Fw: Ref.: (LML) Reflections from the 21st International Leprosy Congress (ILC)

 

 

Leprosy Mailing List – November 18,  2022

 

Ref.:  (LML) Reflections from the 21st International Leprosy Congress (ILC)

From:  LRI, Amsterdam, the Netherlands

 

Dear colleagues,

Reflections from the 21st International Leprosy Congress (ILC)

The LRI Secretariat attended the 21st ILC in Hyderabad, India last week; an event of great importance to all involved in the elimination of leprosy.

It was a pleasure meeting many of our grantees, partners and committee members in-person as well as to create new valuable connections with stakeholders in the field of leprosy. Our booth received lots of visitors expressing interest in LRI's work, the research funding opportunities and capacity strengthening activities. We also proudly displayed an overview of the many presentations of LRI-funded researchers sharing their project findings at the physical or online congress, and the prize for 'Best paper' was awarded to one of them: Congratulations to Dr Anuj Mavlankar and team!

In collaboration with the Global Partnership for Zero Leprosy, LRI organised the plenary session "Money matters: Priorities in funding leprosy research" to provide an overview of the research funding landscape in leprosy and encourage synergy and discussion. Our Coordinator, Dr Suzan Trienekens, presented LRI's scope of research support and funding priorities. In addition to presentations of several organisations involved with leprosy research, there were interactions with the audience through online poll voting. We were excited to see that the researchers in the audience voted LRI as the main organisation for their research funding support in the last 5 years.

New calls for proposals: Coming soon!
This year, in addition to our regular call for proposals, LRI is pleased to announce a new call for proposals for funding commencing in the second half of 2023: the Research capacity strengthening grant, aiming to fund innovative short projects led by early career researchers.

Both calls will be launched on the 2nd of December 2022; mark this date in your agenda! Keep an eye on our website for the launch, eligibility criteria and application process and we look forward to receiving your research proposals.

Leprosy Research Initiative

Wibautstraat 137k

Amsterdam, NH 1097 DN

Netherlands
info@leprosyresearch.org

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/f294b4ed-6fff-4ac1-9e59-8c843cb6a1a2n%40googlegroups.com.

Fw: Ref.: (LML) Novel approaches in the treatment of Hansen’s disease in the US

 

Leprosy Mailing List – November 15,  2022

 

Ref.:  (LML) Novel approaches in the treatment of Hansen's disease in the US

 

From:  Barbara Stryjewska, Baton Rouge, USA

 

 

Dear Pieter,

I would like to share with the LML readers , the latest publication regarding RMM treatment  as a pre-print.

Novel approaches in the treatment of Hansen's disease (Leprosy): a case series
of multidrug therapy of monthly rifampin, moxifloxacin, and minocycline (RMM) in the

United States. Carlos Franco-Paredes,  Elizabeth Garcia-Creighton, Andrés Henao-Martinez, et al. Ther Adv Infect Dis 2022, Vol. 9: 1–10 DOI: 10.1177/ 20499361221135885

Abstract: The World Health Organization (WHO) recommends multidrug therapy (MDT) for the treatment of paucibacillary and multibacillary forms of leprosy, also known as Hansen's disease (HD). MDT combinations of dapsone, rifampin, and clofazimine have reduced the prevalence of the disease but are not without adverse effects impacting regimen adherence. Hence, an urgent need exists to consider alternative MDT regimens with an improved safety profile that promotes treatment adherence. Herein, we described a case series of 10 patients with HD (nine patients with multibacillary leprosy and one with pure neural leprosy) treated with monthly rifampin, moxifloxacin, and minocycline (RMM). Etc., etc.

 

Sincerely,

 

Barbara M. Stryjewska, M. D.

