Leprosy Mailing List �C September 20, 2023
Ref.: (LML) New Publications On Cross-Cutting Issues In NTDs. September, 2023
From: Roos Geutjes and Josephine Breman-Srivastava, Amsterdam, the Netherlands
Dear colleagues,
This month for Fungal Disease Awareness Week (18th �C 22nd of September), InfoNTD and Centers for Disease Control and Prevention's (CDC) Mycotic Diseases Branch would like to highlight chromoblastomycosis.
Did you know that in 2017, the World Health Organization (WHO) designated chromoblastomycosis as a neglected tropical disease (NTD)? Chromoblastomycosis is an implantation mycosis, meaning it is a fungal disease that affects cutaneous and subcutaneous tissues. A chronic fungal infection, chromoblastomycosis is caused by dematiaceous or black fungi. The most common fungi to cause chromoblastomycosis are Fonsecaea pedrosoi, F. monophora, Cladophialophora carrionii and Phialophora verrucosa, but species distribution varies by region. Chromoblastomycosis is found primarily among subsistence agricultural workers in tropical and sub-tropical regions. Affected patients often face stigma and may lose their ability to work.
Robust estimates of chromoblastomycosis disease burden do not exist because surveillance is lacking. Chromoblastomycosis is usually limited to the skin and subcutaneous tissue, and lesions are generally slow growing. When recognized early, chromoblastomycosis can be cured by early surgical resection. Chronic bacterial coinfection can occur with severe lesions, and in some instances malignant transformation to squamous cell carcinoma has been reported.
Diagnosis requires trained personnel and laboratory capacity. Current antifungal therapy is only partially effective, requires prolonged treatment (months to years), and is often too costly or unavailable in limited-resource settings.
Including chromoblastomycosis in NTD cross-cutting activities and funding could help improve understanding of the burden of chromoblastomycosis, including morbidity and impact on quality of life, and can improve diagnostic capacity and investment in treatment. If you are interested in forming a global chromoblastomycosis working group focused on public health understanding and interventions for this fungal disease, please fill out this link or contact Dallas Smith at rhq8@cdc.gov.
The openWHO published a new course on 'Chromoblastomycosis: Training for national and district-level health workers'; if you are interested to know more about the disease you can access the course by clicking here.
This newsletter contains a specific section on publications related to chromoblastomycosis; recently uploaded practical materials; a section introducing the NTD Inclusions Score Card (NISC) Tool; a list of new publications related to NTDs and cross-cutting issues, and a section on News and Events.
If you are attending the NNN and are interested in meeting us, please feel free to contact Roos Geutjes (r.geutjes@infontd.org)
Warm regards,
Roos Geutjes and Josephine Breman-Srivastava
www.InfoNTD.org
info@InfoNTD.org
Chromoblastomycosis Publications
Chromoblastomycosis
Queiroz-Telles F, de Hoog S, Santos DWCL, et al. Clinical Microbiology Reviews. American Society for Microbiology. 2017; 30 (1) : 233-276.
Endemic Chromoblastomycosis Caused Predominantly by Fonsecaea nubica, Madagascar
Rasamoelina T, Maubon D, Andrianarison M, et al. Emerging Infectious Diseases. Centers for Disease Control and Prevention (CDC). 2020; 26 (6) : 1201-1211.
The global burden of chromoblastomycosis
Santos DWCL, de Azevedo CDMPES, Vicente VA, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2021; 15 (8) : 1-26.
Diagnostic capacities and treatment practices on implantation mycoses: Results from the 2022 WHO global online survey
Milani B, Dagne DA, Choi HL, et al. PLOS Neglected Tropical Diseases. Public Library of Science (PLoS). 2023; 17 (6) : 1-20.
Epidemiology of implantation mycoses in the United States: An analysis of commercial insurance claims data, 2017 to 2021
Gold JA, Smith DJ, Benedict K, et al. Journal of the American Academy of Dermatology. Elsevier BV. 2023; 89 (2) : 427-430.
