Leprosy Mailing List Blog

Tuesday, June 16, 2026

Fw: Ref.: (LML) 62nd session of ONU Human rights Council - Side Event online - Registration

Leprosy Mailing List – June 16, 2026

Ref.: (LML) 62nd session of ONU Human rights Council - Side Event online - Registration

From: Laila de Laguiche, Curitiba, Brazil

____________________________________________________________________________

Dear Pieter,

Thanks a lot for the post.

Could you, please, also post the attachment ? Where it describes the procedure to inscriptions.

Timwee: 10:00 AM to 1:00 PM BRT (Brasília)

Format: Online (Google Meet)

Free participation, prior registration required

Limited places available

Program:

• Prof. Dr. Jaison Barreto – Clinical and laboratory aspects of leprosy

• Prof. Dr. Maurício Nobre – Prophylaxis and Prevention Strategies

• Prof. Dr. Susilene Maria Tonelli Nardi – Rehabilitation and Disability Prevention

This activity is intended for health professionals, researchers, students, public managers, civil society organizations, and others interested in the topic.

Registration:

https://aal.org.br/aulaaalnacplp2026/

We count on your participation and thank you for your support in disseminating this initiative, which seeks to strengthen international cooperation and expand knowledge about leprosy in Portuguese-speaking countries.

____________________________________________________________________________

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << edit...@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion visit https://groups.google.com/d/msgid/leprosymailinglist/f339a966-fc67-4a20-ac21-bd624e955447n%40googlegroups.com.

Fw: Ref.: (LML) 62nd session of ONU Human rights Council - Side Event online

Leprosy Mailing List – June 16, 2026

Ref.: (LML) 62nd session of ONU Human rights Council - Side Event online

From: Laila de Laguiche, Curitiba, Brazil

____________________________________________________________________________

Dear Pieter,

I hope you are doing well.

May I kindly ask for your support in sharing the invitation below through the Leprosy Mailing List? We would be truly grateful if you could help us disseminate this event among our colleagues. The discussion addresses a topic of great importance to our community—the human rights of persons affected by leprosy—and we believe it will be of broad interest to LML members.

Thank you very much for your continued support of the global leprosy community and for everything you do to keep us connected.

With my warmest regards,

Laila

Dear Colleagues,

On behalf of CIOMAL – the Order of Malta's Leprosy Relief Foundation, we are pleased to invite you to attend the side event organized during the 62nd session of the United Nations Human Rights Council:

From Segregation to Justice: Addressing Historical and Continuing Human Rights Violations Against Persons Affected by Leprosy

Date: Wednesday, 17 June 2026
Time: 12:00–13:00 (Geneva time)
Venue: Room III, Palais des Nations, Geneva
Language: English
Format: Hybrid

This event is organized by CIOMAL – the Order of Malta's Leprosy Relief Foundation, in cooperation with the Permanent Missions of Japan, Brazil, Ecuador, Ethiopia, Morocco, Fiji, Kyrgyzstan and India to the United Nations Office at Geneva.

The event is co-sponsored by: Alliance Against Leprosy (AAL), Anesvad Foundation, Franciscans International, ILEP, Raoul Follereau Foundation, Sasakawa Foundation and Zero Leprosy.

The discussion will explore how States, international organizations and persons affected by leprosy can address the legacy and continuing impacts of leprosy-related discrimination through truth, justice, reparations, memorialization and guarantees of non-recurrence. It follows the Special Rapporteur's latest report on this subject and precedes the Interactive Dialogue with the Special Rapporteur before the Human Rights Council.

Programme highlights

Moderator
H.E. Ambassador Marie-Thérèse Pictet-Althann
Permanent Observer of the Sovereign Order of Malta in Geneva

Special Remarks
H.E. Ambassador Atsuyuki Oike
Permanent Representative of Japan to the United Nations in Geneva

Panel Discussion

Ms. Beatriz Miranda-Galarza, UN Special Rapporteur on the Elimination of Discrimination Against Persons Affected by Leprosy (Hansen's disease) and their Family Members
Mr. Bernard Duhaime, UN Special Rapporteur on the Promotion of Truth, Justice, Reparation and Guarantees of Non-Recurrence
Video testimonies from persons affected by leprosy

Closing Remarks
Mr. Bernard de Laguiche
President, CIOMAL – the Order of Malta's Leprosy Relief Foundation

The event will conclude with an interactive Q&A session.

We would be delighted to welcome online.

Webex link:
https://ungeneva-vc.webex.com/ungeneva-vc/j.php?MTID=mc437509f9010f9c3a494c71d463cdd9b

We look forward to your participation.

