Monday, August 28, 2017

(LML) WHO Ambassador’s Newsletter Issue No. 86

Leprosy Mailing List – August 28,  2017

Ref.:    (LML) WHO Ambassador's Newsletter Issue No. 86

From:  Hiroe Soyagimi, Tokio, Japan


Dear Dr Schreuder and Friends,


Warm greetings from Sasakawa Memorial Health Foundation in Tokyo. We have uploaded our latest edition of "WHO Goodwill Ambassador's Newsletter Issue No.86" on our website. Please visit  to obtain electronic version of this issue. 

In this issue we feature:

-       MESSAGE: A New UN Resolution

-       EXPLAINER: Leprosy and Human Rights

A quick refresher course on UN resolutions on leprosy and where we go from here.


-       OPINION: Life after Leprosy

Leprosy and its treatment affect people in different ways, but life must go on.

-       REPORT: Building Awareness to End Stigma

JCI National Organizations in four countries work to change attitudes toward leprosy.

-       AMBASSADOR'S JOURNAL: Meetings and More

The Goodwill Ambassador's travels take him to the United States and Europe.


-       NEWS: New Guidelines in the Making

Shaping the future of diagnosis, treatment and prevention of leprosy.




We hope you would enjoy reading our latest Newsletter!



Hiroe Soyagimi 

Sasakawa Memorial Health Foundation


Sasakawa Memorial Health Foundation


Tel 03-6229-5377 

Fax 03-6229-5388


visit our website at


LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link:

Contact: Dr Pieter Schreuder <<


Saturday, August 19, 2017

(LML) 27 years of Joyful services to leprosy patients by Madurai leprosy centre - India

Leprosy Mailing List – August 18,  2017

Ref.:  (LML) 27 years of Joyful services to leprosy patients by Madurai leprosy centre - India

From:  S. Maria Xavier Turtius, Madurai, Tamil Nadu, India


Dear Pieter,


Madurai Health and Leprosy Relief center is an NGO doing leprosy eradication and Rehabilitation services since the year of 1991. They celebrating 26th foundation day in 9th August 2016.  Thousands and thousands of leprosy affected people were benefited through this organization in which charitable services have been rendered.

This charity was founded by Dr .S. Maria Xavier in the year of 1991. The founder cum executive secretary Dr. S. Maria Xavier told our editor that India is a country where in leprosy affected people are in large number. Conducting leprosy awareness programme is very much needed to make them know about the symptom of leprosy and the ways to manage it and thereby reduce the number of leprosy affected people especially in Madurai district.

So our organization is conducting the awareness classes to the school children, college youths, rural peoples and women’s self-help groups. Through this programme we identified the new leprosy cases and treat them free of cost.

In the year of the 1999, we started the leprosy rehabilitation programme to the leprosy affected people, particularly deformed people. Due to this deformity they are not able to get the job like the normal human being and also most of our beneficiaries are un- educated.  The objective of this programme is to develop the economic condition of leprosy affected people (Income generating programme for leprosy affected). Through our rehabilitation programmes, we are supporting them financially for buying milky animals’ like goats, sheep, cows, starting petty shop and tea shop, development of vessel business, flower business etc. From 1999 to till now more than 70 persons were benefited through these rehabilitation programmes.

Our leprosy center ‘Mahelerecen Maruthuva Maiyam’ is working in Koodal Nagar -Chelliya Nagar, Madurai. Leprosy patients are coming from different parts of Madurai district for treatment; physiotherapy for leprosy patients is also available in the centre. Every month with support of ‘Velammal Medical College’ we are conducting special medical camp for the leprosy affected persons at our Mahelerecen Maruthuva Maiyam. (18th August also this special medical camp be held)

Other than the above, our medical team members are going through ‘Mobile Medical unit’ to the different part of villages in Madurai district and treat the leprosy affected. Due to illness some leprosy patients not able to travel to reach our leprosy centre for treatment.  So we are reaching the unreached.   

