Fw: Ref.: (LML) Local talent

 

 
Leprosy Mailing List – October 27,  2021

 

Ref.:  (LML) Local talent

 

From:  Joel Almeida, London and Mumbai

 

 

Dear Pieter & colleagues,

 

Volunteers in India came together to produce a reasonably good mapping and monitoring real time system to track COVID 19 reports.

 

https://www.covid19india.org/

 

This was for COVID, not HD. Yet, it suggests the importance of attracting and empowering top local talent. Not every bright young person in endemic countries will choose to devote all their time to fighting HD. However, if they contribute even part of their time, it can help transform outcomes.

 

Pre-cooked measures imposed on endemic countries tend to have disappointing outcomes and impact. That is because they sideline an important ingredient in highly effective interventions: the skill and devotion of highly talented front line staff and volunteers who are keen to improve things.

 

In the old days endemic countries were regarded as the limbs and affluent countries as the brains. Now it is commonplace to see people from endemic countries as the CEOs of large corporations (eg Microsoft, Google/Alphabet, Adobe etc). The world of business is interested in financial outcomes, not in maintaining old preconceptions. In HD we are interested in health outcomes.

 

A conscious effort to attract and finance top talent in endemic countries is likely to help improve outcomes and impact in HD.

 

Best,

 

Joel Almeida

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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Fw: Ref.: (LML) Leprosy in wild chimpanzees

 

Leprosy Mailing List – October 22,  2021

 

Ref.:  (LML) Leprosy in wild chimpanzees

 

From:  Henk Eggens, Santa Comba Dão, Portugal

 

Dear Pieter,

I would like to alert LML-readers on the following article in Nature:
Published: 13 October 2021

Leprosy in wild chimpanzees
Kimberley J. Hockings et al.

https://doi.org/10.1038/s41586-021-03968-4

Abstract
Humans are considered as the main host for Mycobacterium leprae, the aetiological agent of leprosy, but spillover has occurred to other mammals that are now maintenance hosts, such as nine-banded armadillos and red squirrels. Although naturally acquired leprosy has also been described in captive nonhuman primates, the exact origins of infection remain unclear. Here we describe leprosy-like lesions in two wild populations of western chimpanzees (Pan troglodytes verus) in Cantanhez National Park, Guinea-Bissau and Taï National Park, Côte d'Ivoire, West Africa.
Longitudinal monitoring of both populations revealed the progression of disease symptoms compatible with advanced leprosy. Screening of faecal and necropsy samples confirmed the presence of M.leprae as the causative agent at each site and phylogenomic comparisons with other strains from humans and other animals show that the chimpanzee strains belong to different and rare genotypes (4N/O and 2F). These findings suggest that M.leprae may be circulating in more wild animals than suspected, either as a result of exposure to humans or other unknown environmental sources.


Best,

Henk Eggens

---
Henk Eggens

(henk.eggens@gmail.com)

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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Fw: Ref.: (LML) Infolep monthly overview of new publications on leprosy - Oct '21

 

Leprosy Mailing List – October 14, 2021

 

Ref.:  (LML) Infolep monthly overview of new publications on leprosy - Oct '21

 

From:  Anniek Akerboom, Amsterdam, the Netherlands

 

Dear colleagues, 

Infolep is keen to receive feedback from you! You can now take part in our short survey "How can we best serve your information needs?". Your input is essential for us to be of excellent service to you, so please click here to take part.

The WHO Department of Control of NTDs has put out a call for consultation on the draft strategic framework for the integrated control of skin NTDs to support endemic countries to address these diseases. Please click here to provide your feedback until October 15th.

The Global Partnership for Zero Leprosy and the National Leprosy Programme of Côte d'Ivoire reviewed the country's leprosy activities and created a national Zero Leprosy Roadmap. In the video "The Path to Zero Leprosy in Côte d'Ivoire" Dr. Roch Christian Johnson shares the results of the country review and road-mapping process and explains the next steps for leprosy control in Côte d'Ivoire. Click here to watch the video.

