta J, Bhattacharya T, Chakraborty S, et al. Indian journal of dermatology. 2022; 67 (2) : 206.
Associations between occupation, leprosy disability and other sociodemographic factors in an endemic area of Brazil Cisneros J, Ferreira JA, de Faria Grossi MA, et al. PLOS Global Public Health. Public Library of Science (PLoS). 2022; 2 (9) : e0000276.
Factors contributing to activity limitations in Leprosy patients in Sitanala Leprosy Village, Indonesia
Pawitri A, Menaldi SL, Marissa M. TURKDERM. Galenos Yayinevi. 2022; 56 (3) : 103-108.
The Stress of Leprosy as a Mediator of the Relationship Between Coping Resources, Coping Strategies, and Psychological Well-Being in Persons Affected by Leprosy. The Structural Equation Models Through a Correlation Study
Listiawan MY, Sigit Prakoeswa CR, Alinda MD, et al. Journal of Multidisciplinary Healthcare. Informa UK Limited. 2022.
Potential drivers of leprosy infection: A case–control study of parasitic coinfection and water, sanitation, and hygiene in North Gondar, Ethiopia
Wasson MK, Whitson C, Miller B, et al. Frontiers in Tropical Diseases. Frontiers Media SA. 2022.
Clinical, epidemiological, and laboratory prognostic factors in patients with leprosy reactions: A 10-year retrospective cohort study
Antunes DE, Santos DF, Lima MIS, et al. Frontiers in Medicine. Frontiers Media SA. 2022.
Leprosy reactions: clinical Pharmacologist perspective with repurposed medications
Thangaraju P, Kumar B A, Velmurugan H, et al. Infectious Disorders - Drug Targets. Bentham Science Publishers Ltd. 2022.
Reversal Reaction in Leprosy Patients: Study on Prevalence, Sociodemographic Characteristics, and Precipitating Factors at a Tertiary Referral Hospital in West Java, Indonesia
Gunawan H, Miliawati R, Hanannisa RF. Althea Medical Journal. International Journal of Integrated Health Sciences (IJIHS). 2022; 9 (1) : 37-42.
Behavior of patients with leprosy in disability prevention through patients' self care: A literature review Hannan M, Notobroto HB, Hidayat S, et al. International journal of health sciences. Universidad Tecnica de Manabi. 2022.
History of Leprosy in India: An overview of historic and modern contributions
Sil A, Das A. Clinics in Dermatology. Elsevier BV. 2022.
Slit-skin smear for the classification of leprosy; are we wasting time and resource?
Demsiss W, van Henten S, Takarinda K, et al. Journal of infection in developing countries. 2022; 16 (8.1) : 3S-7S.
Correlation Between Bacterial Index and Grade of Disability Amongst Leprosy Patients : A Single Center Retrospetive Study
Hartanto F, Thendria T, Agusni R, et al. Journal of Pakistan Association of Dermatologists. 2022.
Profile of Disability in Leprosy Patients: A Retrospective Study
Geani S, Rahmadewi R, Astindari A, et al. Berkala Ilmu Kesehatan Kulit dan Kelamin. Universitas Airlangga. 2022; 34 (2): 109-113.
Less is more: Developing an approach for assessing clustering at the lower administrative boundaries that increases the yield of active screening for leprosy in Bihar, India
Ortuño-Gutiérrez N, Shih P, Wagh A, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2022; 16 (9) : e0010764.
Description of strategy used to redirect practices in primary care, integrating Leprosy and Tuberculosis actions - Pernambuco, Brazil
da Silva JAM, Medeiros ADR, Da Silva BM, et al. Brazilian Journal of Health Review. South Florida Publishing LLC. 2022; 5 (4) : 14531-14547.
A hospital-based cross-sectional study of clinico-epidemiological aspects of childhood leprosy with disability in the post-elimination era
Joy N, Patnaik S, Nayak S, et al. Leprosy Review. Lepra. 2022; 93 (3) : 224-234.
Delayed detection of leprosy cases: A systematic review of healthcare-related factors
Dharmawan Y, Fuady A, Korfage IJ, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2022; 16 (9) : e0010756.
Prolonged delays in leprosy case detection in a leprosy hot spot setting in Eastern Ethiopia
Urgesa K, de Bruijne N, Bobosha K, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2022; 16 (9) : e0010695.
Leprosy indicators and diagnosis delay in Mogovolas, Meconta and Murrupula district of Nampula Province, Mozambique: A baseline survey
Marega A, Hambridge T, Stakteas YP, et al. Leprosy Review. Lepra. 2022; 93 (3) : 197-208.