Chief Medical Officer

Principal Investigator

Clofazimine IND # 67,033

National Hansen's Disease Program

HSB/HRSA/HHS

9181 Interline Ave

Baton Rouge, LA  70809

Ph #: (225) 756-3700

Fax # (225) 756-3706

NHDP Web Site:  http://www.hrsa.gov/hansens-disease/

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/c4cf97b2-ad3d-4ecb-a550-58cd49a41d07n%40googlegroups.com.

Fw: Ref.: (LML) Availability of graded nylon monofilaments

 

 
Leprosy Mailing List – November 10,  2022

 

Ref.:  (LML) Availability of graded nylon monofilaments

From:  Robert Jerskey, Carlsbad, USA

 

Dear Pieter,

 

I have quite a large reservoir of the graded nylon monofilaments with me here at the Congress in Hyderabad; available for distribution to the interested NGO or govt organization, or individual present.

 

For very helpful perspective: I refer here to 2 past LML postings that are highly worth a re read, or a first read, for those who missed them:

 

1.  Linda Lehman's February 4, 2017  "Nerve Damage. Disability and deformity.  Prevention and management", advocating for the use of the graded nylon monofilaments, when available.  

It concludes with this statement which she emboldened:

 

"It requires National and local political and professional commitments to include MF within guidelines, training and monitoring activities.

 

The link:

 

Leprosy Mailing List Blog: (LML) Silent neuritis. Nerve damage. Disability and deformity. Prevention and management.

 

2.  Ben Naafs' November 29, 2021 "Detection of nerve damage in leprosy and timely treatment" 

His posting concludes with one word:  "Worried"    

 

The link:

 

Leprosy Mailing List Blog: Fw: Ref.: (LML) Detection of nerve damage in leprosy and timely treatment

 

The interested reader welcome to email me--see below.  

 

I will be here in Hyderabad through Monday.

 

Thank you,

 

Robert

Robert Jerskey, LOTR, consultant for prevention and management of impairments, disabilities, and multiple morbidities

 

robjerskey@yahoo.com

 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/96e998e1-84ed-4924-b7d3-3376fa5c8f04n%40googlegroups.com.

Fw: Ref.: (LML) 3D printed Insoles and shoes for people who have or have had leprosy

 Leprosy Mailing List – November 7,  2022

 

Ref.:  (LML) 3D printed Insoles and shoes for people who have or have had leprosy

From:  Laila de Laguiche     , Paraná, Brazil

 

 

Dear Pieter,

 

I would like to invite LML readers, ILC delegates and e-delegates to watch the video produced by AAL, together with CIOMAL, about 3D printed shoes and insoles for patients who have or have had leprosy. An unprecedented presentation of this technology is now also available to patients affected by leprosy.

Exclusively, the video will be premiered during the International Leprosy Congress, in the SHORT VIDEOS session, in the Exhibition Hall.

From the 12th of November the video can be accessed by everyone with this QRCODE.

 

  I appreciate if you can disclose.

Sincerely

Laila
Alliance Against Leprosy
Curitiba, Parana

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/9a8ccdda-1f2a-4b7c-988f-f0e3bf6ecfben%40googlegroups.com.

Fw: Ref.: (LML) Persons affected by leprosy have been waiting too long for disability rights: UN expert

 

Leprosy Mailing List – November 6,  2022

 

Ref.:  (LML) Persons affected by leprosy have been waiting too long for disability rights: UN expert

From:  Alice Cruz, Quito, Ecuador

 

 

Dear friends,

 

New Release OHCHR-UN Special Procedures - Human Rights:    Persons affected by leprosy have been waiting too long for disability rights: UN expert

 

NEW YORK (4 November 2022) – Persons affected by leprosy have been waiting too long for their disability rights to be recognised globally and nationally, a UN independent expert told the General Assembly.

 

"Persons affected by leprosy should be fully recognised as persons with disabilities in accordance with the Convention on the Rights of Persons with Disabilities, on the grounds of physical impairments caused by leprosy as well as discrimination based on harmful stereotypes about leprosy itself," said Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members.