Below you will find the list of new publications on leprosy and interesting events. Feel free to contact me to receive full-text versions if these cannot be found through the Infolep portal. Also, I would be happy to assist you with literature searches on Infolep.

Warm regards,

Anniek Akerboom

Infolep Coordinator
www.leprosy-information.org
a.akerboom@infolep.org
 

 

 

Highlighted

 

Global leprosy (Hansen disease) update, 2020: impact of COVID-19 on global leprosy control
World Health Organization. Weekly epidemiological record. 2021; 96 (36) : 421–444.
 

WHO Global Leprosy Update for 2020
ILEP Technical Commission. ILEP. 2021.
 

An unfinished business: discrimination in law against persons affected by leprosy and their family members
Cruz A. United Nations. 2021.
 

Our journey together. Our journey ahead. A more responsive WHO in the South-East Asia Region.
World Health Organization. 2021.
 

 

 

Leprosy & COVID-19

 

Impact of the COVID-19 Pandemic on the Diagnosis of Leprosy in Brazil: An Ecological and Population-Based Study of a Millenary and Still Neglected Disease
Silva da Paz W, Souza MDR, Tavares DDS, et al. SSRN Electronic Journal. Elsevier BV. 2021.
 

 

 

New publications

 

Measuring endemicity and burden of leprosy across countries and regions: A systematic review and Delphi survey.
Ogunsumi D, Lal V, Puchner K, et al. PLoS neglected tropical diseases. 2021; 15 (9) : e0009769.
 

Effectiveness of self-care interventions for integrated morbidity management of skin neglected tropical diseases in Anambra State, Nigeria.
Eze C, Ekeke N, Alphonsus C, et al. BMC public health. 2021; 21 (1) : 1748. 
 

Disability Level, Physical Activity Limitations, Self-esteem and Self-efficacy of Persons Living with Leprosy in Selected States in Nigeria
Umunnah JO, Mmadieke OC, Amaechi IA, et al. Sierra Leone Journal of Biomedical Research. 2021; 13 (1) : 1-8.
 

Assessment of neuropathic pain in leprosy patients with relapse or treatment failure by infrared thermography: A cross-sectional study.
Tiago L, Santos D, Antunes D, et al. PLoS neglected tropical diseases. 2021; 15 (9) : e0009794. 
 

A clinicopathological and electrophysiological study of nerve involvement in leprosy in a tertiary care centre in South India
Celine MI, Jaleel A, Palakkal S, et al. Leprosy Review. Lepra. 2021; 92 (3) : 225-235.
 

Peripheral nerve sonography, a novel technique for improving the diagnosis of Hansen's neuropathy
Nagappa M, Visser LH, Bathala L. Leprosy Review. Lepra. 2021; 92 (3) : 202-206.
 

Late follow-up of peripheral neural decompression in leprosy: functional and clinical outcomes.
Tiago L, Barbosa M, Santos D, et al. Arquivos de neuro-psiquiatria. 2021; 79 (8) : 716-723. 
 

Perception of cure among leprosy patients post completion of multi-drug therapy.
Santos A, Silva P, Costa L, et al. BMC infectious diseases. 2021; 21 (1) : 916. 
 

A 5‑year evaluation of chemoprophylactic treatment in elementary school children with subclinical leprosy
Astari L, Sari N, Nanang K, et al. Biomedical Reports. Spandidos Publications. 2021.
 

The Role of Lipid and the Benefit of Statin in Augmenting Rifampicin Effectivity for a Better Leprosy Treatment
Habiburrahman M, Ariq H, Yusharyahya SN. Open Access Macedonian Journal of Medical Sciences. Scientific Foundation SPIROSKI. 2021; 9 (F) : 246-259.
 

Hansen's disease: life quality analysis according to clinical characteristics
Goulart LS, Alcantara de Oliveira I, Aparecida Rodrigues Nicacio R, et al. Scientific Electronic Archives. 2021.
 

