Fw: Ref.: (LML) Leprosy Review - September 2022

Leprosy Mailing List – September 8, 2022

 

Ref.:  (LML) Leprosy Review - September 2022

From:  Paul Saunderson, Ålesund, Norway

 

Dear Pieter,

I'm happy to report that the September issue of Leprosy Review is now freely available online at https://leprosyreview.org/articles

I've also attached the Table of Contents for your convenience.

With kind regards,

Paul

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

Online journal freely available at: https://leprosyreview.org/

CONTENTS

179 Editor's Choice – September 2022
P. Saunderson
Editorial

180 PEP4LEP research and its contribution to capacity building
L. Mieras, on behalf of PEP4LEP Consortium

Original Papers

184 Epidemiological trends of leprosy and case detection delay in East Hararghe Zone, Ethiopia: A baseline survey, E. Mamo, K. Bobosha, M. Legesse, F. Daba, K. Debelo, T. Leta, T. Hambridge, A. Schoenmakers, R. van Wijk, C. Kasang, L. Mieras, and J. H. Richardus

197 Leprosy indicators and diagnosis delay in Mogovolas, Meconta and Murrupula district of Nampula Province, Mozambique: A baseline survey, A. Marega, T. Hambridge, Y. P. Stakteas, A. Schoenmakers, R. van Wijk, L. Mieras, P. H. das N. M. Pires, A. M. Muloliwa, F. Mitano, and J. H. Richardus

209 Leprosy epidemiological trends and diagnosis delay in three districts of Tanzania: A baseline study
N. Mwageni, D. Kamara, R. Kisonga, B. Njako, P. Nyakato, A. Pegwa, S. Marco, W. Mayunga, R. Hebron, S. Kidula, J. E. Masenga, T. Hambridge, A. Schoenmakers, R. van Wijk, L. Mieras, C. Kasang, J. H. Richardus, and S. E. Mshana

224 A hospital-based cross-sectional study of clinico-epidemiological aspects of childhood leprosy with disability in the post-elimination era N. Joy, S. Patnaik, S. Nayak, A. N. Rout, and I. Mohanty

235 Sensory nerve transfer to restore sole sensation in Hansen's disease, P. Agarwal, and D. Sharma

243 Health seeking behaviour of leprosy affected patients at a tertiary leprosy hospital during the COVID-19 pandemic, S. Paul, Sridharan D., Santhosam R., Vinothkumar M., and I. Horo

254 Social stigma and mental health impairment in people with leprosy: An integrative review
R. M. P. G. Costa, M. A. Fernandes, G. P. G. Santos, D. de M. Rocha, A. M. R. dos Santos, and F. V. S. D. Avelino

265 Stigma and art therapy with Brazilian leprosy patients, M. de L. G. Fernandes, A. R. N. de Souza, M. D. T. Kenedi, A. J. L. A. da Cunha, A. L. Kritski, and M. K. Gomes

Letter

288 Improving funding transparency to advance leprosy research A. Tucker, C. Cassard, and D. Scollard

Obituary

290 Miss June Elizabeth Nash. 19 May 1951–14 June 2022, J. Ebenso

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Infoleps Choice of new (e) publications on leprosy

Ref.:   Infoleps Choice of new (e) publications on leprosy
From: N Koumans, Amsterdam, The Netherlands

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Dear Salvatore,

Thank you very much for circulating on the leprosy mailing list a selection of new publications on leprosy (see attachment).  Please contact me for full text versions.  Do you have publications on leprosy to share?  Please let me know!

With kind regards,

Nathalie Koumans

temporary Information Officer

INFOLEP

Postbus / P.O. Box 95005

1090 HA Amsterdam

The Netherlands

Tel: +31 20 5950530

Mob:

E-mail: InfoLep@Leprastichting.NL

Web: www.leprosy-information.org

CALL FOR PAPERS - For a special issue of Leprosy Review on Chemotherapy

Leprosy Mailing List – December 13^th, 2011

Ref.:   CALL FOR PAPERS - For a special issue of Leprosy Review on Chemotherapy

From: I Allen, Colchester, Essex, UK

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Dear Salvatore,

Would you be kind enough to put the attached  CALL FOR PAPERS on the Leprosy Mailing List please?