 

"Family members of persons affected by leprosy self-identify as persons with psychosocial disabilities owing to stigmatization and discrimination on the ground of leprosy. Yet, persons affected by leprosy and their family members have been largely excluded from the global conversation about disability", Cruz said in her report to the General Assembly.

 

While acknowledging progress at the national level to recognise equality for persons with disabilities, the Special Rapporteur urged States to do more to effectively implement the provisions of the Convention on the Rights of Persons with Disabilities.

 

Cruz expressed concern that disability rights seem to be restricted to social protection, and decisions on who is entitled to such protection remain largely in the hands of the medical professions. "Recognition of the diversity of persons with disabilities is limited, and more marginalised groups of persons with disabilities, such as persons affected by leprosy and their family members, are overlooked in national policymaking," she said.

 

Furthermore, she expressed concerns about the limited participation of persons affected by leprosy and their representative organisations in institutional matters relating to them, as well as in umbrella organisations for persons with disabilities.

 

In her second report to the General Assembly, Cruz also urged States to double their efforts to protect, promote and fulfil the rights of persons affected by leprosy and their family members by recognising their disability rights and ensuring their participation to policymaking.

 

"States should review the qualification requirements for social protection to ensure access for persons with invisible and psychosocial impairments, as well as for persons with disabilities living in poverty, recognising the additional costs of disability; and ensure a universal basic income for persons affected by leprosy."

 

She also recommended that intergovernmental agencies use leprosy as a case study to fill the evidence gap on the relationship between disability and poverty, and ensure leprosy inclusiveness in intergovernmental agencies and human rights monitoring mechanisms when addressing disability-related issues.

 

ENDS

 

Ms. Alice Cruz (Portugal) was appointed UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members in November 2017. Her mandate was extended by three years in June 2020. She has worked as External Professor at the Law School of University Andina Simón Bolívar in Ecuador. Her doctoral work in sociology focuses on the biosocial dimensions of leprosy.

Special Rapporteurs are part of what is known as the Special Procedures of the Human Rights Council. Special Procedures, the largest body of independent experts in the UN Human Rights system, is the general name of the Council's independent fact-finding and monitoring mechanisms that address either specific country situations or thematic issues in all parts of the world. Special Procedures' experts work on a voluntary basis; they are not UN staff and do not receive a salary for their work. They are independent from any government or organization and serve in their individual capacity.

For more information and media requests please contact: Younkyo Ahn (younkyo.ahn@un.org)

For media inquiries related to other UN independent experts, please contact Renato Rosario De Souza (renato.rosariodesouza@un.org) or Dharisha Indraguptha (dharisha.indraguptha@un.org).

Follow news related to the UN's independent human rights experts on Twitter @UN_SPExperts

 

Concerned about the world we live in?
Then STAND UP for someone's rights today.
#Standup4humanrights
and visit the web page at http://www.standup4humanrights.org

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/331bd5de-80cd-413c-bdcb-acb24ed7142cn%40googlegroups.com.

---

From: Leprosy Mailing List <leprosymailinglist@googlegroups.com>
Sent: 06 November 2022 14:58
To: Leprosy Mailing List <leprosymailinglist@googlegroups.com>
Subject: Ref.: (LML) Persons affected by leprosy have been waiting too long for disability rights: UN expert

 

Leprosy Mailing List – November 6,  2022

 

Ref.:  (LML) Persons affected by leprosy have been waiting too long for disability rights: UN expert

From:  Alice Cruz, Quito, Ecuador

 

 

Dear friends,

 

New Release OHCHR-UN Special Procedures - Human Rights:    Persons affected by leprosy have been waiting too long for disability rights: UN expert

 

NEW YORK (4 November 2022) – Persons affected by leprosy have been waiting too long for their disability rights to be recognised globally and nationally, a UN independent expert told the General Assembly.

 

"Persons affected by leprosy should be fully recognised as persons with disabilities in accordance with the Convention on the Rights of Persons with Disabilities, on the grounds of physical impairments caused by leprosy as well as discrimination based on harmful stereotypes about leprosy itself," said Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members.