Practical materials
Chromoblastomycosis: Training for national and district-level health workers
World Health Organization . 2023.
NTD Inclusion Score Card (NISC) Tool
ILEP & InfoNTD. 2023.
Spot Diagnosis - Scabies
Skin Health Institute . Spot Diagnosis: A Podcast on Skin Disease and Dermatology. 2021.
Spot Diagnosis - Mycobacterium Ulcerans
Skin Health Institute . Spot Diagnosis - A Podcast on Skin Disease and Dermatology. 2022.
NTD Inclusion Score Card (NISC) Tool
The NTD Inclusion Score Card (NISC) Tool has been launched through Infolep & InfoNTD. Funded by ILEP, the NISC is a self-assessment tool developed for NTD organizations to track and measure their own performance in terms of inclusion and meaningful participation of persons affected by NTDs in policy and decision-making processes in their own organization.
It assesses performance in 7 domains: Performance in Governance, Programme Management, HR, Financial Resources, Accessibility, External Relations, and Communication. The tool is available in English, French, Portuguese, Spanish and Hindi.
If you are attending the 14th Annual NNN Conference make sure to attend the launch of the NISC on the 19th of September at 16:30 EAT.
Other new publications
Neglected tropical diseases in conflict-affected areas in Africa: an unknown burden
Aborode AT, Obianuju AF, Lawal L, et al. International Journal of Surgery: Global Health. Ovid Technologies (Wolters Kluwer Health). 2023; 6 (5) : 1-2.
Self-care treatment for lymphoedema of lymphatic filariasis using integrative medicine
Narahari SR, Aggithaya MG, Ryan TJ, et al. British Journal of Dermatology. Oxford University Press (OUP). 2023.
Decolonizing public and planetary health, or Chthulucene mediations
Kahambing JG. Journal of Public Health. Oxford University Press (OUP). 2023; 45 (3) : e607-e608.
How correlations between treatment access and surveillance inclusion impact neglected tropical disease monitoring and evaluation-A simulated study.
Clark J, Davis E, Prada J, et al. PLoS neglected tropical diseases. 2023; 17 (9) : 1-15.
An analysis of gender inclusion in Water, Sanitation and Hygiene (WASH) projects: Intention vs reality
Robinson HJ, Barrington D, Evans B, et al. Development Policy Review. Wiley. 2023.
No secondary impact of ivermectin mass drug administration for onchocerciasis elimination on the prevalence of scabies in northwestern Ethiopia.
Yirgu R, Middleton J, Fekadu A, et al. Transactions of the Royal Society of Tropical Medicine and Hygiene. 2023.
A mixed method analysis of the Botswana schistosomiasis control policy and plans using the policy triangle framework.
Gabaake K, Lucero-Prisno D, Thakadu O, et al. Global health research and policy. 2023; 8 (1) : 1-13.
Understanding the Role of Gender in Trichiasis Case Finding in Tanzania
Kishiki E, Kabona G, Mwangi G, et al. Ophthalmic Epidemiology. Informa UK Limited. 2023.
Factors Influencing Drug Compliance Among Adult with Lymphatic Filariasis in Indonesia: Findings From Nationwide Population-Based Health Survey
Ipa M, Astuti EP, Wahono T, et al. Asia Pacific Journal of Public Health. SAGE Publications. 2023.
Factors influencing adherence to treatment among people with leprosy in Costa Rica
Rivera ChavarrÃa A, Sánchez Hernández G, Espinoza Aguirre A. Leprosy Review. Lepra. 2023; 94 (3) : 208-217.
Psychosocial Aspects of Hansen's Disease
van 't Noordende AT, Dhondge S, van Brakel WH. Hansen's Disease. Springer International Publishing. 2023.
Broadening the research landscape in the field of snakebite envenoming: Towards a holistic perspective.
Gutiérrez J, Bolon I, Borri J, et al. Toxicon : official journal of the International Society on Toxinology. 2023.
The cultural policies of schistosomiasis control in China: a historical analysis
Zhou L. Parasitology Research. Springer Science and Business Media LLC. 2023.
