Fw: Ref.: (LML) Message from Pope Francis

 

Leprosy Mailing List – January 29,  2023

 

Ref.:  (LML) Message from Pope Francis

From:  Laila de Laguiche, Curitiba, Brazil

 

Dear Pieter,

This week I had the opportunity to participate in the second Vatican Leprosy Symposium, organized by AIFO, Raoul Follerau, Sasakawa and Dicastery for Promoting Integral Human.

We received this beautiful message from the Pope, who talks a lot about World Leprosy Day and encourages a reflective spirit on what we can do to fight stigma and prejudice.

Furthermore, His blessings must reach everyone: patients, professionals and managers.
If you find it convenient, please post it on the LML list.

 

https://www.vatican.va/content/francesco/en/events/event.dir.html/content/vaticanevents/en/2023/1/23/messaggio-simposio-malattia-hansen.html

(I am not a Christian myself, but I felt very grateful for your blessings)

Thanks

 

Laila

 

Laila de Laguiche

Curitiba - Brazil

 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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Fw: Ref.: (LML) Photo exhibition from Indonesia

 

 

Leprosy Mailing List – January 28,  2023

 

Ref.:  (LML) Photo exhibition from Indonesia

 

From:  Robert Machangu, Tanzania

 

Dear Pieter,

 

This narrative from indonesia  is very very  and it repeats  itself in many remote communities in leprosy endemic countries. Let us hope that with more vigorous campaigns and interventions. HD will become history in the next couple of decades.  Thank you Yoppy.

 

Robert Machangu

 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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From: Leprosy Mailing List <leprosymailinglist@googlegroups.com>
Sent: 28 January 2023 16:43
To: Leprosy Mailing List <leprosymailinglist@googlegroups.com>
Subject: Ref.: (LML) Photo exhibition from Indonesia

 

 

Leprosy Mailing List – January 28,  2023

 

Ref.:  (LML) Photo exhibition from Indonesia

 

From:  Robert Machangu, Tanzania

 

Dear Pieter,

 

This narrative from indonesia  is very very  and it repeats  itself in many remote communities in leprosy endemic countries. Let us hope that with more vigorous campaigns and interventions. HD will become history in the next couple of decades.  Thank you Yoppy.

 

Robert Machangu

 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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Fw: Ref.: (LML) Teledermatology services

 

Leprosy Mailing List – Jamuary 28,  2023

 

Ref.:  (LML) Teledermatology services

From:  Joel Almeida, Mumbai, India

 

Dear Pieter and colleagues,

It is very heartening to see the spread of teledermatology services using smartphones. (eg in Indonesia, ref LML Virtual Photo Exhibition). This allows peripheral health workers to be supervised by experts as they examine patients with skin conditions. Without expertise, it is easy for the most highly bacillated HD patients to be missed, either before MDT or after MDT upon reinfection. That is because the most highly bacillated often show no skin patches.

With improved standards of skin examination, including pinching the skin to check for subtle induration, there is hope that the most highly bacillated patients will be recognised, treated and consequently unable to provide viable bacilli to children and others. Programmes that provide smear microscopy might find nasal smears thick with acid-fast bacilli even though the patient might not show any skin patches. While such patients remain unprotected against (re)infection, there is not much hope of stopping transmission. 

A wider reach for expert services is critical for stopping HD transmission and caring for patients. Teledermatology & telemedicine of all sorts can help.

Best,

Joel Almeida

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

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Fw: (LML) Virtual Photo Exhibition on leprosy in Indonesia

 
Leprosy Mailing List – January 24,  2023

 

Ref.: (LML) Virtual Photo Exhibition on leprosy in Indonesia

 

From:  Marlous Grijsen, OUCRU Indonesia

 

 

Dear Pieter and colleagues,

 

 

On behalf of Oxford University Clinical Research Unit Indonesia, I am excited to announce our online photo exhibition entitled 'Letter from the Hills: the Invisible Burden of Leprosy in Sumba' by Yoppy Pieter, an award-winning Indonesian photographer. The exhibition documents, through a series of intimate and subtle images, the invisible burden of leprosy in Sumba, a remote island in Eastern Indonesia. 

 

In this exhibition Yoppy Pieter shares a glimpse of the lives of seven people affected by leprosy from Sumba, exposing their daily challenges, but at the same time illustrating their resilience, vigour and hopes for the future. Through these personal stories, we aim to raise awareness and improve the public knowledge on leprosy to help destigmatise this neglected disease. 

 

Please visit the virtual exhibition at: https://www.invisibleburdenofleprosy.com and share among your colleagues, patients, friends and/or family. 