 

"Family members of persons affected by leprosy self-identify as persons with psychosocial disabilities owing to stigmatization and discrimination on the ground of leprosy. Yet, persons affected by leprosy and their family members have been largely excluded from the global conversation about disability", Cruz said in her report to the General Assembly.

 

While acknowledging progress at the national level to recognise equality for persons with disabilities, the Special Rapporteur urged States to do more to effectively implement the provisions of the Convention on the Rights of Persons with Disabilities.

 

Cruz expressed concern that disability rights seem to be restricted to social protection, and decisions on who is entitled to such protection remain largely in the hands of the medical professions. "Recognition of the diversity of persons with disabilities is limited, and more marginalised groups of persons with disabilities, such as persons affected by leprosy and their family members, are overlooked in national policymaking," she said.

 

Furthermore, she expressed concerns about the limited participation of persons affected by leprosy and their representative organisations in institutional matters relating to them, as well as in umbrella organisations for persons with disabilities.

 

In her second report to the General Assembly, Cruz also urged States to double their efforts to protect, promote and fulfil the rights of persons affected by leprosy and their family members by recognising their disability rights and ensuring their participation to policymaking.

 

"States should review the qualification requirements for social protection to ensure access for persons with invisible and psychosocial impairments, as well as for persons with disabilities living in poverty, recognising the additional costs of disability; and ensure a universal basic income for persons affected by leprosy."

 

She also recommended that intergovernmental agencies use leprosy as a case study to fill the evidence gap on the relationship between disability and poverty, and ensure leprosy inclusiveness in intergovernmental agencies and human rights monitoring mechanisms when addressing disability-related issues.

 

ENDS

 

Ms. Alice Cruz (Portugal) was appointed UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members in November 2017. Her mandate was extended by three years in June 2020. She has worked as External Professor at the Law School of University Andina Simón Bolívar in Ecuador. Her doctoral work in sociology focuses on the biosocial dimensions of leprosy.

Special Rapporteurs are part of what is known as the Special Procedures of the Human Rights Council. Special Procedures, the largest body of independent experts in the UN Human Rights system, is the general name of the Council's independent fact-finding and monitoring mechanisms that address either specific country situations or thematic issues in all parts of the world. Special Procedures' experts work on a voluntary basis; they are not UN staff and do not receive a salary for their work. They are independent from any government or organization and serve in their individual capacity.

For more information and media requests please contact: Younkyo Ahn (younkyo.ahn@un.org)

For media inquiries related to other UN independent experts, please contact Renato Rosario De Souza (renato.rosariodesouza@un.org) or Dharisha Indraguptha (dharisha.indraguptha@un.org).

Follow news related to the UN's independent human rights experts on Twitter @UN_SPExperts

 

Concerned about the world we live in?
Then STAND UP for someone's rights today.
#Standup4humanrights
and visit the web page at http://www.standup4humanrights.org

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/331bd5de-80cd-413c-bdcb-acb24ed7142cn%40googlegroups.com.

Fw: Ref.: (LML) Diversity and Progress

 

Leprosy Mailing List – November 6,  2022

 

Ref.:  (LML) Diversity and Progress

 

From:  Joel Almeida, Mumbai, India

 

 

Dear Pieter and colleagues,

Diversity of funding sources is critical for progress against HD. It is what keeps us moving forward as the best ideas keep surfacing. Without diversity in funding, and diversity of talent, it is easy to gravitate towards the echo chamber approach. That is where fiction too often can replace fact, and everyone is expected to echo the fiction.

 

The best ideas, the most effective ones, often emerge out of free and open discussion. The worst ones can survive, despite good intentions on all sides, when funding sources are consolidated. That is why diversity of funding is critical in HD and in any field that hopes to progress.