Thanks very much

All best wishes

Irene 

Mrs. Irene Allen

Assistant Editor

Leprosy Review

28 Middleborough

Colchester

Essex CO1 1TG

Tel: 01206 216730

Fax: 01206 762151

Survey on INFOLEP information services

Leprosy Mailing List – November 18th, 2011 

Ref.:   Survey on INFOLEP information services

From: C Voorend, Amsterdam, The Netherlands

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Dear Salvatore Noto,  

With regards to a survey on INFOLEP information services, I would kindly like to ask you to forward the herewith enclosed text to your readers.  Since I need to finish this evaluation by Wednesday already, I need to kindly ask you for passing this through as soon as possible.  May it be possible to notify them before the weekend?  Then I hope in 3 days time many people will be able to respond.

With many thanks in advance.  

Best regards,  

Carlijn Voorend

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Dear Dr. Noto,

Infolep/Netherlands Leprosy Relief would like to invite your readers for a short user-survey on Infolep's services.  We are currently evaluating the services of Infolep and the (future) information needs of the leprosy community.  We would highly appreciate the LML-subscribers (users and non-users) to fill in this short questionnaire before November 22nd.  This takes about 10-15 minutes and is accessible viahttps://www.surveymonkey.com/s/XJ3X5HX.

Infolep is the international knowledge centre for leprosy and related subjects (www.leprosy-information.org; www.infolep.org).  Infolep facilitates global access to many e-resources through the integrated ILEP / Infolep website.  Infolep is available for anyone involved in leprosy from researchers and students, to programme managers and field workers.  The library is based in the Netherlands.  Future strategic directions focus on becoming a decentralized multilingual, dynamic online portal (database with one interface) built up from Infolep’s collections and the collections of partners.

Questions or a request for a word-version of this survey can be pointed out to (c.voorend[at]leprastichting.nl , infolep@leprastichting.nl, or +31 20 59 50 530).

With many thanks in advance.

Yours sincerely,

Carlijn Voorend

Netherlands Leprosy Relief

Leprastichting / Netherlands Leprosy Relief (NLR)

Postbus / P.O. Box 95005

1090 HA Amsterdam

The Netherlands

Tel: +31 20 5950500

E-mail: C.Voorend(at)Leprastichting.NL

Web: www.leprastichting.nl

Infoleps Choice of new (e) publications on leprosy (7 March 2011)

Leprosy Mailing List –  March 12^th, 2011

Ref:     Infoleps Choice of new (e) publications on leprosy 2011 03 07

From:  Erlings J, Amsterdam, The Netherlands

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Dear Dr Noto;

Greetings from Infolep!  Below you will find a selection of new publications on leprosy.  Please contact me for full text versions.  Do you have publications on leprosy to share? Please let me know! 

With kind regards,

Jiske Erlings

Information Officer

Infolep Leprosy Information Services

Postbus / P.O. Box 95005

1090 HA Amsterdam

The Netherlands

Tel: +31 20 5950530

Fax: +31 20 6680823

E-mail: J.Erlings@Leprastichting.NL

Web: www.leprosy-information.org

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Articles

1: Atas M, Citirik M, Sönmez K. [Visual outcome of cataract surgery in leprosy patients.] Turkiye Klinikleri J Ophthalmol . 2011;20(1):26-30. (Turkish)

2: Borg J, Lindström A, Larsson S.
Assistive technology in developing countries: a review from the perspective of the Convention on the Rights of Persons with Disabilities. Prosthet Orthot Int. 2011;35(1):20-9 p.