Neglected Tropical Diseases
Montresor A. Sustainable Development Goals Series. Springer International Publishing. 2023.
Implementing patient�Cpublic engagement for improved health: Lessons from three Ghanaian community�\based programmes
Ankomah SE, Fusheini A, Derrett S. Health Expectations. Wiley. 2023.
Modelling morbidity for neglected tropical diseases: the long and winding road from cumulative exposure to long-term pathology
Borlase A, Prada JM, Crellen T. Philosophical Transactions of the Royal Society B: Biological Sciences. The Royal Society. 2023; 378 (1887) : 1-16.
Scientific literature on neglected tropical diseases: a bibliometric analysis.
Tebano G, Vanino E, Muratori P, et al. Pathogens and global health. 2023.
How and why snakebite became a global health priority: a policy analysis.
Bhaumik S, Zwi A, Norton R, et al. BMJ global health. 2023; 8 (8) : 1-14.
Understanding gender and its intersection with social stratifiers on prevention and care seeking behavior of lymphatic filariasis in Nepal.
Arjyal A, Parajuli A, Kharel C, et al. Infectious diseases of poverty. 2023; 12 (1) : 1-14.
Reaching the World Health Organization elimination targets for schistosomiasis: the importance of a One Health perspective
DÃaz AV, Walker M, Webster JP. Philosophical Transactions of the Royal Society B: Biological Sciences. The Royal Society. 2023; 378 (1887) : 1-11.
How important is the spatial movement of people in attempts to eliminate the transmission of human helminth infections by mass drug administration?
Collyer B, Truscott J, Mwandawiro C, et al. Philosophical transactions of the Royal Society of London. Series B, Biological sciences. 2023; 378 (1887) : 1-9.
Mutual Role of Patients and the Healthcare System in the Control of Cutaneous Leishmaniasis
Bamorovat M, Sharifi I, Agha Kuchak Afshari S, et al. Transboundary and Emerging Diseases. Hindawi Limited. 2023.
Systematic review with meta-analysis: Prevalence, risk factors, and challenges for urinary schistosomiasis in children (USC)
Masdor NA, Kandayah T, Amsah N, et al. PLOS ONE. Public Library of Science (PLoS). 2023; 18 (8) : 1-14.
High Level of Knowledge about Tungiasis but Little Translation into Control Practices in Karamoja, Northeastern Uganda
Thielecke M, McNeilly H, Mutebi F, et al. Tropical Medicine and Infectious Disease. MDPI AG. 2023; 8 (9) : 1-17.
Strengthening adult mosquito surveillance in Africa for disease control: Learning from the present
Coulibaly ZI, Gowelo S, Traore I, et al. Current Opinion in Insect Science. Elsevier BV. 2023.
The significance of education in the preparedness for zoonotic diseases
Uribe Corrales N. Epidemic Preparedness and Control [Working Title]. IntechOpen. 2023.
Mapping of infection prevention and control education and training in some countries of the World Health Organization's Eastern Mediterranean Region: current situation and future needs
Moghnieh R, Al-Maani AS, Berro J, et al. Antimicrobial Resistance & Infection Control. Springer Science and Business Media LLC. 2023; 12 (1) : 1-12.
Infectious disease control: from health security strengthening to health systems improvement at global level
Zhang X, Jin Y, Lu Y, et al. Global Health Research and Policy. Springer Science and Business Media LLC. 2023; 8 (1) : 1-8.
News & Events
Call for Papers for Supplement: Intersectoral collaboration and integrative governance on the road for health in all policies
Research that appraise intersectoral collaboration in areas such as: The Environment and Health; Nutrition; Urban Health; School Health; Universal Health Coverage and primary health care; WASH; One Health; and Humanitarian crisis and migration. This list is not exclusive.
Original research articles as well as review papers are invited. Submission deadline is the 30th of September 2023.
