(LML) INFOLEP

Leprosy Mailing List – November 4,  2013 

Ref.:    (LML) INFOLEP

From:  Jiske Erlings, NLR, Amsterdam, The Netherlands

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Dear Pieter and LML readers,

 

 

Greetings from Infolep!

 

I will be on maternity leave from November until March 2014. During this period Infolep and the portal www.leprosy-information.org will be managed by Ms Ilse Egers. She is a very experienced information specialist and I am sure there will be a smooth continuation of Infolep‘s services.

 

Please feel free to contact her at infolep@leprastichting.nl for any questions regarding Infolep services or the portal.

 

Meanwhile you are warmly invited to:

-  Try the portal at www.leprosy-information.org and give us your feedback;

-   Promote the portal and the availability of additional Infolep services in your network;

-   Send us your publications on leprosy or material on leprosy in your language to include in the portal.

 

 

With best wishes,

Jiske Erlings

 

Medewerker InfoLep / Information Office

Infolep Leprosy Information Services

Postbus / P.O. Box 95005

090 HA Amsterdam

The Netherlands

Tel: +31 20 5950530

E-mail: J.Erlings@Leprastichting.NL

Web: www.leprosy-information.org

 

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

(LML) Judith Bell-Krotowski

Leprosy Mailing List – October 29,  2013 

Ref.:    (LML)  Judith Bell-Krotowski

From:  David M. Scollard, National Hansen’s Disease Programs, USA

             Marcos Virmond, ILA, ILSL Bauru, Brzail

            Wim van Brakel, NLR Technical Advisor, The Netherlands

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Dear Dr. Schreuder,

On behalf of the National Hansen’s Disease Programs (USA) I would like to thank everyone who has written to the LML to share their condolences and memories of Judy Bell-Krotowski.  She was a wonderfully warm-hearted person who made major contributions to the field of sensory testing in leprosy, and to the lives of many thousands of people affected by this disease.  We will miss her greatly.  Your thoughts at this time are greatly appreciated. 

Sincerely,

David M. Scollard

Acting Director

National Hansen’s Disease Programs

Baton Rouge, LA, USA

 

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Dear Pieter,

With the passing of Judith it is time to acknowledge that the introduction of the nylon filaments, together with MDT, was a paramount feature of the modern approach to leprosy services. Judith Bell-Krotoski and her followers have a notable participation in this new era for leprosy.

Kind regards

Marcos Virmond

President ILA

ILSL, Bauru, São Paulo, Brazil

 

 

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Dear Pieter,

I addition to what Linda Lehman and Rob Jersky have already said, I would also like to acknowledge that I am much indebted to Judy Bell-Krotoski. It was Judy who introduced me to monofilament testing when she visited the INF Green Pastures Hospital & Rehabilitation Centre in Pokhara, Nepal. I relied on her research to a significant extent in the research I did for my own PhD. She was a lovely woman, a great scientist and a very effective motivator!

With best wishes,

Wim van Brakel

NLR Technical Advisor

Amsterdam, The Netherlands

 

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

(LML) Judith Bell-Krotoski

Leprosy Mailing List – October 28,  2013 

Ref.:    (LML)  Judith Bell-Krotoski

From:  Dinkar D. Palande, Pondicherry, Tamil Nadu, India

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Dear Pieter,

 

We workers in this field, and especially all persons who had early detection and hence successful treatment of nerve impairment, owe a lot to pioneers like Judith Bell-Krotoski for the use of Nylon filaments that I consider an essential tool in the early diagnosis of nerve impairment. I have met Judith and fully endorse everything that Linda and Robert have said in their letters to LML about her.

 

Thanking you,

sincerely

Dinkar

 

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

(LML) Judy Bell-Krotoski and the utility of Monofilaments

Leprosy Mailing List – October 26 ,  2013 

Ref.:    (LML)  Judy Bell-Krotoski and the utility of Monofilaments

From:  Robert S. Jerskey, USA

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Dear Pieter,

 

I would like to touch on the theme of  Linda Lehman’s thoughtful eulogy to Judith [“Judy” ] Bell-Krotoski posted in the LML earlier this week.

 

Despite Judy’s ongoing series of chemotherapy treatments for her cancer, she maintained a keen interest in hearing and reading of developments in the field of P.O,D. particularly along the lines of measuring nerve function impairment with Monofilaments.  For example, in a recent correspondence just weeks ago Judy wrote, and I quote:

 

“The goal for me has always been to use a sensitive, reproducible test to monitor patients for early neuropathy”

 

and

 

“Please convey my warm greetings and best wishes for success in testing to all. We know the monofilaments are good, but now need more clinical data for comparison with treatment, and identification of treatment that can really prevent impairment and disability by interrupting the developing neuropathy which in all I have measured and monitored seems highly possible if detected early.”

 

We were in touch before, during, and after the ILA Congress.  She was so pleased to hear of the resurgence of interest in the utility of the Monofilaments for helping to assess nerve function and the requests for batches of loose filaments from different continents----thanks in great part to the LML. 

 

I can very confidently say that Judy would be simply thrilled to read of Dr. Narasimha Rao’s news update re: the dissemination of the Monofilaments and instruction in their use at the seminars for large numbers of dermatologists----this appears to be “a first” globally in terms of such numbers and of the significance of target audience--dermatologists.