Free full text online: http://www.leprosy-information.org/resource/assistive-technology-developing-countries-review-perspective-convention-rights-persons-disa

3: Contreras-Steyls M, López-Navarro N, Herrera-Acosta E, Castillo R, Ruiz del Portal G, Bosch RJ, et al.
The current challenge of imported leprosy in Spain : a study of 7 cases. Actas dermo-sifiliograficas. 2011.
Free full text online: http://www.leprosy-information.org/resource/current-challenge-imported-leprosy-spain-study-7-cases

4: Costa RD , Mendonça VA , Penido RA, Lyon S, Costa AM, Costa MD, et al.
Study of the profile of the neurotrophin BDNF in new leprosy cases before, during and after multidrug therapy. Arq Neuropsiquiatr. 2011;69(1):100-4.

Free full text online: http://www.leprosy-information.org/resource/study-profile-neurotrophin-bdnf-new-leprosy-cases-during-and-after-multidrug-therapy

5: Crawford CL, Hardwicke
PM. Experimental leprosy: a model of epithelioid cell granuloma. Int J Dermatol. 2011;50(3):255-61.

6: Mastrangelo G, da Silva Neto J, da Silva GV, Scoizzato L, Fadda E, Dallapicola M, et al.
Leprosy reactions: the effect of gender and household contacts. Mem Inst Oswaldo Cruz. 2011;106(1):92-6.
Free full text online: http://www.leprosy-information.org/resource/leprosy-reactions-effect-gender-and-household-contacts

7: Melão S, Blanco LF, Mounzer N, Veronezi CC, de Simões PW.[Epidemiological profile of leprosy patients in the extreme south of Santa Catarina between 2001 and 2007]. Revista da Sociedade Brasileira de Medicina Tropical. 2011;44(1):79-84. (Portuguese)

8: NSAGHA D, BISSEK A, NSAGHA S, NJUNDA A, ASSOB J, TABAH E, et al.Social stigma as an epidemiological determinant for leprosy elimination in Cameroon . Journal of Public Health in Africa . 2011.

Free full text online: http://www.leprosy-information.org/resource/social-stigma-epidemiological-determinant-leprosy-elimination-cameroon

9: Pinheiro RO, de Souza Salles J, Sarno EN, Sampaio EP.Mycobacterium leprae-host-cell interactions and genetic determinants in leprosy: an overview. Future Microbiol. 2011;6:217-30.

10: Ponte CM, Gurgel MH, Ponte GA, Ramos AV, Montenegro Júnior RM.
[Metabolic disorders in emerging and neglected infectious diseases.]. Arquivos brasileiros de endocrinologia e metabologia. 2010;54(9):785-92. (Portuguese)

Free full text online: http://www.leprosy-information.org/resource/metabolic-disorders-emerging-and-neglected-infectious-diseases

11: Shannon EJ, Sandoval FG, Morales MJ.In vitro thalidomide does not interfere with the activation of complement by M. leprae. J Drugs Dermatol. 2011;10(3):274-8.

12: Teixeira Junior GJ, Silva CE, Magalhães V.[Application of the diagnostic criteria for systemic lupus erythematosus to patients with multibacillary leprosy.]. Revista da Sociedade Brasileira de Medicina Tropical. 2011;44(1):85-90. (Portuguese).

Free full text online: http://www.leprosy-information.org/resource/application-diagnostic-criteria-systemic-lupus-erythematosus-patients-multibacillary-lepros

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Newsletters, Journals

IDEA Newsletter: issue 1.
Stigma Research & Action:  1^st issue! http://stigmaj.org/

WHO newsletter on Disability and Rehabilitation: issue 12.http://www.who.int/disabilities/publications/newsletter/dar_newsletter_issue12.pdf 

Infolep choice of new (e-)publications on leprosy (21 Feb 2011)

Leprosy Mailing List –  March 8^th, 2011

Ref.:   Infolep choice of new (e-)publications on leprosy 2011 02 21

From: Erlings J., Amsterdam , Netherlands

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Dear Dr Noto,

Greetings from Infolep!  Below you will find a selection of new publications on leprosy.  Please contact me for full text versions.  Do you have publications on leprosy to share? Please let me know! 

