Thursday, November 25, 2021

Fw: Ref.: (LML) info Hansen 2021

 

 
Leprosy Mailing List – November 25,  2021

 

Ref.:  (LML) info Hansen 2021

 

From:  Patricia Deps, Espirito Santo, Brazil

 

 

 

Dear Pieter,

I would like to introduce to you the third edition of info Hansen, which addresses challenges in Hansen's disease in Brazil.

The wide and varied content of the info Hansen website includes contributions from several countries, and up-to-date scientific writing. It provides access to chapters of the Clinical Practice in Hansen's Disease eBook, written and reviewed by experts in Hansen's disease, and the ever-expanding info Hansen Blog disseminates new, interesting and provocative scientific, social and political ideas about Hansen's disease.

Highlights of the third edition include an essay by Milton Moraes from FIOCRUZ about the NAT-HANS diagnostic test for Hansen's disease, describing the scientific partnerships which led to its production.

 

Essays from Jaison Barreto from Instituto Lauro de Souza Lima (ILSL) in Bauru (Brazil) and from Ximena Illarramendi from FIOCRUZ discuss MDT and relapses.


Claudio Tonello
from ILSL explains Hansen's disease reactions in a video lecture and short article, whilst a personal perspective on this painful condition, 'A day of pain' is provided by Patricia Soares from MORHAN-Bahia (Brazil).

Preservation of memory and the right to heritage is discussed in articles by Sônia Rampim from the Brazilian Institute for National Historical and Artistic Heritage (IPHAN) and by Amanda Caporrino & Adda Alessandra Ungaretti from São Paulo.

 

Lucas Delboni, a medical student, and Patrícia Deps write about support from persons affected in Brazil for the name change from leprosy to Hansen's disease (hanseníase).

In new video uploads to the info Hansen YouTube channel, you can watch an interview with Artur Custódio, President of MORHAN, talking about the obstacles and difficulties of a life dedicated to Hansen's disease advocacy in Brazil. 

 

There is a fascinating interview with Susilene Tonelli Nardi, who talks about the centenary of the Brazilian scientific journal, Hansenologia Internationalis, and Gerson Fernandes of the Brazilian Ministry of Health discusses his work on Hansen's disease and his thoughts on the future of Hansen's disease in Brazil.


Finally, the info Hansen YouTube channel has five new clinical lectures on Hansen's disease: (in Portuguese) Susilene Nardi on prevention of disabilities and use of assistive technologies, Adriana Cardozo on ocular manifestations, Maria de Jesus Alençar on post-MDT follow-up, Ana Lucila Moreira on elec troneuromyography and ultrasonography, and (in English) Henk Eggens on capacity building.

As a digital platform, info Hansen aims to disseminate what is being done in Brazil and the world to improve the lives of persons affected by Hansen's disease, as well as new scientific findings and personal and ethical reflections. It provides a channel of communication with people from different parts of the world, and information is published whenever possible in Portuguese, Spanish, English and French.

In this spirit, we warmly invite international contributors to contribute new lectures in these and other languages.

To learn more, please visit www.infohansen.org

Sincerely,

 

Patricia D. Deps, MD, MSc, PhD
Dermatology and Hansen's disease
Full Professor. Department of Social Medicine
Postgraduation Programme of Infectious Diseases
Federal University of Espirito Santo
Vitória-ES. Brazil
Phone + 55 27 99999 6390
https://orcid.org/0000-0002-9707-1934

www.infohansen.org

 


LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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