Guidelines of ‘Help Age India’, we formed the ‘Elders Self Help Groups’ in Madurai rural areas for the benefit of leprosy affected, other common disabled and elders. Through this groups to raise the savings mentality and also the social economic development for this uncared leprosy people in the society


During this time we often remember St. Mother Theresa and her service to leprosy affected. This Madurai charity is also doing the excellence service for the deserving community of leprosy affected. 


Thanking you,

Dr.S. Maria Xavier Turtius,
Executive Secretary

Madurai Health And Leprosy Relief Centre (MAHELERECEN)

12/10 Sister Rose Second Street,
Tamil Nadu,
Phone 91-452-2360159, Mobile :
E mail :
email : 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link:

Contact: Dr Pieter Schreuder <<




Friday, August 18, 2017

(LML) INFOLEP monthly mail with the latest publications on leprosy, August 2017

Leprosy Mailing List – August 18,  2017

Ref.: (LML) INFOLEP monthly mail with the latest publications on leprosy, August 2017  

From:  Jiske Erlings, Amsterdam, the Netherlands

Dear Pieter,


Greetings from Infolep!

Below you will find a selection of recent publications on leprosy and related subjects.

Feel free to contact me ( to receive the full text versions if a link to the full text is not provided. Assistance with your literature research is also possible.

We encourage readers of this mailing list to suggest additional documents of interest and to provide feedback on the articles selected.

With kind regards,
Jiske Erlings
Infolep Information officer



Highlighted publications



WHO Leprosy Fact sheet
June 2017:

Leprosy Review 
2017 2nd issue
now online

South Asian Water Studies special issue: Water Justice, Gender and Disability,%202017.pdf

International textbook of leprosy.  
Scollard DM, Gillis TP. American Leprosy Missions. 2016.
Read online



New publications



Lepromatous leprosy simulating rheumatoid arthritis - Report of a neglected disease.
de Andrade TCPC, Martins TY, Vieira BC, et al.
An Bras Dermatol. 2017; 92(3):389–391.
Download PDF

[Health professionals' and managers' perception of leprosy care within the family health strategy.]
Andrade Girão Neta O, Maria Melo Soares Arruda G, Maria Barbosa de Carvalho M, et al.
Promoção da saúde. 2017; 30(2):239-248.
Download PDF

When Pain is Beyond Biology - A Case of Fake Leprosy.
Avila LA, de Pozetti EMO, Fares GF, et al. Open Pain J. 2017; 10:22-28.
Download PDF

Bullous Erythema Nodosum Leprosum as the First Manifestation of Multibacillary Leprosy: A Rare Phenomenon.
Bakshi N, Rao S, Batra R. Am J Dermatopathol. 2017.
Read abstract

Extensive sonographic ulnar nerve enlargement above the medial epicondyle is a characteristic sign in Hansen's neuropathy.
Bathala L, N Krishnam V, Kumar HK, et al. PLoS Negl Trop Dis. 2017 Jul 28;11(7).
Download PDF

Health-related stigma related to leprosy: What can be learned from nurses in Ghana?
Bergman L, Britton A, Kneck Å. Nord J Nurs Res. 2017
Read abstract

A synopsis of the history of Hansen's disease.
Couto Dal Secco RG, França K, Castillo D, et al.
Wien Med Wochenschr. 2017 Aug 11.
Read abstract

[The nurse's view on leprosy treatment in primary health care.]
Dayanne Alves Ribeiro M, da Silva Castillo I, Carlos Araujo Silva J, et al.
Promoção da saúde. 2017; 30(2):221-228.
Download PDF

Leprosy - an overview of clinical features, diagnosis, and treatment.
Fischer M. J Dtsch Dermatol Ges. 2017; 15(8):801-827.
Download PDF

Multidrug-resistant tuberculosis and leprosy: An unsolved mystery.
Gupta R, Garg K, Bhalla M, et al. Lung India. 2017; 34(4):364-367.
Download PDF

Adverse reactions in leprosy patients who underwent dapsone multidrug therapy: a retrospective study.
Guragain S, Upadhayay N, Bhattarai BM. Clin Pharmacol. 2017 Jun 29;9:73-78.
Download PDF