With kind regards,

Jiske Erlings

INFOLEP

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Articles

1: Antunes SL, Medeiros MF, Corte-Real S, Jardim MR, da Nery JC, Hacker MA, et al.Microfasciculation: a morphological pattern in leprosy nerve damage. Histopathology. 2011;58(2):304-11.

2: Awofeso N.
Leprosy control, public health paradigms and stigma. Aust N Z J Public Health. 2011;35(1):9-11.

Free full text online: http://onlinelibrary.wiley.com/doi/10.1111/j.1753-6405.2010.00662.x/pdf

3: Falus O.
[Leprosy - a stigmata in the 21st century.]. Orvosi hetilap. 2011;152(7):246-51. (Hungarian).

4: Iwata M.
[Clinical Aspects of Leprous Neuropathy.]. Brain and nerve = Shinkei kenkyu no shinpo. 2011;63(2):157-64. (Japanese).

5: Kai M, Nguyen Phuc NH, Nguyen HA, Pham TH, Nguyen KH, Miyamoto Y, et al.
Analysis of drug-resistant strains of mycobacterium leprae in an endemic area of Vietnam. Clin Infect Dis. 2011;52(5):e127-32.
Free full text online: http://cid.oxfordjournals.org/content/52/5/e127.full.pdf+html

6: Luna IT, Beserra EP, Alves MD, da Pinheiro PN.
[Adhesion to Leprosy treatment: inherent difficulties of the patients.]. Revista brasileira de enfermagem. 2010;63(6):983-90. (Portuguese).

Free full text online: http://www.scielo.br/pdf/reben/v63n6/18.pdf

7: Mastrangelo G, da Neto JS, da Silva GV, Scoizzato L, Fadda E, Dallapicol M.
Leprosy reactions: the effect of gender and household contacts. Mem Inst Oswaldo Cruz. 2011;106(1):92-96.

Free full text online: http://memorias.ioc.fiocruz.br/106(1)/106_1_2272.pdf

8: Matsuo C, Talhari C, Nogueira L, Rabelo RF, Santos MN, Talhari S.
[Borderline lepromatous leprosy.]. Anais brasileiros de dermatologia. 2010;85(6):921-2. (Portuguese)

Free full text online: http://www.scielo.br/pdf/abd/v85n6/en_v85n6a26.pdf

9: Ofosu AA, Bonsu G.
Case control study to determine the factors associated with leprosy in the sene district, brong ahafo region of ghana . Ghana Med J. 2010;44(3):93-7.

Free full text online:http://www.ghanamedj.org/articles/September2010/Final%20Leprosy%20case%20control%20study.pdf

10: Proto RS, Machado Filho CD, Rehder JR, Paixão MP, Angelucci RI.[Quality of life in leprosy: a comparative analysis between patients in the Amazon region and patients in Santo André in the ABC region of São Paulo , Brazil. ].Anais brasileiros de dermatologia. 2010;85(6):939-41.  (Portuguese)
Free full text online: http://www.scielo.br/pdf/abd/v85n6/en_v85n6a30.pdf

11: Rada E, Aranzazu N, Rodríguez V, Borges R, Convit J.[Serological and cellular reactivity to mycobacterial proteins in Hansen's disease]. Invest Clin. 2010;51(3):325-40. (Spanish)
Free full text online: http://www.scielo.org.ve/pdf/ic/v51n3/art04.pdf

12: Rodrigues MM, de Ximenes RA, da Dantas MM, Batista TD, de Freire AL.[UVB susceptibility as a risk factor to the development of lepromatous leprosy.]. Anais brasileiros de dermatologia. 2010;85(6):839-42. (Portuguese)

Free full text online: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0365-05962010000600009&lng=en&nrm=iso&tlng=en

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Other Publication(s)

Moran M, Guzman G, Henderson K, Abela-Oversteegen
L. G-finder 2010: Neglected disease research and development: is the global financial crisis changing R&D?. Sydney ; London : Policy Cures; 2011.

http://www.policycures.org/downloads/g-finder_2010.pdf

Summary of the published reports on the use of cyclosporine

Leprosy Mailing List –  February 26^th, 2011

Ref:    Summary of the published reports on the use of cyclosporine

From: Scollard D., Baton Rouge , LA , USA  

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Salvatore,

In response to Antonio’s question, here is a summary of the published reports on the use of cyclosporine from our review in 2006.  The references for its use in ENL are given below the table.