Leprosy patients quality of life: a scoping review.
Barcelos R, de Sousa G, de Almeida M, et al. Revista da Escola de Enfermagem da U S P. 2021.
 

Avaliabilidade de coalizões para empoderamento de pessoas atingidas pela hanseníase
Brandão PS, Cruz MMD, Edmundo KMB. Revista Brasileira de Avaliação. Editora Cubo. 2021; 10 (2) : e101521.
 

Elders in a former brazilian leprosy colony: clinical and functional vulnerability and vocal and hearing self-perception.
de Jesus J, Ferreira F, Andrade A, et al. CoDAS. 2021; 33 (5) : e20200058.
 

Road map to the treatment of neglected tropical diseases: Nanocarriers interventions.
Joshi G, Quadir S, Yadav K. Journal of controlled release : official journal of the Controlled Release Society. 2021.
 

 

Evidence for hidden leprosy in a high leprosy-endemic setting, Eastern Ethiopia: The application of active case-finding and contact screening.
Urgesa K, Bobosha K, Seyoum B, et al. PLoS neglected tropical diseases. 2021; 15 (9) : e0009640.
 

Preventing leprosy with retrospective active case finding combined with single-dose rifampicin for contacts in a low endemic setting: results of the Leprosy post-exposure prophylaxis program in Cambodia
Cavaliero A, Sao SA, Aerts A, et al. Acta Tropica. Elsevier BV. 2021.
 

Effectiveness Analysis of Single Dose Rifampicin-Post-Exposure Prophylaxis (SDR-PEP) as A Preventive Intervention for Leprosy Transmission: A Systematic Review of Randomized Controlled Trials
Asyura MMAZ, Wijaya IR, Toshukowong T, et al. Journal of Public Health for Tropical and Coastal Region. Institute of Research and Community Services Diponegoro University (LPPM UNDIP). 2021; 4 (2) : 35-43.
 

BCG re-vaccination in Malawi: 30-year follow-up of a large, randomised, double-blind, placebo-controlled trial.
Glynn J, Fielding K, Mzembe T, et al. The Lancet. Global health. 2021; 9 (10) : e1451-e1459.
 

Characteristics of children with leprosy: Factors associated with delay in disease diagnosis.
Darlong J, Govindasamy K, Daniel A. Indian journal of dermatology, venereology and leprology. 2021.
 

Characteristics of Grade 2 Disability in Indonesian Children with Leprosy: A Five-Year Multicenter Retrospective Study
Gunawan H, Kamilia A, Menaldi SL, et al. Clinical, Cosmetic and Investigational Dermatology. Informa UK Limited. 2021.
 

Challenges in leprosy control actions in brazilian basic care
Martini LGC, Meneses ASSD, Pessoa Júnior JM, et al. Revista de Pesquisa Cuidado é Fundamental Online. Universidade Federal do Estado do Rio de Janeiro UNIRIO. 2021.
 

Detection of Mycobacterium leprae DNA in clinical and environmental samples using serological analysis and PCR.
da Silveira I, Neto J, Ferreira J, et al. Molecular biology reports. 2021.
 

Electrochemical DNA Biosensor for Mycobacterium leprae Identification
Afonso AS, Madurro JM, Brito-Madurro AG. Brazilian Archives of Biology and Technology. FapUNIFESP (SciELO). 2021.
 

Mycobacterium lepromatosis as a Second Agent of Hansen's Disease.
Deps P, Collin S. Frontiers in microbiology. 2021.
 

Clinical, histopathological, and molecular characterization of leprosy in an endemic area of the colombian caribbean.
Fragozo-Ramos M, Cano-Pérez E, Sierra-Merlano R, et al. International journal of mycobacteriology. 2021; 10 (2) : 155-161.
 

