Fw: Ref.: (LML) The agenda of the upcoming ILC and problems encountered in the field do not overlap

 

 

Leprosy Mailing List – July 13,  2022

 

Ref.: (LML) The agenda of the upcoming ILC and problems encountered in the field do not overlap

 

From:  Sunil Deepak, Schio, Italy

 

 

Dear Pieter,

 

Our on-going discussions with Ben, Salvatore and Wim are raising some important issues regarding ILC. I would like to touch on 2 points which had emerged in our discussions:

 

(1) Impact of payments on access to leprosy services: This issue has been regarding the situation in Indonesia. It might be useful to hear from persons from leprosy services and users in Indonesia regarding this subject.

 

I am also wondering if there are other countries where cost-related barriers may be affecting the access to leprosy services? I had heard something along these lines in China some ten years ago, but I am not sure if that is an issue today.  Persons from other countries can share information about introduction of paid access to leprosy services and its impact?

 

I also wonder if any research has been done and any articles have come out on this subject?

 

(2) Participation of persons affected with leprosy in the Congress: The issues about promoting the participation of persons affected with leprosy in the congress and the barriers they face in terms of registration fee, even for online participation, have also been raised. I know that ILEP and Sasakawa both support participation of delegates, especially through IDEA and national organisations. In Manila, there were about 50 persons affected with leprosy. They also had some parallel sessions and specific meetings.

 

Free access and waiving of registration fees for one group is likely to raise similar demands from others, specially from personnel working in field programmes. It might be an easier option for the organising committee to put recordings of all sessions on YouTube or the congress site for people to watch. However, that is my personal opinion. Perhaps someone from the ILC organising committee can answer this? 

 

On the other hand, bringing persons from countries who are excluded from these groups, can be a useful thing in promoting discussions about the specific issues they are facing today, but I have no idea how we can play a role in it.

 

Warm regards,

 

Sunil 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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