Kind regards,

CIOMAL – Order of Malta's Leprosy Relief Foundation

Laila de LAGUICHE M.D.

Comité Scientifique et Medical de CIOMAL

laila.delaguiche@ciomal.org

____________________________________________________________________________

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << edit...@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion visit https://groups.google.com/d/msgid/leprosymailinglist/a7301651-adb3-40bc-b283-e88dab914f10n%40googlegroups.com.

Sunday, June 14, 2026

Fw: Ref.: (LML) CPLP Leprosy Webinar – 30 June 2026

Leprosy Mailing List – June 12, 2026

Ref.: (LML) CPLP Leprosy Webinar – 30 June 2026

From: Laila de Laguiche, Brzail

____________________________________________________________________________

Dear Pieter,

I hope you are doing well.

I am writing to kindly ask whether it would be possible to announce, through the Leprosy Mailing List, an online event that will take place on 30 June 2026 and is being organized within the framework of the 30th Anniversary of the Community of Portuguese Language Countries (CPLP).

The Community of Portuguese Language Countries (CPLP), an intergovernmental organization comprising the nine Portuguese-speaking countries, is celebrating its 30th anniversary in 2026.

The event, entitled “Leprosy: Epidemiological Situation, Challenges and Cooperation Strategies in Portuguese-Speaking Countries”, will bring together experts and representatives from several Lusophone countries to discuss the current epidemiological situation, ongoing challenges, and opportunities for technical cooperation in the field of leprosy.

The meeting will be held online and conducted in Portuguese. Although the language may limit participation from some members of the mailing list, I believe the topic may nevertheless be of interest to colleagues involved in international leprosy programmes and cooperation initiatives.

If you consider it appropriate, I would be most grateful if you could share the attached announcement with the mailing list.

Thank you very much for your continued support of the global leprosy community and for considering this request.

With my warm regards,

Dr. Laila de Laguiche
Founder and President
Alliance Against Leprosy (AAL)
Brazil / Switzerland

____________________________________________________________________________

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << edit...@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion visit https://groups.google.com/d/msgid/leprosymailinglist/896f1f31-aac7-4140-ae73-5833d98c928fn%40googlegroups.com.

Tuesday, June 9, 2026

Fw: Ref.: (LML) Infolep monthly overview of new publications on leprosy, May, 2026

Leprosy Mailing List – June 9, 2026

Ref.: (LML) Infolep monthly overview of new publications on leprosy, May, 2026

From: Elizabeth Talatu Williams, Amsterdam, the Netherlands

____________________________________________________________________________

Dear colleagues,

We are pleased to share the May 2026 edition of the Infolep Newsletter, featuring recent publications, case reports, and global updates from the leprosy field.

This month’s featured articles focus on key developments in health systems strengthening, conflict and health, and psychosocial wellbeing. Topics covered include findings from a global survey on strengthening frontline capacity for skin-related neglected tropical diseases, the impact of armed conflict on leprosy in Tigray, Ethiopia, and new research examining psychosocial resilience, social support, stigma, quality of life, and mental health among persons affected by leprosy.

The case reports in this issue reflect the ongoing diagnostic and clinical challenges in leprosy, including atypical clinical presentations, preserved sensation in lepromatous leprosy, neurological manifestations in non-endemic settings, and rare disease presentations that may complicate diagnosis. These reports reflect the importance of clinical awareness, timely diagnosis, and appropriate management.

This edition also includes updates on funding opportunities, including the DermImpact Grant Programme and the EDCTP Prizes 2027, alongside news on national programme developments, stigma reduction initiatives, policy discussions, and advocacy efforts from around the world.

We hope this edition provides useful insights and supports your continued work in advancing leprosy research, care, and inclusion.

Please feel free to contact us if you would like access to full-text versions that are not available on Infolep, or if you would like our support with literature searches.

Warm regards,
Elizabeth Talatu Williams

www.leprosy-information.org
info@infolep.org

Featured Research Spotlight

Strengthening frontline capacity for skin neglected tropical diseases: Findings from a global survey
Anwar S, Freeman E, Geutjes R, et al. PLoS neglected tropical diseases. 2026; 20 (5): 1 - 9.

The impact of armed conflict on leprosy detection, treatment, and disability in Tigray, Ethiopia: a longitudinal comparison across conflict phases (2016–2025)
Demoz K, Hagos S, Meresa D, et al. Leprosy Review. Lepra. 2026; 97 (2): 1 - 11.

