Leprosy Mailing List – January 9, 2024
Ref.: (LML) Infolep monthly overview of new publications on leprosy. January, 2024
From: Roos Geutjes & Josephine Breman-Srivastava, Amsterdam, the Netherlands
At the end of the month, there are two important days. On the 28th of January, we are celebrating World Leprosy Day (WLD). This year's theme is "Ending Stigma, Embracing Dignity". This theme reminds us to continuously work towards eradicating the stigma associated with leprosy and to promote the dignity of people affected by leprosy. On the 30th of January, we are celebrating World Neglected Tropical Diseases (NTD) Day (WNTDD: Unite. Act. Eliminate). This day is a reminder that it is our responsibility to collectively confront inequalities and put an end to diseases that are preventable. We look forward to meeting you on social media platforms during these days. Let's make some noise together!
This Newsletter has an extensive and interesting list of new publications due to the new issue of Leprosy Review and the Issue Supplement 3 of International Health which focuses on Mental Health, Stigma, and Neglected Tropical Diseases. There is also a special section with a request from an ILEP Working Group for Information, Education, and Communication (IEC). Additionally, you can find interesting upcoming events; such as an ILEP workshop; and some funding opportunities in the News and Events section.
Warm regards,
Roos Geutjes & Josephine Breman-Srivastava
www.infolep.org
info@infolep.org
Practical Materials
Pocket Information Card: Skin screening & SDR-PEP (Pocket guide)
NLR . 2024.
PLOS - Writing Center (Database)
PLOS . n.d.
Inclusive Communication Guide for International Cooperation (Guidelines)
Partos . 2023.
Proposal and Grant Applications (Course Self-taught)
Johns Hopkins University and Management Sciences for Health . Resource Mobilization Implementation Kit. 2016.
ILEP Working Group request
A working group from ILEP is trying to understand gaps in existing Information, Education, and Communication (IEC) resources regarding leprosy. Therefore they are conducting an inventory of materials already available. We kindly ask for your support in sharing IEC materials on the following topics:
- IEC materials that explain the societal benefits of early screening (e.g.: reduced disease burden and morbidity; better quality of life, etc).
- IEC resources that can convince non-formal medical practitioners to refer suspected cases.
- Videos on stories of change with persons cured of leprosy talking about their journey
- IEC resources that can normalise disability and compel people to look beyond it.
- IEC resources that explain the use of MDT and the harm it can cause if the prescribed dosage is not adhered to.
- Resources that can distinguish between leprosy reactions and side-effects of MDT.
If you have any to share, please share them with us via email. We are looking forward to hearing from you!
Highlighted Publications
Steps towards eliminating Hansen's disease stigma
Deps P, Delboni L, Oliveira TIA, et al. International Health. Oxford University Press (OUP). 2023; 15 (Supplement_3) : iii7-iii9.
Impact of basic psychological support on stigma and the mental well-being of people with disabilities due to leprosy and lymphatic filariasis: a postintervention evaluation study
Mol MM, Miedema JM, van Wijk R, et al. International Health. Oxford University Press (OUP). 2023; 15 (Supplement_3) : iii70-iii78.
Integration of services for Neglected Tropical Diseases and mental health in Nigeria: development of a practical model informed by international recommendations, contextual factors and service-user perspectives
Eaton J, Afolaranmi T, Tsaku P, et al. International Health. Oxford University Press (OUP). 2023; 15 (Supplement_3) : iii47-iii58.
Money matters: Priorities in leprosy research funding
Scollard D, Trienekens SCM, Tucker A, et al. Leprosy Review. Lepra. 2023; 94 (4) : 364-368.
Elimination of leprosy redefined as "interruption of transmission" – still many challenges
Fine P. Leprosy Review. Lepra. 2023; 94 (4) : 258-261.
New publications
Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal.
A retrospective analysis of leprosy relapse patients after treatment with WHO-MDT at a tertiary institute in South India
Gupta NM, Gupta D, Nath B, et al. Leprosy Review. Lepra. 2023; 94 (4) : 309-316.
Building the resilience of leprosy-affected people: lessons from Bangladesh
Karim MM, Barua R, George S, et al. Leprosy Review. Lepra. 2023; 94 (4) : 369-371.