Best wishes,

David

David M. Scollard, M.D., Ph.D.

Chief, Clinical Branch

National Hansen’s Disease Programs

1770 Physician Park Dr .

Baton Rouge , LA   70816

Tel:  225-756-3713

FAX:  225-756-3819

e-mail:  DScollard@hrsa.gov

Web:  www.hrsa.gov/hansens

Source:

CLINICAL MICROBIOLOGY REVIEWS, Apr. 2006, p. 338–381 Vol. 19, No. 2.  .338–381, 2006

The Continuing Challenges of Leprosy

D. M. Scollard,* L. B. Adams, T. P. Gillis, J. L. Krahenbuhl, R. W. Truman, and D. L. Williams

Laboratory Research Branch, National Hansen’s Disease Programs,

Louisiana State University-SVM, Baton Rouge , Louisiana 70803

Table 8.  Effects of Immunosuppressive Agents on Leprosy Reactions.

Agent	Primary Mechanisms of Action	Effect on Type 1 Reaction	Effect on Type 2 Reaction
Thalidomide	Multiple dose-related mechanisms: inhibits TNF,  stimulates IL-2, inhibits IgM response   (333, 362)	0 (166)	++++   (275, 276, 367, 404)
Methotrexate	Anti-metabolite inhibiting lymphoid and myeloid proliferation (56)	nd a	++   (202)
Cyclosporin A	Inhibits IL-2 and other cytokines (27, 147, 211, 250)	++  (64. 116, 421)	+/-   (226, 261, 283, 418, 421)
Azathioprine	Purine antagonist;  inhibits lymphocyte proliferation;  exact mechanism unknown (27, 147)	+b                  (246)	+ b  (243)
Pentoxifylline	Inhibits TNF and other cytokines (321, 395)	+/-  (82, 275)	+/- (82, 276, 287,  331)
Mycophenolate mofetil	Blocks guanosine nucleotides, inhibiting proliferation of T- and B-cells (27, 147)	nd a	0 (47)
Corticosteroids	Blocks transcription factors AP-1 and NF6B;   Inhibit synthesis of many pro-inflammatory cytokines  (203, 341)	++++         (283)	+++            (276)

1. nd = no data available
2. Effect observed only in combination with prednisolone
   (References are enclosed in parentheses)

Kumar, B., S. Dogra, and I. Kaur. 2004. Epidemiological characteristics of leprosy reactions: 15 years experience from north India . Int J Lepr Other Mycobact Dis72:125-33.

  Miller, R. A., J. Y. Shen, T. H. Rea, and J. P. Harnisch. 1987. Treatment of chronic erythema nodosum leprosum with cyclosporine A produces clinical and immunohistologic remission. Int J Lepr Other Mycobact Dis 55:441-9.

  Naafs, B. 2003. Treatment duration of reversal reaction: a reappraisal. Back to the past. Lepr Rev 74:328-36.

  Uyemura, K., J. F. Dixon, L. Wong, T. H. Rea, and R. L. Modlin. 1986. Effect of cyclosporine A in erythema nodosum leprosum. J Immunol 137 :3620-3.

  van Gompel, A., E. van den Enden, and J. van den Ende. 1994. Cyclosporin A is not very effective in erythema nodosum leprosum (ENL). Trop Geogr Med 46:331.