The global burden of disease study 2013: What does it mean for the NTDs?
Herricks JR, Hotez PJ, Wanga V, et al. PLoS Negl Trop Dis. 2017 Aug 3;11(8):e0005424.
Download PDF

Epidemiological perspective of National Leprosy Eradication Programme in Maharashtra: Focusing on “Tribal Hot-spot” of Tribal District.
Katkar D, Mote BN, Adhav A, et al. Indian J Community Med. 2017; 42(3):174-176.
Download PDF

Barriers to prevent disability due to leprosy in children are breachable.
Long SS. J Pediatr. 2017 Jun;185:3.
Download PDF

Enhanced Worldwide Dermatology-Pathology Interaction via Facebook, Twitter, and Other Social Media Platforms.
Madke B, Gardner JM. Am J Dermatopathol. 2017 Aug 3.
Download PDF

Deciphering the genetic control of gene expression following Mycobacterium leprae antigen stimulation. Manry J, Nédélec Y, Fava VM, et al. PLoS Genet. 2017 Aug 9;13(8):e1006952.
Download PDF

Burden of Leprosy.
Martin RD, Gomez IF, Spies LA.
J Nurse Pract. 2017.
Read abstract

Indoleamine 2,3-dioxygenase and Iron are required for Mycobacterium leprae survival.
de Mattos Barbosa MG, da Silva Prata RB, Andrade PR, et al. 
Microbes Infect. 2017.
Read abstract

Leprosy in subjects under 15 Years: Epidemiological analysis in Brazil.
de Menezes MLN, das Figueiroa MN, Monteiro EMLM, et al.
Int Arch Med. 2017; 10(225).
Download PDF

Leprosy: The present of a disease from the past.
Monte RS, Pereira MLD, Frota MA, et al. Int Arch Med. 2017; 10.
Download PDF

Determinantes socias da hanseníase em um estado hiperendêmico da reião Norte do Brasil. / Social determinants of leprosy in a hyperendemic State in North Brazil.
Monteiro LD, Mota RMS, Martins-Melo FR, et al. Rev Saude Publica.
2017; 51:70.
Download Portuguese PDF
Download English PDF

Challenges beyond elimination in leprosy.
Naaz F, Mohanty PS, Bansal AK, et al. Int J Mycobacteriol. 2017; 6(3):222-228.
Download PDF

Fatores associados a capacidade functional de idosos com hanseniase./
Factors associated with the functional capacity of older adults with leprosy.

Nogueira PSF, Marques MB, Coutinho JFV, et al. Rev Bras Enferm.
2017 Jul-Aug;70(4):711-718.
Download Portuguese PDF
Download English PDF

Epidemiological profile of leprosy in a municipality in the Brazilian Northeast: a retrospective analysis.
de Oliveira LB, Alves ES, de Araújo TME, et al.
Rev Fund Care Online. 2017; 9(3):648-652.
Download PDF

Renal involvement in leprosy: evaluation of patients in Turkey.
Ozturk S, Ozturk T, Can I. Postepy Dermatol Alergol.
2017; 34(3):240-244.
Download PDF

Uniform multidrug therapy for leprosy patients in Brazil (U-MDT/CT-BR): Results of an open label, randomized and controlled clinical trial, among multibacillary patients.
Penna GO, Bührer-Sékula S, Kerr LRS, et al. PLoS Negl Trop Dis. 2017 Jul; 11(7):e0005725.
Download PDF

Mobile-phone and handheld microscopy for neglected tropical diseases.
Rajchgot J, Coulibaly JT, Keiser J, et al. PLoS Negl Trop Dis. 2017; 11(7):e0005550.
Download PDF

Limitation of activity and restriction of social participation in relation to age range, gender, and education in people with leprosy.
Reis BM, de Castro SS, Fernandes LFRM. An Bras Dermatol. 2017; 92(3):335–339.
Download PDF

Autochthonous leprosy in the eastern United States is from international migration, not from armadillos. Rendini T, Levis W. JAAD Case Rep. 2017 Jul 27;3(4):370.
Download PDF

Rifampicin-induced immune allergic reaction.
Sadanshiv M, George AA, Mishra AK, et al. Trop Doct. 2017 Jan 1:49475517724689.
Read abstract