Why we need to continue to target field workers and healthcare providers at the primary level to prevent visual loss in leprosy
Anand S. Leprosy Review. Lepra. 2023; 94 (4) : 372-374.
Pure neuritic leprosy and Buerger's disease: Not a cause -- maybe an association?
Narang T, Dogra S, Kumar B. Leprosy Review. Lepra. 2023; 94 (4) : 375-377.
Integrated services for neglected tropical diseases and mental health: pilot study assessing acceptability, feasibility and attitudes in Benue State, Nigeria
Obindo T, Eaton J, Tsaku P, et al. International Health. Oxford University Press (OUP). 2023; 15 (Supplement_3) : iii37-iii46.
Mental health, stigma and the quality of life of people affected by neglected tropical diseases of the skin in Kasai Province, Democratic Republic of the Congo: a sex-disaggregated analysis
Seekles ML, Kadima JK, Ding Y, et al. International Health. Oxford University Press (OUP). 2023; 15 (Supplement_3) : iii28-iii36.
Prevalence of oral manifestations of leprosy: a systematic review and meta-analysis
Mezaiko E, Silva LR, Prudente TP, et al. Oral Surgery, Oral Medicine, Oral Pathology and Oral Radiology. Elsevier BV. 2023.
Clinicoepidemiologic profile of leprosy in geriatric population in post-elimination era: A retrospective, hospital-based, cross-sectional study from Eastern India
Pradhan S, Shahid R, Singh S. Journal of Family Medicine and Primary Care. Medknow. 2023; 12 (11) : 2780-2785.
Comparison of antiphenolic glycolipid-1 antibody levels in seropositive contacts of leprosy after 2 years of single-dose rifampicin as postexposure prophylaxis.
Fantoni O, Rusmawardiana R, Yahya Y, et al. International journal of mycobacteriology. 2023; 12 (4) : 399-406.
Bioinformatic approach for repurposing immunomodulatory drugs for lepromatous leprosy.
Espitia G, Arenas N, Gutiérrez-Castañeda L, et al. International journal of mycobacteriology. 2023; 12 (4) : 388-393.
Mycobacterium leprae is able to infect adipocytes, inducing lipolysis and modulating the immune response.
Reis S, Gonçalves J, Lima K, et al. Microbes and infection. 2023.
Novel mutations found in Mycobacterium leprae DNA repair gene nth from central India.
Sharma M, Dwivedi P, Joshi V, et al. Journal of infection and chemotherapy : official journal of the Japan Society of Chemotherapy. 2023.
Endemic Foci of Leprosy in Namangan Region (Retrospective Analysis)
Shokolonova N. M. International Multidisciplinary Journal for Research & Development. 2023; 10 (11) : 57-60.
Quality of Life Among People with Leprosy-Related Disability In Tamil Nadu: A Cross-Sectional Study
Sasithra S , Raja D . National Journal of Community Medicine. Medsci Publications. 2023; 14 (12) : 807-813.
Artificial Intelligence on Diagnostic Aid of Leprosy: A Systematic Literature Review
Fernandes JRN, Teles AS, Fernandes TRS, et al. Journal of Clinical Medicine. MDPI AG. 2023.
Cytokines profile in pure neural leprosy.
Pitta I, Angst D, Pinheiro R, et al. Frontiers in immunology. 2023.
Application of a physiotherapeutic protocol associated with photobiomodulation for the treatment of leprosy patients.
Duarte V, Bonazza D, Lino-Dos-Santos-Franco A, et al. Lasers in medical science. 2023; 39 (1) : 12.
Xenophagy as a Strategy for Elimination during Type 1 or Type 2 Leprosy Reactions: A Systematic Review.
Cerqueira D, Pereira A, da Costa A, et al. Pathogens (Basel, Switzerland). 2023; 12 (12) : 1-14.
Historical account of clinical observations on leprosy and related manifestations in the Comacchio area, Italy, in the XIX century.
Vicentini C, Contini C. Le infezioni in medicina. 2023; 31 (4) : 591-599.