Infolep choice of new (e-)publications on leprosy

Leprosy Mailing List – February 17^th, 2011

Ref.:   Infolep choice of new (e-)publications on leprosy

From: Erlings J., Amsterdam , Netherlands

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Dear Dr Noto,

Greetings!

Below you will find a selection of new publications on leprosy.  Please contact me for full text versions.  Do you have publications on leprosy to share? Please let me know! 

With kind regards,

Jiske Erlings

INFOLEP Leprosy Information Services

P.O. Box 95005 Ι 1090 HA  Amsterdam
Netherlands

Tel.: + 31 20 5950530  Fax: +31 20 6680823

E-mail:  infolep(at)leprastichting.nl

E-mail: J.Erlings(at)Leprastichting.NL

Web: http://www.ilep.org.uk/library-resources/infolep-information-services/

Web: www.leprastichting.nl

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Journals

New issue of Leprosy Review, 2010, issue no.4 Download articles from: http://www.leprahealthinaction.org/lr/Dec10/Lep346-347.pdf

1: Di Martino Ortiz B, Masi MR, Knopfelmacher O, de Lezcano LB. [Childhood leprosy: Report of a case.]. Dermatology online journal. 2011;17(1):13.

Free full text available from: http://dermatology.cdlib.org/1701/8_vignette/13_10-00171/ortiz.html

2: Forastiero R, Martinuzzo M, De Larrañaga G, Vega-Ostertag M, Pierangeli S. Anti-?(2) glycoprotein I antibodies from leprosy patients do not show thrombogenic effects in an in vivo animal model. Journal of thrombosis and haemostasis : JTH. 2011.

3: Franco L, de Carvalho GL, Carneiro HM, Pinto SA, de Carvalho RM. [Medial canthus necrosis associated with Hansen's disease: case report.]. Arquivos brasileiros de oftalmologia. 2010;73(6):539-40.

Free full text available from:  http://www.scielo.br/pdf/abo/v73n6/v73n6a16.pdf

4: Gertler PJ, Martinez S, Premand P, Rawlings RB, Vermeersch CM. Impact evaluation in practice. Washington : World Bank; 2010.
Free full text available from:http://siteresources.worldbank.org/EXTHDOFFICE/Resources/5485726-1283444590513/IEP_001-262_final.pdf

5: Hali F, Benchikhi H, Azzouzi S, Zamiati S, Latifi A, Sbai M. [Familial histoid leprosy.]. Annales de dermatologie et de venereologie. 2011;138(1):42-5.

6: Kai M, Nguyen Phuc NH, Nguyen HA, Pham TH, Nguyen KH, Miyamoto Y, et al. Analysis of drug-resistant strains of mycobacterium leprae in an endemic area of Vietnam. Clin Infect Dis. 2011;52(5):e127-32.

7: Ramien ML, Wong A, Keystone JS. Severe refractory erythema nodosum leprosum successfully treated with the tumor necrosis factor inhibitor etanercept. Clin Infect Dis. 2011;52(5):e133-5.

Free full text available from: http://cid.oxfordjournals.org/content/52/5/e133.full.pdf+html

8: Sampaio LH, Stefani MM, Oliveira RM, Sousa AL, Ireton GC, Reed SG, et al. Immunologically reactive M. leprae antigens with relevance to diagnosis and vaccine development. BMC infectious diseases. 2011;11(1):26.
Free full text available from: http://www.biomedcentral.com/content/pdf/1471-2334-11-26.pdf

9: Teixeira F, Ribeiro A, Bogas M, Afonso C, Araújo D. [Chronic tophaceous arthropathy and leprosy in the same patient.]. Acta reumatologica portuguesa. 2010;35(5):526-8.

10: Wiker HG, Tomazella GG, de Souza GA. A quantitative view on Mycobacterium leprae antigens by proteomics. Journal of proteomics. 2011.

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Thesis

Slim FJ. Functioning with leprosy impairments in The Netherlands: the consequences and diagnosis of foot abnormalities. Amsterdam: University of Amsterdam; 2011.