Genetic polymorphisms of the IL6 and NOD2 genes are risk factors for inflammatory reactions in leprosy.
Sales-Marques C, Cardoso CC, Alvarado-Arnez LE, et al.
PLoS Negl Trop Dis. 2017; 11(7):e0005754.
Download PDF

Heart rate variability in multibacillar leprosy: Linear and nonlinear analysis.
de Santos MCS, de Silveira LCL, Moura-Tonello SCG, et al.
PLoS ONE. 2017; 12(7):e0180677.
Download PDF

Multidrug therapy for leprosy: a game changer on the path to elimination.
Smith CS, Aerts A, Saunderson P, et al. Lancet Infect Dis. 2017 Jul 7.
Read abstract

Innovative tools and approaches to end the transmission of Mycobacterium leprae.
Steinmann P, Reed SG, Mirza F, et al. Lancet Infect Dis. 2017 Jul 7.
Read abstract

Social stigma, adherence to medication and motivation for healing: A cross-sectional study of leprosy patients at Jember Public Health Center, Indonesia.
Susanti IA, Mahardita NGP, Alfianto R, et al. Journal of Taibah University Medical Sciences.
Download PDF

The distribution of leprosy cases with physical disability in the state of Paraiba, Brazil, from 2001 to 2011.
Uchôa REM, de Brito KKG, de Santana EMF, et al. Rev Fund Care Online. 2017; 9(3):634-640.
Download PDF

Path analysis of the factors that influence the prevention of leprosy clients depression in leprosy hospital Sumberglagah Mojokerto, East Java, Indonesia.
Utami R, Haryanto J, Sajidin M. Int J Sci Res. 2017; 6(6):431-435.
Download PDF

A study of histological types of leprosy along with clinico-histopathological correlation in a Tertiary Centre from North Maharashtra region.
Vasaikar MS, Patil BM, Thakur RY. APALM. 2017; 4(3):A321-A324.
Download PDF

Leprosy: a mimicker of psoriasis.
Vora RV, Kota RKS, Pariath KA.
Egypt J Dermatol Venerol. 2017; 37(2):76-78.
Download PDF

A leprosy clinical severity scale for erythema nodosum leprosum: An international, multicentre
validation study of the ENLIST ENL Severity Scale.

Walker SL, Sales AM, Butlin CR, et al. PLoS Negl Trop Dis. 2017; 11(7):e0005716.
Download PDF



Journals & Newsletters



Community Eye Health Journal:

Disability, CBR & Inclusive Development:

Hansenologia Internationalis:

Indian Journal of Leprosy: 

Leprosy Review:
Leprosy Review Repository (1928-2001) :

Plos Neglected Tropical Diseases:
Revista de Leprología:
WHO Goodwill Ambassador’s Newsletter for the elimination of leprosy:




Websites & Services



Global Leprosy Programme

LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in this theme to share ideas, information, experiences and questions.

InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs)

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link:

Contact: Dr Pieter Schreuder <<



Tuesday, August 15, 2017

(LML) New publications on cross-cutting issues and NTDs, August 2017

Leprosy Mailing List – August 15,  2017

Ref.:   (LML) New publications on cross-cutting issues and NTDs, August 2017

From:  Ilse Egers, Amsterdam, the Netherlands

Dear Pieter,

This newsletter provides you with a selection of news items and recent publications on cross-cutting issues in NTDs. Our starting point is to add articles covering a wide variety of issues. Unfortunately, this is not always possible due to a limited diversity in and shortage of articles on cross-cutting issues and NTDs.

Feel free to contact us ( with any questions or to receive the full text versions if a link to the full text is not included. Our document delivery service is free!