(MIP) Vaccine: Pharmacology, Indication, Dosing Schedules, Administration, and Side Effects in Clinical Practice.
Dogra S, Jain S, Sharma A, et al. Indian dermatology online journal. 2023; 14 (6) : 753-761.
Genogramas em comunidades afetadas pela hanseníase: explorando aspectos sociais e fatores de risco em Limeira de Mantena - MG
Souza T. D. de M., de Oliveira L. B. P, Velloso-Rodrigues C, et al. Revista Científica FACS. 2023; 23 (2) : 10-24.
A Face Sociocultural Da Haneníase: Uma narrativa geo-histórica e cinematográfica
Santos DO, Lacerda CMSD. Stricto Sensu Editora. 2023.
Aspectos nutricionais relacionados às pessoas com hanseníase: revisão integrativa
Martins F. A. R, Barros L. F, Galiza F. T. de, et al. Facit Business and Technology Journal. 2023; 1 (47) : 1-15.
Intervención Farmacéutica Educativa en pacientes que finalizaron el tratamiento contra la lepra
Aguilera M, Samaniego Silva LR, Samudio M. Pharmaceutical Care España. Fundación Pharmaceutical Care España. 2023; 25 (6) : 15-31.
Hanseníase e agenda internacional sobre reabilitação e acessibilidade para pessoas com deficiência
Peruzzo P. P, Gonçalves N. I. G, Silva L. V. C. da. Revista Eletronica do Curso de Direito. 2023.
Estratégias de autocuidado em hanseníase adotadas pelos profissionais da equipe multiprofissional de saúde
Sousa TEP, Aragão JMN, Brito NDN. Revista da Faculdade Paulo Picanço. Faculdade Paulo Picanço. 2023; 3 (4) : 1-22.
Ciento cincuenta años del descubrimiento del bacilo de Hansen. Una mirada al pasado y una reflexión bioética
Sarmiento L. M. M. Revista Medecina. 2023; 45 (3) : 576-588.
WHO Global leprosy (Hansen's disease) update, 2022: New paradigm – control to elimination
Saunderson P. Leprosy Review. Lepra. 2023; 94 (4) : 262-263.
Mapping leprosy in Ethiopia: Capture and analysis of district and health facility data to identify and map high leprosy burden districts
Fekadu L, Lambert SM, Kebede T, et al. Leprosy Review. Lepra. 2023; 94 (4) : 264-275.
Spatial analysis reveals failures in leprosy control activities in a hyperendemic city in Brazil
Franca J, Aires C, Nobre M, et al. Leprosy Review. Lepra. 2023; 94 (4) : 276-285.
Effect of hope, spirituality and social support on quality of life among people affected by leprosy in Indonesia: A cross-sectional study
Nugraheni R, Murti B, Irwanto ME, et al. Leprosy Review. Lepra. 2023; 94 (4) : 332-340.
Leprosy capacity in health facilities and among health workers: A baseline survey in Nigeria
Dahiru T, Abdullahi SH, van Knippenberg K, et al. Leprosy Review. Lepra. 2023; 94 (4) : 317-331.
Knowledge and perception of leprosy amongst high school students in Italy: A survey
Fiorin E, Cristiani E, Roberts C. Leprosy Review. Lepra. 2023; 94 (4) : 341-349.
Evaluation of skin temperature in the hands of leprosy patients to detect peripheral autonomic dysfunction, by infrared thermography
Sabino EFP, Fernandes dos Santos D, Eulálio Antues D, et al. Leprosy Review. Lepra. 2023; 94 (4) : 299-308.
Leprosy in Sri Lanka: Epidemiological trends between 1985–2021
Wijesinghe MSD, Prasad Ranaweera KDN, Fine P. Leprosy Review. Lepra. 2023; 94 (4) : 286-298.
Stigma, depression and quality of life among people affected by neglected tropical diseases in Nepal.
Thapa D, Dahal H, Chaulagain D, et al. International health. 2023; 15 (Supplement_3) : iii79-iii86.
Impact of basic psychological support on stigma and mental well-being of people with disabilities due to leprosy and lymphatic filariasis: a proof-of-concept study.