Epidemiological trends of leprosy and case detection delay in East Hararghe Zone, Ethiopia: A baseline survey
Mamo E, Bobosha K, Legesse M, et al. Leprosy Review. Lepra. 2022; 93 (3) : 184-196.
Leprosy epidemiological trends and diagnosis delay in three districts of Tanzania: A baseline study
Mwageni N, Kamara D, Kisonga R, et al. Leprosy Review. Lepra. 2022; 93 (3) : 209-223.
Contributing Factors to the Resurgence of Leprosy Cases in Timor-Leste
Martins N, Gusmao C, Viegas O, et al. Journal of Basic and Applied Research International. IJSBAR. 2022.
Social Determinants and Leprosy in High Endemic Regions of Myanmar: an Ecological Study between 2016 and 2019
Bo SH, Suphanchaimat R. Outbreak, Surveillance, Investigation & Response (OSIR) Journal. 2022; 15 (3) : 76-83.
PEP4LEP research and its contribution to capacity building
Mieras L. Leprosy Review. Lepra. 2022; 93 (3) : 180-183.
Factors associated with the development of leprosy in Brazilian contacts: a systematic review
Alecrin ESD, Oliveira ALGD, Guimarães NS, et al. Revista do Instituto de Medicina Tropical de São Paulo. FapUNIFESP (SciELO). 2022.
Global prevalence of resistance to rifampicin in Mycobacterium leprae: A meta-analysis
Wang C, Wu Z, Jiang H, et al. Journal of Global Antimicrobial Resistance. Elsevier BV. 2022.
Cuidados farmacêuticos ao paciente com Hanseníase: uma revisão integrativa de literatura
Ribeiro JDS, Diniz RDJS, Sousa JCDS, et al. Brazilian Journal of Development. South Florida Publishing LLC. 2022.
O impacto dos estigmas sociais e das vulnerabilidades em saúde na vida das pessoas com hanseníase
Santos LDS, Oliveira JMD, Silva FNSBD, et al. Research, Society and Development. Research, Society and Development. 2022; 11 (12) : e584111234908.
News & Events
Participate in the First Lusophone Forum to Fight Leprosy!
5-6 October, 2022
The First Lusophone Forum to Fight Leprosy is creating a platform for international cooperation of member citizens of Lusophone countries in the fight against Hansen's disease/leprosy. The upcoming online forum is free, and will bring together a diverse group of stakeholders involved with leprosy in Portuguese-speaking countries.
Take a look at the agenda and the poster of the webinar! Do you need more information? Send an email to lusohansen.follch@gmail.com.
Link to the Webinar (Zoom)
Meeting ID: 838 7678 4588; Password: luso123
Connecting Citizens to Science podcast | LSTM
In the Connecting Citizens to Science podcast, Dr. Kim Ozano and Bea Egid interview expert researchers from across the globe who engage with communities in their research. In the 8th series titled "Responding to the mental wellbeing of people affected by chronic health conditions - Acting for change", they launched some interesting episodes focusing on mental health and NTDs.
Call for Proposals: Joint WHO African Region/TDR Impact Grants for Regional Priorities
The WHO African Region and TDR are seeking proposals for public health-oriented implementation research in the African Region. Study topics may include implementation research related to health systems strengthening, complex public health issues or One Health and emerging diseases. The application deadline is 26 October 2022.
2nd Global Forum of People's Organizations on Hansen's disease
6-8 November, 2022
Preceding the ILC in Hyderabad, Sasakawa Health Foundation is organizing the Second Global Forum of People's Organizations on Hansen's Disease. During this event, they will explore what challenges persons affected by leprosy face and the vision of the future they wish to create moving into the post-COVID era.
21st International Leprosy Congress
8-11 November, 2022
This year's ILC is taking place in Hyderabad, India, in a hybrid format. Key stakeholders in the field of leprosy will be brought together to discuss on various topics related to the theme 'Better Knowledge—Early Diagnosis—Improved Care'.
The 20th International Congress for Tropical Medicine and Malaria (ICTMM)
On 24-28 October, the ICTMM will be held in Bangkok, Thailand. During this event, researchers, experts, policy-makers and international authorities from the field of tropical medicine will come together to share expertise and experience. The scientific program covers a wide variety of topics, including neglected diseases, malaria, parasitic infections, bacterial diseases, COVID-19, and other public-health issues.
Links
Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
ALLF - Official website of the Association des Léprologues de Langue Française
LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)
WHO Goodwill Ambassador's Leprosy Bulletin
Leprosy Review Repository (1928-2001)
Fontilles Revista de Leprología
GDPR & the Infolep newsletter
New EU data protection regulations came into force on 25 May 2018. We have been reviewing our practices with regards to the GDPR, including our privacy statement and mailing list.
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