Autophagy-Associated IL-15 Production Is Involved in the Pathogenesis of Leprosy Type 1 Reaction
Silva BJDA, Bittencourt TL, Leal-Calvo T, et al. Cells. MDPI AG. 2021; 10 (9) : 2215. 
 

TLR-9 Plays a Role in Mycobacterium leprae-Induced Innate Immune Activation of A549 Alveolar Epithelial Cells.
Dias A, Silva C, da Silva C, et al. Frontiers in immunology. 2021.
 

Dermoscopic Patterns in Relation to the Clinicopathologic Manifestations of Leprosy
Gervasio MKR, Obbus SFV, Camaclang-Balmores MLA, et al. Acta Medica Philippina. University of the Philippines Manila. 2021.

 

 

 

Events

 

ISNTD Webinar Recording: Developing New Diagnostics for Neglected Tropical Diseases with the Community and Key Stakeholders
27 Jul 2021 | Virtual

RSTMH 2021 meeting: Drug resistant infections – causes, consequences and considerations
11-12 Oct 2021 | Virtual
 

 

The tenth EDCTP Forum
17-21 Oct 2021 | Virtual

COR-NTD 2021 Annual Meeting
8-10 Nov 2021 | Virtual

Women Leaders in Global Health Conference 2021
15-16 Nov 2021 | Virtual

 

 

Links

 

Info Hansen - A innovative hub for knowledge sharing about Hansen's Disease
 

ALLF - Official website of the Association des Léprologues de Langue Française
 

LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in leprosy to share ideas, information, experiences and questions
 

InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)

 

ILEP newsletter archive

GPZL newsletter archive

WHO Goodwill Ambassador's Leprosy Bulletin

Leprosy Review

Leprosy Review Repository (1928-2001)

Fontilles Revista de Leprología

Indian Journal of Leprosy

Hansenologia Internationalis

 

GDPR & the Infolep newsletter

 
New EU data protection regulations came into force on 25 May 2018. We have been reviewing our practices with regards to the GDPR, including our privacy statement and mailing list.

Infolep sends out monthly e-mails with an overview of recent publications on leprosy and related issues. The purpose of this activity is to keep subscribers up to date.

Infolep will only process the data we have (names, email addresses) for the purpose of sending you the newsletter. We take your security seriously and will never share your contact details with anyone else.

You can update your preferences or unsubscribe from this list at any time.

 

Send us an email

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LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 

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Fw: Ref.: (LML) Effectiveness of self-care interventions for integrated morbidity management of skin neglected tropical diseases in Anambra State, Nigeria

 

Leprosy Mailing List – October 2,  2021

 

Ref.:  (LML) Effectiveness of self-care interventions for integrated morbidity management of skin neglected tropical diseases in Anambra State, Nigeria

 

From:  Linda Lehman, New Mexico, USA

 

Dear Pieter,

 

 

For your and LML interest: this was just published.  

 

BMC Public Health

Effectiveness of self-care interventions for integrated morbidity management of skin neglected tropical diseases in Anambra State, Nigeria

Chinwe C. Eze, Ngozi Ekeke, Chukwuka Alphonsus, Linda Lehman, Joseph N. Chukwu, Charles C. Nwafor, Eileen Stillwaggon, Anthony O. Meka, Larry Sawers, Joy Ikebudu, Moses C. Anyim, Kingsley N. Ukwaja

 

 

 

 

Linda F. Lehman, OT MPH

WhatsApp and USA Cell phone USA:  +1 505 504 8749

lfayelehman@gmail.com

SKYPE: lflehman

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder <<

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FW: Ref.: (LML) WHO Goodwill Ambassador's Leprosy Bulletin NO. 105, SEPTEMBER 2021

 

 

 

 

 
Leprosy Mailing List – October 2,  2021

 

Ref.:  (LML) WHO Goodwill Ambassador's Leprosy Bulletin NO. 105, SEPTEMBER 2021

 

From:  Takahiro Nanri, Tokyo, Japan

 

 

Dear Dr. Schreuder and Friends,   

Warm greetings from Sasakawa Health Foundation/Sasakawa Leprosy (Hansen's Disease) Initiative in Tokyo.
 