Agarwal A, Nayak P, van Brakel W, et al. International health. 2023; 15 (Supplement_3) : iii59-iii69.
Mental health and neglected tropical diseases – the neglected dimension of burden: identifying the challenges and understanding the burden
Molyneux DH. International Health. Oxford University Press (OUP). 2023; 15 (Supplement_3) : iii3-iii6.
Risk factors for increasing leprosy treatment dropout cases reported in specific areas in Tangerang District
Kunarisasi S, Puspaningtias J, Segeir F. Bali Medical Journal. 2024; 13 (1) : 216-222.
A Cytokine Response in Leprosy: Literature Review
Ismawatie E, Azizah I. H, Maulani Y. International Innovation Technology Expo Proceedings. 2023; 1 (1) : 121-129.
Dapsone determination in tablets to leprosy treatment using a portable NIR spectrometer
Santos JDS, Diniz PHGD, Soares Sobrinho JL, et al. Journal of Molecular Structure. Elsevier BV. 2024.
Colonial Medicine and Leprosy in Uganda
Jenga F. Islands of Extreme Exclusion. BRILL. 2023.
Risk factors of leprosy in daha husada general hospital, Kediri City
Alim S, Umbul Wahyuni C, Indriani D. Jurnal Berkala Epidemiologi. Universitas Airlangga. 2023; 11 (1) : 68-75.
A Case Series of Histoid Leprosy with a Brief Comparison of the Clinical Features with that of Lepromatous Leprosy
Nair S. P, Nair B A. Indian Journal of Leprosy. Hind Kusht Nivaran Sangh. 2023; 95 (2) : 131-137.
Diagnosis and Treatment of Leprosy in Taiwan during the COVID-19 Pandemic: A Retrospective Study in a Tertiaty Center.
Hsieh C, Hsiao P. Diagnostics (Basel, Switzerland). 2023; 13 (24) : 1-12.
Immunopathogenesis of Type 1 and Type 2 Leprosy Reaction: An Update Review.
Dewi D, Djatmiko C, Rachmawati I, et al. Cureus. 2023; 15 (11) : 1-14.
Research progress in the off-target effects of Bacille Calmette-Guérin vaccine.
Wu Y, Zhang X, Zhou L, et al. Chinese medical journal. 2023.
Simulation-based training in Leprosy: development and validation of a scenario for community health workers.
Souza R, Moreira J, Dias A, et al. Revista brasileira de enfermagem. 2023; 76Suppl 2 (Suppl 2) : e20230114.
Augusto Bonome and his revolutionary studies on leprosy in the early 20th century.
Valle F, Magno G, Zanatta A. Journal of the European Academy of Dermatology and Venereology : JEADV. 2023.
Prevenção, diagnostico, precoce e notificação de casos da hanseníase no brasil, no período de 2020 a 2022
Jesus TMD, Santos FPD. Revista Ibero-Americana de Humanidades, Ciências e Educação. Revista Ibero-Americana de Humanidades, Ciencias e Educacao. 2023; 9 (10) : 4523-4538.
Perfil epidemiológico da hanseníase após a pandemia da covid-19
Paula EPL, De Carvalho HM, Ornellas BDC. Revista Contemporânea. South Florida Publishing LLC. 2023; 3 (11) : 23630-23652.
Percepção dos pacientes sobre a busca pelo diagnóstico da hanseníase e o atendimento nas Redes de Atenção à Saúde
Sousa JDN, Costa REARD, Leal SRMDD, et al. Hansenologia Internationalis: hanseníase e outras doenças infecciosas. Instituto Lauro de Souza Lima. 2023.
O processo de trabalho no autocuidado a pessoa com hanseníase: revisão integrativa da literatura
Cruz JR, De Oliveira WL, Yamin Filho MAC, et al. CONTRIBUCIONES A LAS CIENCIAS SOCIALES. South Florida Publishing LLC. 2023; 16 (11) : 27591-27610.
Prevención de las discapacidades por lepra en la formación de los profesionales del primer nivel de atención
Martinéz T. A, Alemán D. M. H, Pacheco J. A. C. Folia Dermatológica Cubana. 2023; 17 (2) : 1-11.