Beyond demographics: disease duration and perceived social support as key determinants of psychosocial resilience in leprosy – a cross-sectional study
Chusniyah T, Widasmara D, Yunus M, et al. Leprosy Review. Lepra. 2026; 97 (2): 1 - 13.

Quality of life, stigma, and mental health, in individuals affected by leprosy: a cross-sectional study
Chala TK, Garsleitner ES, Froeschl G, et al. Transactions of The Royal Society of Tropical Medicine and Hygiene. Oxford University Press (OUP). 2026.

Other New Publications

Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal.

Machine learning methods to predict leprosy misdiagnosis in Yunnan Province, People's Republic of China
Guo Y, Yin L, Yang H, et al. Frontiers in Public Health. Frontiers Media SA. 2026.

Serum Neurofilament Light Chain Levels in Leprosy Patients: A Cross-Sectional Study
Khurana A, Sharath S, Subramanian S, et al. Tropical medicine & international health: TM & IH. 2026.

The Sm29 antigen differentially shapes transcriptomic and regulatory landscapes across reactional forms of leprosy
Karoline Silva J, de Farias LN, Lago T, et al. Frontiers in Immunology. Frontiers Media SA. 2026; 17 (1844112): 1 - 13.

Child index cases of leprosy: clarifying the pathway for contact investigation
Selvaraju E. Leprosy Review. Lepra. 2026; 97 (2): 1 - 3.

A qualitative case study on the resilience of leprosy patients facing community stigma in Sikka Regency, Indonesia
Gudipun L, Limbu R, Nayoan C. Psychology, health & medicine. 2026.

Exploring generational differences in the impact of stigma on mental health among people affected by leprosy in rural India: a qualitative study
Fastenau A, van den Bogaert N, Penna S, et al. Scientific Reports. Springer Science and Business Media LLC. 2026.

Role of High-resolution Ultrasonography in the Evaluation of Ulnar Nerve Involvement in Patients with Leprosy
Nikhil K, Patil S, Janagond AB. Annals of African Medicine. Ovid Technologies (Wolters Kluwer Health). 2026.

Mathematical modeling of type II lepra reactions: Cytokine dynamics and the impact of multi drug therapy (MDT) and thalidomide
Ramanjaneyulu C, Vamsi D. Next Research. Elsevier BV. 2026.

Journey of a patient with a reactional episode of leprosy in an endemic area of Brazil
Larissa de Arruda V, Cortela DDCB, Margarida Benevides Ferreira S, et al. Leprosy Review. Lepra. 2026; 97 (2): 1 - 12.

“Reactions in Leprosy: Updated Insights Into Pathophysiology, Clinical Spectrum, and Therapeutic Approaches—A Narrative Review”
Gupta B, Singh M, Goldust M, et al. Health Science Reports. Wiley. 2026; 9 (5): 1 - 14.

The demographic and clinical profile of patients with leprosy reactions at Rizal Medical Center, Philippines, from 2018 to 2022
Acanto IJ, Tablizo A. Hansenologia Internationalis: hanseníase e outras doenças infecciosas. Instituto Lauro de Souza Lima. 2026; 51 (e41671): 1 - 20.

Functional Outcomes of Long Pulse Width Stimulation and Myofascial Release Technique for Post-Leprosy Ulnar Claw Hand Correction: A Randomised Control Trial
Hassan M, Zafar S. International Journal of Drug Delivery Technology. Dr. Yashwant Research Labs Pvt. Ltd. 2026; 16 (44s): 849 - 855.

PHYSICAL DISABILITIES RESULTING FROM LEPROSY IN INDIVIDUALS UNDER 15 YEARS OF AGE IN A HYPERENDEMIC, PALMAS-TOCANTINS, BRAZIL, 2015–2025
Spada AVD, Bertonsin GPO, Souza GARD, et al. Artefactum - revista de estudos interdisciplinares. Editoriales Iberoamericanos. 2026; 25 (2): 1 - 25.

HUMAN RIGHTS AND SOCIAL INCLUSION OF PERSONS AFFECTED BY LEPROSY-RELATED: A GLOBAL LEPROSY STRATEGY 2021–2030
Ahmed Rufai Ahmed. African Journal of Legal Research. 2026; 4 (4): 1 - 23.

Abutilon Indicum Leaf Extract–Loaded Novel Liposomal Formulation for Anti-Leprosy Activity
Sanika Sawant, Ananya Sangar, Rohini Patil. INTERNATIONAL JOURNAL OF PHARMACEUTICAL SCIENCES. 2026; 5 (5): 5384 - 5394.

Case Reports

Dual arthropathy in previously treated multibacillary leprosy: Inflammatory polyarthritis with neuropathic ankle destruction in an endemic setting
Rai S, Uppal H, Awale R, et al. Tropical Doctor. SAGE Publications. 2026.