Kind regards,
Ilse Egers
InfoNTD Information officer




Tonga, Pacific island state, eliminates lymphatic filariasis as a public health problem.
The Kingdom of Tonga in the Pacific Ocean may be small in population, but it is kicking big goals in public health. The World Health Organization (WHO) has validated that the country has eliminated lymphatic filariasis — also known as elephantiasis — as a public health problem.
Read more






New publications



“Unseen” Caregivers: The disproportionate gender balance and role of females in the home-based care of lymphatic filariasis patients in Malawi.
Martindale S, MacKenzie C, Mkwanda S, et al. Front Womens Health. 2017; 2(2):1-3.
Abstract This study examines the gender of home-based caregivers for people affected by lymphatic filariasis (LF) lymphoedema. Of the 35 cases who required daily assistance, 27 indicated the gender of the caregiver, of which 20 were female (74.1%), and most commonly daughters, sisters or school-aged girls. The role of female caregivers is ‘unseen’ and this has considerable domestic, educational and economic implications.
Download PDF

Dengue data and surveillance in Tanzania: a systematic literature review.
Ward T, Samuel M, Maoz D, et al. Trop. Med. Int. Health. 2017; 22(8):960-970.
Abstract Although there is evidence that dengue virus is circulating in Tanzania, the country lacks a dengue surveillance system. Consequently, the true estimate of dengue seroprevalence, as well as the incidence in the population, the frequency and magnitude of outbreaks is unknown. This study therefore sought to systematically review available dengue data from Tanzania.
Download PDF

Knowledge, attitudes and practices towards yaws and yaws-like skin disease in Ghana.
Marks M, Kwakye-Maclean C, Doherty R, et al. PLoS Negl Trop Dis. 2017; 11(7):e0005820.
Abstract Yaws is endemic in Ghana. The World Health Organization (WHO) has launched a new global eradication campaign based on total community mass treatment with azithromycin. Achieving high coverage of mass treatment will be fundamental to the success of this new strategy. An understanding of community knowledge, attitudes and practices related to yaws in Ghana and other endemic countries will be vital in designing effective community engagement strategies.
Download PDF

The global burden of disease study 2013: What does it mean for the NTDs?
Herricks JR, Hotez PJ, Wanga V, et al. PLoS Negl Trop Dis. 2017; 11(8):e0005424.
Abstract The results presented here indicate that, despite significant gains, much work remains in the fight against NTDs. There are still approximately 2.3 billion cases of NTDs, which cause a substantial global disease burden. It is critical that we as a global community continue our efforts to help end the suffering caused by NTDs. Helping nations to achieve health for the poorest of their citizens will be a step forward in achieving their Sustainable Development Goals. Finally, most of the NTDs are still underreported, and the quantification of their burden is limited by the data that are available. Therefore, screening and notification efforts for the NTDs should be increased in order to capture the true burden of these diseases. Understanding the true burden of NTDs is essential to track health progress, assess the impact of public health interventions, and inform evidence-based policy decisions.
Download PDF

Criteria to stop mass drug administration for Lymphatic filariasis have been achieved throughout Plateau and Nasarawa States, Nigeria.
Eigege A, Evans DS, Noland GS, et al. Am. J. Trop. Med. Hyg. 2017.
Abstract Nigeria has the largest population at risk for lymphatic filariasis (LF) in Africa. This study used a transmission assessment survey to determine whether mass drug administration (MDA) for LF could stop in 21 districts, of Plateau and Nasarawa States, Nigeria, after 8-12 years of annual albendazole-ivermectin treatment.
Read more

Lymphatic filariasis in Mainland Southeast Asia: A systematic review and meta-analysis of prevalence and disease burden.
Dickson B, Graves P, McBride W. Trop Med Infect Dis. 2017; 2(3).
Abstract Accurate prevalence data are essential for the elimination of lymphatic filariasis (LF) as a public health problem. Despite it bearing one of the highest burdens of disease globally, there remains limited reliable information on the current epidemiology of filariasis in mainland Southeast Asia. We conducted a systematic review and meta-analysis of available literature to assess the recent and current prevalence of infection and morbidity in the region.
Download PDF

Geospatial analysis of Buruli ulcer prevalence in Anambra North, Anambra State, Nigeria.
Franklin Ike I, Usman AK, Yelwa SA. J Prev Inf Cntrl. 2017; 3(1):1-8.
Abstract Although the true burden and the factors responsible for Buruli ulcer (BU) occurrence in Nigeria is not yet known, the disease has become an issue of great concern in some parts of the country, especially in Anambra State. It is against this background that this study analyzed the prevalence of BU in Anambra North with the objectives of determining the hotspots, trends and factors influencing the occurrence of the disease in the study area. The results show a variation in the temporal distribution of the disease.
Download PDF