Peningkatan keterampilan tenaga kesehatan dalam upaya pencegahan cacat pasien kusta di puskesmas pasar ambon, kota bandar lampung
Sibero H. T, Anggraini D. I, Rahmayani F, et al. Jurnal Pengabdian Masyarakat. 2023; 8 (2) : 112-115.
Case Reports
First case of Lucio's phenomenon in a lepromatous leprosy patient following COVID-19 viral vector vaccine.
Soares-Neto R, da Piedade G, Pereira P, et al. EXCLI journal. 2023.
A case of lepromatous leprosy in Arizona, United States.
Robbins K, Luna-Wong L, Adams M, et al. JAAD case reports. 2024.
Trans-epidermal elimination of lepra bacilli in histoid leprosy with ulceration: An uncommon presentation
Monalisa K, Sahoo B, Antakanavar GM. Leprosy Review. Lepra. 2023; 94 (4) : 378-381.
A rare case of severe Bullous Erythema Nodosum Leprosum in histoid leprosy
Mannu A, Krishnan L, Vasudevan B, et al. Leprosy Review. Lepra. 2023; 94 (4) : 358-363.
Histoid Leprosy with Localised Facial Lesions: A Unique Presentation
Sindu R. S, Chittarvu K, Cheedirala R. M, et al. Indian Dermatology Online Journal. 2023.
Lepra Reactions: Mimickers and Mirror to Unmask Complex Cases of Leprosy
Kumari S, Verma G. K, Negi A. K, et al. Indian Dermatology Online Journal. 2023.
Morbus Hansen (Kusta)
Idris F, Mellaratna WP. GALENICAL : Jurnal Kedokteran dan Kesehatan Mahasiswa Malikussaleh. LPPM Universitas Malikussaleh. 2023; 2 (6) : 11-23.
An uncommon manifestation of a not-so-common disease: A Sweet dilemma
Fernandes MS, Bhat M. R, Sukumar D, et al. Leprosy Review. Lepra. 2023; 94 (4) : 350-353.
Dapsone induced drug reaction with eosinophilia and systemic symptoms (DRESS) syndrome, sparing leprosy patches as an 'anatopic' response: A case report
Hegde P, Reddy S, Pai K, et al. Leprosy Review. Lepra. 2023; 94 (4) : 354-357.
Chronic type 2 reaction in lepromatous leprosy with underlying plasmodium falciparum infection: A case report
Sagar HK, Pawar HS. Tropical Doctor. SAGE Publications. 2023.
Ulnar nerve mononeuropathy in a patient with Hansen's disease: Clinical and radiological features.
Cuesta J, Rodríguez L, Perdomo L, et al. The neuroradiology journal. 2023.
Co-infection of Mycobacterium tuberculosis and Mycobacterium leprae Complicated by pulmonary embolism: A rare case report
Ruthramoorthy P, Jose J, Revendran J, et al. International journal of mycobacteriology. 2023; 12 (4) : 513-515.
Half a Century in Hiding: A Unique Case of Tuberculoid Leprosy with an Unprecedented Incubation Period
Rajani A. J, Raval D. M, Chitale R. A, et al. American Journal of Case Reports. 2024.
Identificação de um paciente com hanseníase multibacilar por meio do teste sorológico (LID) em ações de busca ativa
Leite HM, Pinheiro MDS, Santos DCMD, et al. Hansenologia Internationalis: hanseníase e outras doenças infecciosas. Instituto Lauro de Souza Lima. 2023.
News & Events
ISNTD Kamran Rafiq Science Communication Internship
The International Society for Neglected Tropical Diseases (ISNTD) has launched its first ever ISNTD Kamran Rafiq Science Communication Internship! Aimed at those aged 18-30, this online internship aims to engage the global youth in the dynamic, multi-faceted and fascinating fields of tropical and infectious diseases, whilst providing an opportunity to discover and develop science communication tools and skills. The application deadline is January 11th, 2024.
The 2024 Entrepreneurs for Resilience Award
Entrepreneurs for Resilience Award invite applications from social entrepreneurs who aim to improve low-income people's access to quality primary healthcare in LMICs by offering a hybrid delivery model that combines a physical point of care and supportive digital tools. The application deadline is 23rd of January, 2024.