We have issued WHO Goodwill Ambassador's Leprosy Bulletin NO. 105 SEPTEMBER 2021 "Human rights for all" today. In this issue, we feature: 

 

MESSAGE FROM THE AMBASSADOR
As part of the 10-month "Don't forget leprosy" campaign that kicked off in August, I am sharing reflections on my role and how I have approached it. For this issue of the Leprosy Bulletin, I would like to explain how a focus on human rights became an important part of my efforts.  Read More 

 

INTERVIEW - Michelle Bachelet, United Nations High Commissioner for Human Rights

 

We need policies that uphold human dignity
LB (Leprosy Bulletin): In the speech you contributed for the launch of this year's Global Appeal to End Stigma and Discrimination against Persons Affected by Leprosy, you stated that "leprosy remains a neglected and stigmatized disease." What do you think can be done to change this?

MB (Michelle Bachelet): First, we need more awareness and understanding of the impact that stigma and discrimination have on the dignity and rights of persons affected by leprosy and their family members. Read more 

 

REPORT - Geoff Warne, Chief Executive Officer, International Federation of Anti-Leprosy Associations (ILEP)

 

Eliminating discriminatory laws
One of ILEP's key goals is to reduce to zero the number of countries with legislation allowing discrimination on the basis of leprosy. ILEP's database of discriminatory laws lists details of all known laws that still exist and discriminate against persons affected by leprosy and their family members. Read more 

 

REPORT - Aarti Thakur, Program Manager (Consultant), Disabled Peoples' International (DPI)

 

Disability and human rights
According to the World Report on Disability (2011), an estimated one billion people, or 15% of the world's population, experience some form of disability. Moreover, this number is rising because of medical advancements, rapidly aging population, spread of chronic diseases, and conflict and disaster situations. Read more 

 

LETTER - Tesfaye Tadesse, Managing Director, Ethiopian National Association of Persons Affected by Leprosy (ENAPAL)

 

ENAPAL's work on human rights issues in Ethiopia

Warm greetings from Ethiopia. I hope you, your family, and friends are all well. Ethiopia is located in the northeast of Africa and is known for its coffee beans and some of the oldest human fossils in the world. Most of the country is highland, with the capital, Addis Ababa, reaching an altitude of around 2,400 meters.  Read more 

 

OPINION- Tatsuya Tanami, Special Adviser (former Executive Director) , The Nippon Foundation　

 

Leprosy and human rights in the context of COVID-19
As the novel coronavirus has swept around the world, it has become clear that the disease it causes, COVID-19, bears some similarities to leprosy in the way that it can lead to stigma and discrimination. Read more 

 

DATA BOX

Quick reference guide: Principles and Guidelines

In 2008, Japan prepared a draft resolution on the elimination of discrimination against persons affected by leprosy and their family members to be submitted to the UN Human Rights Council. Following the resolution's adoption, the Advisory Committee formulated a draft set of principles and guidelines.  Read more 

 

ANNOUNCEMENT

Tribute to Dr. S.K. Noordeen (1933-2021)

The Leprosy Bulletin is saddened to announce the passing of Dr. S.K. Noordeen, a global leader in the fight against leprosy and a cherished friend. We are grateful to Dr. Derek Lobo for writing this tribute. Read more 

 

BACK ISSUES 

 

We hope that you would enjoy reading the latest Leprosy Bulletin. 

 

Takahiro NANRI, Ph.D.
Executive Director, Sasakawa Health Foundation
*********************************************************
Sasakawa Leprosy (Hansen's Disease) Initiative
Sasakawa Health Foundation
Tel：81-3-6229-5377, Fax：81-33-6229-5388
email: hansen@shf.or.jp
website: https://sasakawaleprosyinitiative.org/,  https://www.shf.or.jp
********************************************************* 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

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