Social stigma, adherence to medication and motivation for healing: A cross-sectional study of leprosy patients at Jember Public Health Center, Indonesia.
Susanti IA, Mahardita NGP, Alfianto R, et al. Journal of Taibah University Medical Sciences. 2017.
Abstract Social stigma surrounding leprosy patients (LPs) in the community is still related to the adherence of these patients to medication and to their internal motivation for healing. Unfortunately, the leprosy case programme has not been optimally established in public health centres (PHCs). The aim of this study was to assess the social stigma towards adherence to medication and motivation for healing among LPs in PHCs in Indonesia.
Download PDF

Lymphatic filariasis patient identification in a large urban area of Tanzania: An application of a community-led Mhealth system.
Mwingira U, Chikawe M, Mandara WL, et al. PLoS Negl Trop Dis. 2017; 11(7):e0005748.
Abstract Lymphatic filariasis (LF) is best known for the disabling and disfiguring clinical conditions that infected patients can develop; providing care for these individuals is a major goal of the Global Programme to Eliminate LF. Methods of locating these patients, knowing their true number and thus providing care for them, remains a challenge for national medical systems, particularly when the endemic zone is a large urban area.
Download PDF

Assessment of quality of life in patients with post kalaazar dermal leishmaniasis.
Pal B, Murti K, Siddiqui NA, et al. Health Qual Life Outcomes. 2017; 15(1):148.
Abstract Post kala-azar dermal leishmaniasis (PKDL) is a dermatological disorder caused by protozoal parasite Leishmania donovani. PKDL cases are thought to be a reservoir of parasites and may increase cases of visceral leishmaniasis. The disease is not life threatening but cosmetic disfigurement associated with it may impair the patients' quality of life. This study aimed to assess the health related quality of life in patients with post kalaazar dermal leishmanasis for the first time.
Download PDF

Community-based field implementation scenarios of a short message service reporting tool for lymphatic filariasis case estimates in Africa and Asia.
Mableson HE, Martindale S, Stanton MC, et al. mHealth. 2017; 3(28).
Abstract Lymphatic filariasis (LF) is a neglected tropical disease (NTD) targeted for global elimination by 2020. The mHealth tool ‘MeasureSMS-Morbidity’ allows health workers in endemic areas to use their own mobile phones to send clinical information in a simple format using short message service (SMS). The experience gained through programmatic use of the tool in five endemic countries across a diversity of settings in Africa and Asia is used here to present implementation scenarios that are suitable for adapting the tool for use in a range of settings.
Download PDF

Steps to sustainability: a road map for WASH.
Harvey A. Waterlines. 2017; 36(3):185-203.
Abstract This paper presents a strategy for achievement of Sustainable Development Goals 6.1 and 6.2 (universal access to clean water and to adequate sanitation and hygiene) in the context of rural Uganda. With participation of the Ministry of Water and Environment, a group of local government representatives have consulted in a series of workshops and meetings over the past five years.
Read more







Neglected Diseases in South East Asia: Building Capacity in Epidemiological Modelling
August 28-September 1, Kuala Lumpur, Malaysia
University of Malaya
Southeast Asia countries face common threats from infections, including neglected tropical diseases (NTDs) and neglected zoonotic diseases (NZDs) that particularly affect marginalized communities―the most vulnerable to exposure and least able to seek treatment. Understanding the transmission and control of infectious diseases can be aided by mathematical modelling, helping to predict disease outbreaks, quantify intervention impact, estimate economic and health-care burdens, and inform cost-effective public health strategies. This workshop will introduce participants to topics from bacterial & viral to helminth NTDs and NZDs through series of lectures and practicals followed by group discussions and Q&A sessions, addressing: a) basic models for vector-borne diseases; b) infection intensity frameworks for helminth infections, and c) models for zoonotic infections.
Read more

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link:

Contact: Dr Pieter Schreuder <<