RESILIENTD call for proposals – Budget round 2025
In collaboration with the Anesvad Foundation, the Leprosy Research Initiative (LRI) is inviting research proposals on the social determinants of health in the context of skin neglected tropical diseases (NTDs) including leprosy, with a focus on Sub-Saharan Africa. Deadline for submitting Letter of Intent is January 26, 2024 at 23:59 (CET).
'Ending Stigma, Embracing Dignity' RSTMH Webinar
February 2, 2024; 13:00-14:00 GMT; Online.
The RSTMH will be hosting a webinar in honour of World Leprosy Day (28 January). This webinar will focus on the theme of the day: Ending Stigma, Embracing Dignity. This webinar will feature a panel discussion from leading experts in the field of leprosy, chaired by Professor Saba Lambert, Leprosy Clinician at ALERT Hospital, Ethiopia, and Clinical Research Fellow at the London School of Hygiene and Tropical Medicine (LSHTM).
TropicalMed 2023 Best PhD Thesis Award
TropicalMed is inviting applications for the TropicalMed 2023 Best PhD Thesis Award. The prize will be awarded to a PhD student or recently qualified PhD who produced a highly anticipated thesis with great academic potential. Application deadline is the 31 January 2024.
TropicalMed 2023 Young Investigator Award
TropicalMed is inviting nominations for the TropicalMed 2023 Young Investigator Award. The prize will be given to one young investigator in recognition of their excellence in the field of tropical medicine and infectious disease.
The nomination deadline is the 31st of January, 2024.
ILEP Workshop - Empowering Sustainable Organizations representing persons affected by leprosy
January 17, 2024; 13:00-15:00 CET; Online.
The ILEP Secretariat is organising a workshop to discuss the role of ILEP and ILEP members in empowering sustainable organisations representing persons affected by leprosy. Full details, including the context, objectives, and agenda, are available in English, French, and Portuguese. In case you are interested in participating, kindly register through this link by Friday 12 January.
World Skin Health Day | Guinea 2024
January 27-31, 2024; Guinea.
For its fourth edition, the World Skin Health Day is celebrated in Guinea. The Congress is organized by the International League of Dermatological Societies (ILDS) and the International Society of Dermatology. In collaboration with WHO, the day of January 30 is entirely dedicated to NTDs, as the date coincides with the World NTD Day.
LRI Regular call for proposals – Budget round 2025
The Leprosy Research Initiative (LRI) has announced its annual call for proposals for funding commencing in 2024. LRI funds research with a focus on leprosy – including research applications combining leprosy with other neglected tropical diseases (NTDs) or other diseases or disabilities that share cross-cutting issues with leprosy. Deadline for submitting Letter of Intent is January 26, 2024 at 23:59 (CET).
Sasakawa Health Foundation: Call for Grant Proposals for Hansen's Disease
The Sasakawa Health Foundation has opened a call for grant proposals that focus on one or all of three areas: tackling disease, fighting discrimination, and preserving history. The application period for projects starting in September 2024 is March 11 - April 12, 2024.
The Health for All Film Festival
The 5th Health for ALL Film Festival calls for submissions from 1st of November 2023 to the 31st of January 2024. Public institutions, NGO's, communities, activists and students in public health, film schools, and other relevant domains are invited to submit their short films. The main categories are: Universal Health Coverage, Health Emergencies, and Better Health and Well-being.
8th Health Systems Global Symposium on Health Systems Research
November 18-22, 2024, Japan.
The 8th Global Symposium on Health Systems Research will be held in Nagasaki, Japan in 2024. The theme of the Symposium is "Building Just and Sustainable Health Systems: Centring People and Protecting the Planet".
Links
Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
ALLF - Official website of the Association des Léprologues de Langue Française
LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)
WHO Goodwill Ambassador's Leprosy Bulletin
Leprosy Review Repository (1928-2001)
Fontilles Revista de Leprología
HARP - database of Hansen's Disease Antimicrobial Resistance Profiles
GDPR & the Infolep newsletter
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