Long may we progress towards the world we want to create: where HD is no longer feared and preferably no longer a threat to the people of endemic countries. Long may we enjoy diversity of funding, diversity of talent and diversity of views. It is from that crucible of diversity that the gold of success generally emerges.

Best,

Joel Almeida

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/a71ee4da-f1b0-48f3-a620-f8520c19debcn%40googlegroups.com.

---

From: Leprosy Mailing List <leprosymailinglist@googlegroups.com>
Sent: 06 November 2022 14:57
To: Leprosy Mailing List <leprosymailinglist@googlegroups.com>
Subject: Ref.: (LML) Diversity and Progress

 

Leprosy Mailing List – November 6,  2022

 

Ref.:  (LML) Diversity and Progress

 

From:  Joel Almeida, Mumbai, India

 

 

Dear Pieter and colleagues,

Diversity of funding sources is critical for progress against HD. It is what keeps us moving forward as the best ideas keep surfacing. Without diversity in funding, and diversity of talent, it is easy to gravitate towards the echo chamber approach. That is where fiction too often can replace fact, and everyone is expected to echo the fiction.

 

The best ideas, the most effective ones, often emerge out of free and open discussion. The worst ones can survive, despite good intentions on all sides, when funding sources are consolidated. That is why diversity of funding is critical in HD and in any field that hopes to progress.

Long may we progress towards the world we want to create: where HD is no longer feared and preferably no longer a threat to the people of endemic countries. Long may we enjoy diversity of funding, diversity of talent and diversity of views. It is from that crucible of diversity that the gold of success generally emerges.

Best,

Joel Almeida

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/a71ee4da-f1b0-48f3-a620-f8520c19debcn%40googlegroups.com.

Fw: Ref.: (LML) LML Session at the coming ILC

 

Leprosy Mailing List – November 6,  2022

 

Ref.:  (LML) LML Session at the coming ILC

 

From:  Ben Naafs, Munnekeburen, the Netherlands

 

Dear LML readers and contributors,

Unfortunately, we have decided, in consultation with the organization to cancel the LML meeting in the ILC program. Due to planning issues, and a covid infection with brain fog on my part, it was not possible to finish all the backlog and preparations. We apologize and I hope to see all the ILC attendees in Hyderabad.

 

With kind regards,

Ben

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/67f79ec3-c766-4816-8938-6d189c81b975n%40googlegroups.com.

Fw: Ref.: (LML) International Leprosy Congress and Leprosy Research Initiative

 

 
Leprosy Mailing List – November 5,  2022

 

Ref.:  (LML) International Leprosy Congress and Leprosy Research Initiative

 

From:  Leprosy Research Initiative, Amsterdam, the Netherlands

 

 Dear colleagues,

The International Leprosy Congress (ILC) is an important global event bringing together researchers and key stakeholders in the field of leprosy and is held every three years. The theme of the 21st edition is 'Better Knowledge-Early Diagnosis-Improved Care' and will be hosted in Hyderabad, India and online. The Congress takes place 8th-11th of November and has a physical programme for in-person participants as well as a virtual programme for online attendance.
 
The LRI Secretariat will be attending the Congress in-person and we look forward to connecting with researchers, partners, committee members and other stakeholders interested in the work of LRI.
 
We look forward to seeing you at the:

Plenary session: The Global Partnership for Zero Leprosy and LRI will co-host a plenary session on Thursday morning, 10th of November (Plenary Hall A) entitled "Money Matters: Priorities in Funding Leprosy Research". This session aims to provide an overview of the scope of current and projected research support across organisations involved in leprosy research to identify opportunities for awareness, efficiency, support and synergy.
 
LRI booth: Visit our booth and exchange with us about LRI's work, upcoming research funding opportunities, capacity strengthening activities, and other exciting new developments.
 
Presentations and posters from LRI-funded projects: Throughout the ILC, researchers from various LRI-funded projects will give oral and poster presentations, sharing their interesting study findings. Find more information on all presentations at the LRI booth.
 