Lepromatous Leprosy Presenting With Preserved Sensation: A Case Report
Shiyanbola AC, Emezie PC, Saheed O, et al. Cureus. Springer Science and Business Media LLC. 2026; 18 (5): 1 - 12.

Paresthesia as an Initial Presentation of Hansen’s Disease in a Non-endemic Setting
Reddy K. Cureus. Springer Science and Business Media LLC. 2026; 18 (5): 1 - 8.

Lepromatous Leprosy Mimicking Sarcoidosis With Elevated Serum ACE Levels: A Deceptive Granulomatous Presentation
Prashanth G, T D. Cureus. Springer Science and Business Media LLC. 2026; 18 (5): 1 - 7.

Scrotal Lepromatous Leprosy
Vendhan S, Neema S, Battula S. Indian Dermatology Online Journal. Ovid Technologies (Wolters Kluwer Health). 2026.

Fw: Ref.: (LML) Making a thousand Maltas bloom

Leprosy Mailing List – June 9, 2026

Ref.: (LML) Making a thousand Maltas bloom

From: Joel Almeida, Mumbai, India

____________________________________________________________________________

Dear Pieter and colleagues,

Many people in endemic areas have relatively low incomes and some have only few years of schooling. How best to protect their safety?

If we eliminate concentrated viable bacilli from human populations, cluster by cluster, it will benefit everyone. We need to identify all high-shedding cryptic LL cases among asymptomatic contacts in a village or cluster (workplace, marketplace, etc) using non-invasive methods (eg nasal swabs for semi-quantitative mLAMP). Within days, their nasal discharges can be freed from concentrated viable bacilli by starting full anti-microbial treatment. Regular check-ups will help protect their nerves and prevent visible deformity. Once the local cluster has been freed from concentrated viable bacilli (within weeks), periodic mop-up drives will confirm and sustain the success. Cluster by cluster, we can replicate the successes of Weifang (China), Malta, Jordan, Chile and at a rapid pace.

Those visionary leaders who have drawn inspiration from past successes and never given up on the vision of elimination can now find an army of friends and supporters. It is persons with lived experience, who formerly were too often feared, excluded from opportunity, disrespected and ostracized. Armed with barcoded nasal swabs, and mobile phone apps for real-time reporting including georeferences, they can collect nasal swabs for rapid semi-quantitative mLAMP naked eye readouts by health workers, (eg. by colour change or turbidity change to distinguish high-shedding LL from casual carriers of trivial numbers of bacilli). They can comfort any newly diagnosed patients in case of distress. They can periodically test for muscle weakness, during and after treatment, to alert health workers to early signs of “silent” nerve damage. They can encourage uninterrupted and complete treatment, arrange for rehab, liaise with the authorities for social entitlements. Periodic mop-up surveillance would make full use of their abilities. The full participation of persons with lived experience in defeating the disease and enhancing opportunity has been championed by enlightened and far-sighted leaders who have never let the world forget HD. As aides to health workers, with basic training and a stipend, persons with lived experience can become an army of primary health care workers and leaders at the grassroots.

There is no need to sabotage macrophages of infected asymptomatics with short-term chemoprophylaxis that withdraws anti-microbials while concentrated viable bacilli remain available locally. That would be a recipe for continued reinfection, transmission, visible deformity before diagnosis, needless prejudice against family members of newly diagnosed persons, and more new cases in 2030 than in 2025. Sample surveys by independent experts unfortunately consistently find under-reporting.

It is safest to eliminate concentrated viable bacilli from human populations, cluster by cluster: find, treat, end transmission and exclusion.

What do esteemed colleagues advise, in order to make this happen everywhere?

With all sincerity,

Joel Almeida

____________________________________________________________________________

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << edit...@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion visit https://groups.google.com/d/msgid/leprosymailinglist/8330f299-88f0-4f10-99cd-cbe68cba0faen%40googlegroups.com.

Leprosy Mailing List Blog

Pages

Tuesday, June 16, 2026

Fw: Ref.: (LML) 62nd session of ONU Human rights Council - Side Event online - Registration

Fw: Ref.: (LML) 62nd session of ONU Human rights Council - Side Event online

Sunday, June 14, 2026

Fw: Ref.: (LML) CPLP Leprosy Webinar – 30 June 2026

Tuesday, June 9, 2026

Fw: Ref.: (LML) Infolep monthly overview of new publications on leprosy, May, 2026

Fw: Ref.: (LML) Making a thousand Maltas bloom

Visitors