 

 

Best wishes,

 

 

Marlous Grijsen, MD PhD
Dermatologist & Research Fellow

Centre for Tropical Medicine and Global Health
Nuffield Department of Medicine
University of Oxford

Oxford University Clinical Research Unit Indonesia
Fakultas Kedokteran Universitas Indonesia
Jakarta Indonesia

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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Fw: Ref.: (LML) Leprosy Research Initiative calls for Proposals

 

 

Leprosy Mailing List – January 22,  2023

 

Ref.:  (LML) Leprosy Research Initiative calls for Proposals

 

From:  LRI, Amsterdam, the Netherlands

 

 

Dear colleagues,

 

 

LRI calls for proposals: deadline for Letter of Intent submission 27/01/2023

The countdown has started!
There is only one week left to submit your Letter of Intent for the following LRI Calls for proposals:
- Regular grant – Projects starting in 2024
- Research capacity strengthening grant – Projects starting in 2023
 
The deadline for submission for both calls is Friday the 27th of January, 2023 at 23:59 (CET), after which the portal will be closed, so make sure to submit your Letter of Intent

 

Submit your Letter of Intent

 

LRI Spring Meeting 2023 & Highlights – Save the date!

The LRI Spring Meeting is an annual event that brings together researchers of LRI-funded projects,  the LRI Scientific Review Committee and Steering Committee as well as Partners of the LRI. More than thirty researchers will present project progress updates and results during this year's edition, which will take place in the Netherlands on the 20th and 21st of April. Limited places are available for self-funded persons with a keen interest in leprosy research who wish to attend but are not otherwise invited.

Following the in-person event, an online 'Highlights of Spring Meeting 2023' event will be hosted on the 1st of June , where findings of selected projects across LRI research priorities will be presented. This event is open to everyone interested in leprosy research and will be free of charge.

Updates on these events will follow via newsletter communication on our website in due course.

 

Best regards,

LRI team

 

New publication: "Meaningful engagement of persons affected by leprosy in research: an exploration of its interpretation, barriers, and opportunities"

We are pleased to share the scientific article led by LRI intern Laura de Groot recently published in Tropical Medicine and Infectious Disease on her project on meaningful engagement of persons affected by leprosy in research.

The authors recommend to "engage experts-by-experience throughout the entire research cycle for optimal outcomes and impact for all stakeholders involved, although the process of engagement can vary across research stages. Funders can play an important role in both stimulating engagement, for example, by accepting that payment of experts-by-experience is a legitimate use of funds, and in recognizing differences between meaningful and tokenistic engagement."
 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

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Fw: Ref.: (LML) Request for Leprosy Training

 

Leprosy Mailing List – January 18,  2023

 

Ref.:  (LML) Request for Leprosy Training

 

From:  Joel Almeida, Mumbai, India

 

 

Dear Pieter & colleagues,

Schieffelin Institute, Karigiri (India) has long offered good courses on HD. These courses tended to attract participants from around the globe. Good idea for such institutes of excellence to be sponsored for providing hands-on training to health personnel.

With good training of health personnel there will be less risk that highly bacillated patients before or after MDT, often showing only subtle physical signs, will be overlooked. Then we can match the achievements of the best control programmes (including Karigiri) that demonstrated well documented and large reductions in the incidence rate of multibacillary HD.

Best wishes to the younger professionals joining the (winnable) battle to defeat the germs and improve respect/services for those affected. And to all other esteemed colleagues and friends too.

Joel Almeida

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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Fw: Ref.: (LML) Request for Leprosy Training

 

 

Leprosy Mailing List – January 15,  2023

 

Ref.:  (LML) Request for Leprosy Training

 

 

From:  Francesca Gajete, Manilla, Philippines

 

Dear Pieter,

 

Greetings for a better year this 2023 for your family and all of us !

 

I am sharing this letter request from Dr Ricky Hipolito, a dedicated Dermatologist and Leprosy worker at the Research Institute on Tropical Medicine Philippines.

 

It is very rare that such young dermatologist would come forward showing interest in a field chosen by few.

 

With high hopes of your assistance cognizant of your large network.

 

Best Wishes and Kind Regards to the Family. Take care and Stay safe always.

 

Yours in Leprosy Service,

 

 

Francesca 

 

 

Dr. Francesca Cando Gajete, MHA, FPLS

Former National Leprosy Control Program Manager-DOH (Ret)

ADOHRE Philippines, Inc Chair and Board of Trustee

International Leprosy Association Vice President for Asia

Representative WHO Western Pacific Regional Committee

 

Dear Dr Gajete,

 

I am Dr Ricky H. Hipolito, a consultant at the Research Institute for Tropical Medicine. Since 2012 I have have been seeing Leprosy patients and have actively participated in many Leprosy programs of the Department of Health. Among these programs are the Leprosy E- learning module, in which I am a contributor, trainings for the Department of Health and researches concerning Leprosy diagnosis and management. I also initiated the Leprosy Livelihood Training in RITM.

 

In relation to this, I would like to request for a short training course, preferably sponsored by the World Health Organization (WHO) on Leprosy so I can update myself on the current trends on this condition. I hope to gain new skills through courses of 2 to 3 months, which can be scheduled in 2024. This training will enhance the services I provide to RITM Leprosy patients especially the indigents. We are also implementing researches on Leprosy and with this training our research outputs will be enhanced.

 

I am look forward to hearing from you soon.

 

Thank you for considering my request.

 

Ricky Hipolito, MD

Medical Specialist II

Department of Dermatology

Research Institute for Tropical Medicine – Department of Health       

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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