 Leprosy Research Initiative Secretariate

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

(Note editor: in the last edition of Leprosy Review there was an editorial about research funding - may be an additional topic?)

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/6623706a-424c-4277-8a6b-8e1900761a33n%40googlegroups.com.

Fw: Ref.: (LML) LML session at the coming ILC

 
Leprosy Mailing List – November 5,  2022

 

Ref.:  (LML) LML session at the coming ILC

 

From:  Laila de Laguiche, Paraná, Brazil

 

 

Dear Pieter,

 

In response to dear Ben Naafs, I am available to contribute to the LML session during the ILC. I will be in Hyderabad in person.

I continue to support LML in its existence and importance for the international society that is interested in leprosy. We are not many and together we are stronger.

Laila

 

Dra. Laila de Laguiche, M.D.

Curitiba, Paraná, Brazil

 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

 

 

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/bb88c02e-c621-4adf-9909-9d2aac082ea2n%40googlegroups.com.

Fw: Ref.: (LML) Infolep monthly overview of new publications on leprosy

Leprosy Mailing List – November 2,  2022

 

Ref.:  (LML) Infolep monthly overview of new publications on leprosy

 

From:  Marente Mol and Roos Geutjes, Amsterdam, the Netherlands

 

 

Dear colleagues, 

Only a few more days until the kick-off of the 21st International Leprosy Congress in Hyderabad, India! Infolep will be hosting a booth at the physical conference. Will you be visiting the congress too? Come visit us and share your thoughts and suggestions on the portal. We are open to discussing partnership opportunities and brainstorming on future developments. We hope to see you there!

A new issue of Bulletin de l'ALLF is now available!

The Dutch Coalition on Disability and Development launched a new quick guide on disability inclusive programme monitoring.

Enjoy reading the latest publications on leprosy that are listed below. Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal

Warm regards,

Marente Mol & Roos Geutjes

www.leprosy-information.org
info@infolep.org
 

 

 

Highlighted

 

Towards Disability Inclusive Programme Monitoring (Quick guide)
Dutch Coalition on Disability and Development. 2022.
 

Bulletin de l'ALLF - Revue francophone d'information sur la lèpre et l'ulcère de Buruli. (new issue)
 

Road map for neglected tropical diseases 2021–2030 (online course)
World Health Organization. 2022.
 

Sustainability framework for action against NTDs 2021–2030  (online course)
World Health Organization. 2022.
 

The Power Awareness Tool 
Partos Shift-The-Power-Lab. The Spindle. 2020.
 

 

 

New publications

Feel free to contact us to receive full-text versions if these cannot be found through the Infolep portal.

 

Experiences of living with leprosy: A systematic review and qualitative evidence synthesis  
Abdul Rahman N, Rajaratnam V, Burchell GL, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2022; 16 (10) : e0010761.
 

Implementation approaches for leprosy prevention with single-dose rifampicin: A support tool for decision making. 
Ellen F, Tielens K, Fenenga C, et al. PLoS neglected tropical diseases. 2022; 16 (10) : e0010792.
 

Risk Factors for Disability Upgrading Among Leprosy Patients During Treatment: Multilevel Modeling Analysis
Mulugeta SS, Maseresha BM, Wassihun SG, et al. SAGE Open Nursing. SAGE Publications. 2022.
 

The burden of physical disability among patients with newly detected leprosy in Yunnan, China, 1990–2020: A population-based, cross-sectional survey
Chen X, Shui T, Franco-Paredes C. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2022; 16 (10) : e0010719.
 

The Effect of Self-Care on the Severity of Disability of Leprosy Patients in the Work Area Galis Health Center  
Mufarika , Auliya NC, Widiyastuti M. Journal Of Nursing Practice. 2022; 6 (1) : 34–42.
 

Systematic Review of Survival Analysis in Leprosy Studies-Including the Following Outcomes: Relapse, Impairment of Nerve Function, Reactions and Physical Disability.  
Barbosa C, Bezerra G, Xavier A, et al. International journal of environmental research and public health. 2022.
 