 

If not for Judy’s dedication and generosity, the Monofilaments would not have been available for distribution at the Congress.   (And there is still an ample supply for some time to come for those who were not able to receive them at the Congress---those interested can contact me.)  

 

One of our last conversations included the question of a grant proposal for a sustainable supply of the Monofilaments to major centres and clinics worldwide.

 

In Memoriam and Gratitude to Judy.

 

Thanking you Pieter and the others who manage this LML---it continues to be such  a singular tool and resource for so many.

 

Kind regards,

Robert

 

Robert S. Jerskey, LOTR, P.O.D.consultant

robjerskey@yahoo.com

 

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

(LML) 6th National Colloquium on Evidence Based Integrative Medicine on Lymphatic Filariasis and other Chronic Dermatoses

Leprosy Mailing List – October 23,  2013 

Ref.:    (LML) 6^th National Colloquium on Evidence Based Integrative Medicine on Lymphatic Filariasis and other Chronic Dermatoses

From:  SR Narahari, Kerala, India

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Dear Dr. Pieter,

 

 

I am attaching the invitation  inviting experts and patients to participate in a priority setting workshop organized in Kasaragod, Kerala in Southern India. I request you to forward this to the group as several members have shown interest in Lymphatic Filariasis in the past.

 

 

Thank you,

 

S R NARAHARI Institute of Applied Dermatology Kasaragod, Kerala, India   srnarahari@sify.com

 

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

(LML) SW filaments

Leprosy Mailing List – October 23,  2013 

Ref.:    (LML) SW filaments

From:  P. Narasimha Rao, New Delhi, India

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Dear Dr Pieter Schreuder,

I like to refer to the LML August 25, 2013 from Mr Robert Jerskey and other mails related to SW filaments  and my enquiry about SW filaments.

I am extremely grateful to the members of LML and especially to Mr Robert Jerskey, for their responses to my enquiry regarding SW filaments through this forum. Mr Robert, as he promised,  handed over a good number of SW filaments to Dr KU Kiran at Brussels during congress.  I thank him for his generous gesture of giving them away free of charge. We promise to put them to good use. 

In this connection, I would like to inform you about the activities taken up by Indian association of Dermatologists, Venereologists and Leprologists (IADVL- the principal association of Dermatologists of India with membership of over 7000), and its Special interest group (SIG) on leprosy in the field of leprosy. 

IADVL - Special interest group (SIG) on leprosy, with the support of NGO ‘Codewel Nireekshana–Acet’, Department of Dermatology, Gandhi Medical College had organized a one and half day CME and Workshop, titled 'Update on Leprosy–for PGs to Practitioners' on 14^th and 15^th September, 2013 in the campus of Gandhi medical college, Hyderabad, India.   More than 200 residents and faculty of Dermatology attended it.  The emphasis of CME was to inform and update delegates of the present status and newer developments in leprosy. The Workshop was planned in such a way to demonstrate essential clinical and basic laboratory techniques to all delegates apart from showing few advances in management options of leprosy.  During the workshop where the use of SW filaments was demonstrated, may delegates were happy to receive filaments to use in their clinics and hospitals. The enthusiasm and participation of the delegates during the CME and Workshop was very heartening. 

IADVL and SIG leprosy is planning similar CME and workshops in other part of India to sensitize young Dermatologists and residents of Dermatology to the issues of leprosy. 

With best regards,

Dr. P. Narasimha Rao, MD, D.D, PhD

 

Hon. General Secretary and Member SIG leprosy

IADVL,  India.
 
Phone- 040-23514566
Mobile-09849044898

 

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

(LML) CAPT. Judith A. Bell Krotoski, OTR, CHT, FAOTA

Leprosy Mailing List – October 21,  2013 

Ref.:    (LML)  CAPT. Judith A. Bell Krotoski, OTR, CHT, FAOTA

From:  Linda Lehman, Belo Horizonte, Brazil

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Dear Pieter,

 

 

Just heard that Judy Bell-Krotoski died after a recent diagnosis with a very aggressive cancer.  Judy had worked with me, and ALM, many years ago in training people at GWLHDC and with us in Brazil and research.  She was the one who motivated us to create the SORRI Bauru Sensory testing kits and also was the one who encouraged and started people using monofilaments for earlier diagnosis of nerve function problems.

 

She was an original pioneer of hand therapy, amazingly creative not known by many, a visionary, a champion of causes especially in her capacity as officer in the United States Public Health Service and her work with sensibility testing of hands and upper extremity of patients with Hansen's disease (Leprosy).

 

May she rest in peace and be remembered for the good mentoring and education she provided to many of us! Please keep Al, her husband and Judy's son in your prayers.  

 

Thank you,

 

 

Linda

Linda F. Lehman, OTR/L MPH C.Ped

Technical Director, Programs

 

American Leprosy Missions

One ALM Way, Greenville, South Carolina 29601 USA

R. Castelo de Alenquer 390 Apt 302  Belo Horizonte, MG 31330-050 BRASIL

BRASIL Direct:  +55 31.3476.6842  +55 31.9637.5576

 

llehman@leprosy.org | www.leprosy.org

 

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com