Showing posts with label IDEA. Show all posts
Showing posts with label IDEA. Show all posts

Monday, April 15, 2013

Dr. P. K. Gopal Receiving Padma Shri Award


Ref.:   (see Dr. P. K. Gopal Receiving Padma Shri Award
From: U Thakar, Mumbai, India


Dear Dr. Salvatore Noto,

It is our great pleasure to inform you that, Dr. P. K. Gopal, President, IDEA (Integration, Dignity & Economic Advancement of people affected by leprosy) India and Chairman, National Forum, has been conferred the most prestigious PADMA SHRI AWARD on 22.3.2012 at the hands of the President of India.

Attaching herewith his biographical sketch and photograph while receiving PADMA SHRI AWARD.

We request you to upload this news on your mailing.

Thanks and regards.

Yours,

Mr. Uday Thakar, Mr. Venu Gopal and Mr. Bhimrao Madhale
Advisor, Trustee, Trustee
National Forum  

Friday, March 18, 2011

IDEA newsletter Vol. 14, No. 1, 2010

Leprosy Mailing List –  March 12th, 2011

Ref:     IDEA newsletter Vol. 14, No. 1, 2010
From:  Erlings J, Amsterdam, The Netherlands



Dear Dr Noto;

In attachement is the above mentioned newsletter (PDF).

With kind regards,

Jiske Erlings
Information Officer
Infolep Leprosy Information Services
Postbus / P.O. Box 95005
1090 HA Amsterdam
The Netherlands
Tel: +31 20 5950530
Fax: +31 20 6680823
E-mail: J.Erlings(at)Leprastichting.NL

Thursday, December 11, 2008

Consultation on “Elimination of discrimination against persons affected by leprosy and their family members”. Geneva, 15 January 2009

Leprosy Mailing List, December 10th, 2008

Ref.: Consultation on “Elimination of discrimination against persons affected by leprosy and their family members”. Geneva, 15 January 2009
From: Soutar D., London, UK
<<Information Note -15 01 09 leprosy-related discrimination (2).doc>>


Dear Salvatore,

Please can you post the attached information on an important consultation being held in Geneva on 15th January? I should also note that the Nippon Foundation/Sasakawa Memorial Health Foundation are also sponsoring a second day of informal consultation in the same place on the 16th January. I hope all those who are interested to ensure that there is contribution from people affected by leprosy will do all they can to facilitate their participation.
Regards,
Douglas Soutar

Mr Douglas Soutar
General Secretary
International Federation of Anti-Leprosy Associations
doug.soutar (at) ilep.org.uk
http://www.ilep.org.uk/
Tel: + 44 (0)20 7602 6925

Monday, May 26, 2008

Report of Pre Congress Workshop on "Stigma, Identity and Human Rights"

Leprosy Mailing List, May 19th, 2008

Ref.: Report of Pre Congress Workshop on "Stigma, Identity and Human Rights"
From: Gopal P. K., Coimbatore, India



Dear Dr. Noto,I have attached herewith the Report of Pre Congress Workshop on "Stigma, Identity and Human Rights" of 17th International Leprosy Congress. Kindly publish this for the benefit of Leprosy Mailing List readers.

With kind regards,

Dr. P. K. Gopal,
President, IDEA

Friday, May 23, 2008

“COPE” (client-orientated, provider-efficient)

Leprosy Mailing List – March 30th, 2008

Ref.: “COPE” (client-orientated, provider-efficient)
From: Awcock D., Phnom Penh, Cambodia

Dear Dr Noto,
I refer to Dr Ruth Butlin’s LML message dated March 21st 2008. The editorial and article from the BMJ do indeed make interesting reading and illustrate very clearly just how complicated the issue of participation has become.
I am not too concerned about the terminology –whether the people involved are patients, users or clients, or clinicians, providers or staff - these are matters of individual preference or particular circumstance. What I think should concern us more is the extent to which apparent confusion about the purpose and process of participation limits the usefulness and cost-effectiveness of studies such as the one so honestly described in the article.

Many staff have a very clear idea of 'what it is like to be a patient here', and they act on that knowledge where necessary and appropriate, but others have no idea at all. In my experience it is sometimes necessary to both give patients a voice and teach staff to listen. I have found that a framework called COPE can be helpful where patients are generally not very assertive or articulate.
COPE stands for client-orientated, provider-efficient and is a self assessment tool that can be adapted to a specific location and type of activity. The assessment is carried out by staff with the involvement of patients and their own managers. This means that the assessment addresses the needs of the staff (for training, resources, new policies, encouragement, whatever) as well as the needs identified by patients. No issues that concern patients or staff have to be excluded because they are outside the control of the staff. And the record of the assessment provides the evidence that it has been done and in what ways if any it was beneficial.

I have used COPE in a variety of settings and seen it lead to significant improvements in the patient experience and the job satisfaction of the staff but sometimes it doesn't work because it is the wrong tool for the particular situation or time. For anyone interested, more information can be found on the website www.engenderhealth.org including a free downloadable handbook.
Yours sincerely,David AwcockCambodia

Participation

Leprosy Mailing List – March 21st, 2008

Ref.: Participation
From: Butlin Ruth C., Bangladesh
20.02.08Dear Dr Noto,

Many leprosy projects nowadays recognize a need to have participation from “beneficiaries” at all levels in their undertakings (i.e. in planning, implementation, & monitoring). This is difficult in practice, and sometimes attempts are abandoned despite an ideological commitment to the concept.

It is not always clear what is meant by “participation”, and various terms are used for the individuals who are expected to “participate”: they may include past users of services & current users, even potential (future) users of the services, they may be referred to as “clients”, and may sometimes be regarded as “consumers”. How to measure “success” in facilitating participation or how to quantify the benefits of participation is debatable. We would do well to learn from others` experience, including the experiences of those who work outside the leprosy field.

In this context, I would like to draw attention of readers of the “leprosy mailing list” to a most interesting recently-published article by Fudge et al (1.) in the British Medical Journal, and the accompanying editorial (2.).

This article reports work with “survivors of stroke” who are a group who have much in common with leprosy-affected people, there fore I feel it is relevant even though it was carried out in England where the cultural and economic situation differs from that in most leprosy-endemic countries.

Thank you,

Yours sincerely,

C Ruth Butlin

1.“Assessing the promise of user involvement in health service development: ethnographic study”. Nina Fudge Charles D A Wolfe, Christopher McKevitt. BMJ (2008) vol 336, p 313- 317. (Also available on line at BMJ 29th Jan 2008, doi:10.1136/bmj.39456.552257.BE)
2.“Involving users in developing health services - representation is not enough: voices must be translated into action”. Gillian Craig. BMJ (2008) vol 336 p 286-287 (on line at BMJ 29th jan 2008, doi:10.1136/bmj.39462.59875.80)