Central nervous system, spinal root ganglion and brachial plexus involvement in leprosy: A prospective study  
Verma S, Garg RK, Rizvi I, et al. Journal of Central Nervous System Disease. SAGE Publications. 2022.
 

Drug Resistance (Dapsone, Rifampicin, Ofloxacin) and Resistance-Related Gene Mutation Features in Leprosy Patients: A Systematic Review and Meta-Analysis.  
Li X, Li G, Yang J, et al. International journal of molecular sciences. 2022.
 

Repurposing of Drugs for Non-responding Erythema Nodosum Leprosum Cases - A Perspective  
Thangaraju P, TY SS, Venkatesan S. Journal of Young Pharmacists. EManuscript Technologies. 2022; 14 (3) : 266-267.
 

 

Mental health, stigma, and neglected tropical diseases: A review and systematic mapping of the evidence
Koschorke M, Al-Haboubi YH, Tseng P, et al. Front. Trop. Dis. 2022.
 

A study on Depression using PHQ9 among Patients Attending Outpatient Department of a Tertiary Care Leprosy Hospital in the City of Kolkata, West Bengal  
Roberts H, Mahato J, Govindasamy K, et al. Indian Journal of Leprosy. 2022.
 

Guide to Diagnosis and Management of Leprosy
Grijsen ML, Naafs B. Community Skin Health. 2022; 18 (1) : 8-12.
 

Clinicoepidemiological Profile of Childhood Leprosy in a Tertiary Care Hospital of North Karnataka  
Parsam SB, Kadi R. Indian Journal of Paediatric Dermatology. 2022; 23 (4) : 288-291.
 

Community-based wound management in a rural setting of Côte d'Ivoire.
Toppino S, Koffi D, Kone B, et al. PLoS neglected tropical diseases. 2022; 16 (10) : e0010730.
 

Heterogeneous persistence of Mycobacterium leprae in oral and nasal mucosa of multibacillary patients during multidrug therapy  
Neumann ADS, Fontes ANB, Lopes MQP, et al. Mem Inst Oswaldo Cruz. 2022;
 

Diagnosing and treating leprosy in a non-endemic setting in a national centre, London, United Kingdom 1995–2018  
Lockwood DN, McIntosh A, Armstrong M, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2022; 16 (10) : e0010799.
 

Dermoscopy and clinicopathology features in diagnosing paucibacillary leprosy: Case series  
Rusmawardiana R, Nursyarifah N, Argentina F, et al. International Journal of Mycobacteriology. Medknow. 2022; 11 (3) : 332.
 

A Clinicodemographic Study of Leprosy in Elderly: 8-Year Data from a Tertiary Care Centre in North India  
Narang T, Kamat D, Kumar S, et al. Indian Journal of Leprosy. 2022.
 

Palatal perforation in a patient with borderline lepromatous leprosy: leprosy still not eradicated
Anand P, Bharadwaj S, Ganguly S, et al. BMJ Case Reports. BMJ. 2022; 15 (10) : e251798.
 

Proporção de casos novos diagnosticados com grau 2 de incapacidade física na população com hanseníase do Estado do Pará, Brasil, no período de 2016 a 2020  
Dergan MRA, Goncalves NV, Sousa Júnior ADS, et al. Research, Society and Development. 2022; 11 (14) : e114111435399.
 

 

 

 

Events

 

2nd Global Forum of People's Organizations on Hansen's Disease 
6-8 November, 2022

Preceding the ILC in Hyderabad, Sasakawa Leprosy Initiative is organizing the 2nd Global Forum of People's Organizations on Hansen's Disease. During this event, they will explore what challenges persons affected by leprosy face and the vision of the future they wish to create moving into the post-COVID era. The event will be both physical (in Hyderabad) and virtual (online registration).
 