For All to Thrive: NTD Progress, Challenges, and Learning
September 22, 2023; 8:00 - 15:30 CEST; Livestream
A global event organized by USAID's Act to End NTDs to celebrate progress, address challenges, and share learnings from more than 20+ countries working to control and eliminate NTDs. Ministries of Health, NGO's, and partners will share experiences and facilitate a discussion about opportunities and challenges en route to the WHO 2030 NTD Road Map goals. USAID will share approaches to collaborating with governments as they work to achieve sustainable NTD services and also showcase a vision for future programming. There will be French-English language interpretation for the livestream.
TropicalMed 2023 Young Investigator Award
TropicalMed is inviting nominations for the TropicalMed 2023 Young Investigator Award. The prize will be given to one young investigator in recognition of their excellence in the field of tropical medicine and infectious disease.
The nomination deadline is the 30th of November, 2023.
Advancing neglected diseases drug discovery in endemic areas
October 19-20, 2023; Campina, Brazil
DNDi Latin America team and Prof. Luiz Carlos Dias are organizing a two-day scientific symposium event. It will be held in-person in Campinas, Brazil (combined with live streaming). The event will bring together international experts from academia, research institutes, and pharmaceutical companies to share knowledge and exchange ideas on drug discovery, with a special focus on infectious and neglected diseases affecting patients in Latin America.
RSTMH Annual Meeting 2023
September 28-29, 2023, United Kingdom
This year's RSTMH Annual Meeting will be in-person and will take place at Conway Hall in London on the 28th and 29th of September. The theme is "Tropical Medicine and Global Health: Priorities for the Next 5 Years". The meeting will bring together members, Fellows, and supporters from around the world to share knowledge and encourage new collaboration.
8th Health Systems Global Symposium on Health Systems Research
November 18-22, 2024, Japan
The 8th Global Symposium on Health Systems Research will be held in Nagasaki, Japan in 2024. The theme of the Symposium is "Building Just and Sustainable Health Systems: Centring People and Protecting the Planet".
UN General Assembly High-Level Meetings on health 2023
September 20-22, 2023; New York, USA.
The UN General Assembly will convene three High-Level Meetings on health during its 78th session (UNGA 78) in New York in September 2023. You can watch the meetings virtually or in person. First meeting is on Pandemic preparedness & response; Second meeting is on Universal Health coverage; and the third meeting is on the Fight against tuberculosis.
Schistosomiasis: Celebrating Recent Achievements Supporting Elimination Goals
October 18, 2023; Chicago, USA.
This one-day meeting will explore how WHO policies and guidelines are providing the stimulus for countries to advance with their control and elimination programmes and will provide examples of how countries are monitoring disease, implementing control interventions and integrating schistosomiasis treatments into health services.
CPHIA 2023
November 27-30, 2023; Lusaka, Zambia
The 3rd International Conference on Public Health in Africa (CPHIA). The theme of the conference is "Breaking Barriers: Repositioning Africa in the Global Health Architecture". The conference provides a unique African-led platform for leaders across the continent to reflect on lessons learned in health and science, and align on a way forward to creating more resilient health systems.
GRIDD Study Survey
The International Alliance of Dermatology Patient Organizations (GlobalSkin) is working with researchers at Cardiff University (UK) and University Medical Centre Hamburg-Eppendorf (Germany) on the Global Research on the Impact of Dermatological Diseases (GRIDD) project. The survey is seeking input from patients affected by dermatological diseases.
NNN Conference 2023
19-21 September, 2023
The NNN Conference 2023 is taking place this week at the Hyatt Regency in Dar Es Salaam, Tanzania. The theme for this year's conference is: "Reaching new frontiers - powering a new generation of leadership and cross-sectoral collaborations to end NTDs." The theme reflects NNN's commitment to cross sectoral collaborations and partnerships centering endemic voices in the fight against NTDs.
COR-NTD Annual Meeting
October 16-17, 2023
The COR-NTD Annual Meeting will be held in October in Chicago. The meeting will consist of hybrid plenary sessions, in-person breakout sessions, and a virtual Innovation Lab.
GDPR & the InfoNTD newsletter
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