21st International Leprosy Congress
8-11 November, 2022

This year's ILC is taking place in Hyderabad, India, in a hybrid format. Key stakeholders in the field of leprosy will be brought together to discuss on various topics related to the theme 'Better Knowledge—Early Diagnosis—Improved Care'.
 

Global Hygiene Summit 2023
15-16 February, 2023

The world's first Global Hygiene Summit intends to become the global meeting place for the diverse audiences involved in hygiene. Through the provision of greater context to this, currently, fragmentary field and through the development of clearly defined boundaries the Global Hygiene Summit will articulate the shape, scope and importance of the hygiene field, motivate multi-level and multi-disciplinary working by bridging epidemiology, behaviour and policy. 
 

 

2nd International Conference on Public Health in Africa
13-15 December, 2022

The 2nd International Conference on Public Health in Africa will be held in Kigali, Rwanda. This conference provides an unique platform for African researchers, policymakers and stakeholders to come together and share perspectives and research findings in public health, thereby strengthening scientific collaboration and innovation across the continent. 
 

Launch event of the WHO Bulletin theme issue on advancing Health Policy and Systems Research for Rehabilitation
2 November, 2022

The WHO is hosting a hybrid event to launch a new theme issue on advancing rehabilitation through Health Policy and Systems Research, containing a collection of peer-reviewer papers related to this topic. 
 

Decolonising Global Health Symposium
24 November, 2022

Kenniscentrum Global Helth (KCGH) is organizing a symposium on Decolonising Global Health in Amsterdam. During this event, the colonial impact on health systems, social injustice and health inequities will be explored. Virtual attendance is also possible. 
 

Research in Progress London
8 December, 2022

The Royal Society of Tropical Medicine and Hygiene is organizing a one-day meeting for early career investigators to present unpublished research in progress to peers and senior experts in all fields of tropical medicine and global health.

 

 

 

Links

 

Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
 

ALLF - Official website of the Association des Léprologues de Langue Française
 

LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
 

InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)

 

ILEP newsletter archive

GPZL newsletter subscription

WHO Goodwill Ambassador's Leprosy Bulletin

Leprosy Review

Leprosy Review Repository (1928-2001)

Fontilles Revista de Leprología

Indian Journal of Leprosy

Hansenologia Internationalis

 

GDPR & the Infolep newsletter

 
New EU data protection regulations came into force on 25 May 2018. We have been reviewing our practices with regards to the GDPR, including our privacy statement and mailing list.

Infolep sends out monthly e-mails with an overview of recent publications on leprosy and related issues. The purpose of this activity is to keep subscribers up to date.

Infolep will only process the data we have (names, email addresses) for the purpose of sending you the newsletter. We take your security seriously and will never share your contact details with anyone else.

You can update your preferences or unsubscribe from this list at any time.

 

Send us an email

Visit our website

Facebook

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/fc21ed7f-eb44-41f0-966b-648ba0dc079dn%40googlegroups.com.

Fw: Ref.: (LML) Guide to diagnosis and management of leprosy

 

 
Leprosy Mailing List – November 2,  2022

 

Ref.:  (LML) Guide to diagnosis and management of leprosy

 

From:  Ben Naafs, Munnekeburen, the Netheralnds

 

 

Dear Pieter,

 

I want to draw attention to CommunitySkinHeath, a journal written for fieldworkers in Dermatology. It is published at least twice a year in English, French, and Spanish. Portuguese and Chinees are added soon. It can be found on the internet.  The article which I enclose is an example of a Leprosy article ("A Guide to diagnosis and management of leprosy" Community Skin Health 2022; Volume 18 (1)).

 

Regards

 

Ben

 

(Note editor: the introduction starts with

"The claim that leprosy is no longer a public health problem (WHO, 2005) is wistful thinking" and "And in low- and middle-income countries, as well as in high-income countries, patients are often diagnosed too late")

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/44e85b5b-8bde-427a-88d5-9eee9b2f4f9an%40googlegroups.com.