Leprosy Mailing List – June 27, 2021
Ref.: (LML) InfoNTD monthly overview of the latest cross-cutting NTD publications - June, 2021
From: Roos Geutjes. Amsterdam, the Netherlands
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LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
Leprosy Mailing List – June 25 , 2021
Ref.: (LML) a cross-neglected tropical disease Perception Study Toolkit (PST)
From: Anna van 't Noordende, Amsterdam, the Netherlands
Dear Pieter,
I would like to share our recent publication about a cross-neglected tropical disease Perception Study Toolkit (PST), we think this may be of interest: https://leprosyreview.org/article/92/2/20-21027
The PST is a toolkit to assess the different aspects of perception of leprosy or other NTDs, including essential knowledge of these conditions. The PST consists of four measures: a Communication Needs Assessment questionnaire, Knowledge Attitudes and Practices questionnaire, the EMIC community stigma scale and the Social Distance Scale. It also comprises qualitative methods to investigate perception (knowledge, attitudes, beliefs, emotions). The PST is a toolkit and comprises separate instruments that assess different aspects of perception, it is also possible to use only one or a few of the instruments of the PST.
The PST can help identify specific beliefs, knowledge gaps, misconceptions and fears to inform community education and behaviour change interventions and can be used to monitor and evaluate such interventions. Using a standard toolkit like the PST would enable assessment of the perception of leprosy or other NTDs that would allow comparison across projects and countries including monitoring of changes over time.
Thank you very much in advance! I look forward to hearing from you.
With best wishes,
Anna
Anna van 't Noordende
Programme Support & Research Officer PEP++
a.vt.noordende@nlrinternational.org
LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
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Leprosy Mailing List – June 24, 2021
Ref.: (LML) Length of MDT
From: Diana Lockwood, London, UK
Dear Pieter,
This editorial written by myself, Gerson Penna and Ruth Butlin considers the latest data on the long term outcomes for patients treated with the WHO 12 month regimen in trials. ( 1) These patients had good outcomes with low relapse rates. Patients with high BI were also cured with these regimens. There is no need for patients with a high BI to have longer treatments. There is a newly published Brazilian study with important new evidence. They found ten cases of relapse in a cohort of 713 patients followed-up for a mean of 12.1 years giving in an incidence rate of 1.16 relapse cases per 1000 person-year (95% CI = 0.5915–2.076). The accumulated risk was 0.025 in 20 years. (2)
Patients' lesions can take a long time to improve and this should be explained to them. We encourage clinicians to trust these regimens.
Patients can have leprosy immune- mediated complications such as reactions and these can make the clinician and the patients feel that the leprosy is still active.
Neuropathic pain also needs to be asked about as another late complication.
We need further trials to find regimens with fewer adverse drug effects such as Rifampicin, Minocycline and Ofloxacin.
The paper can be found on this link. https://leprosyreview.org/article/92/2/20-21034
Best Wishes
Diana
Diana NJ Lockwood
Emeritus professor of Tropical Medicine
London School of Hygiene & Tropical Medicine
London WC1E 7HT
1. Lockwood, DNJ, Butlin CR, Penna GO Current leprosy Multi-drug Treatment durations for MB patient (12 months) produce good clinical outcomes over many years. Lepr Rev (2021) 92, 97–101
2. Nery JAC, Sales AM, Hacker M, Moraes MO, Maia RC, Sarno EN, et al. Low rate of relapse after twelve-dose multidrug therapy for hansen's disease: A 20-year cohort study in a Brazilian reference center. PLoS Negl Trop Dis. 2021;15(5):e0009382. accepted for publication.
3. Lockwood DNJ. Chronic aspects of leprosy-neglected but important. Trans R Soc Trop Med Hyg. 2019 Jan 31.
LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
Leprosy Mailing List – June 16, 2021
From: Barbara De Barros, London, UK
Dear Pieter,
I hope you are well.
I would be very grateful if you could circulate the following message.
I would like to share with the LML the article I recently wrote with colleagues from ENLIST and LEPRA reporting findings from a survey on the impact of covid-19 in leprosy services.
This is an important issue we are facing. I hope you enjoy the reading.
Here is the link:
Best regards
Barbara
Clinical Research fellow ENLIST Group
Skype: barbarradebarros_1
www. Lshtm.ac.uk
LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
Leprosy Mailing List – June 16, 2021
Ref.: (LML) Leprosy Review - June 2021
From: Paul Saunderson, Ålesund, Norway
Dear Pieter,
I'm pleased to forward to your readers the Table of Contents of the June issue of Leprosy Review (pages 95-200), now freely available online at <https://leprosyreview.org/>
Editorial
Diana N. J. Lockwood, C. Ruth Butlin, Gerson O. Penna.
Current leprosy multi-drug treatment duration for MB patients (12 months) produces good clinical outcomes over many years.
Original papers
Maria Dias Torres Kenedi, Elifaz de Freitas Cabral, Kazue Narahashi, Silvana Teixeira de Miranda, Catarina Mabel da Cunha Moreira, Diogo Correia e Silva, Cleumar Silva do Nascimento, Wanderlei Ruffato, Antonio José Ledo Alves da Cunha, Maria Kátia Gomes.
Progression of peripheral nerve injury in leprosy: Evaluation of the effect of nerve decompression surgery in an endemic region of Brazil.
Desiree Alves dos Santos, Maria Dias Torres Kenedi, Felipe José Jandre dos Reis, Antonio José Ledo Alves da Cunha, Maria Kátia Gomes;
Laterality judgement task in people affected by leprosy.
Selma Bakar Dertlioğlu, Gülden Eser Karlıdağ, Serpil Ağlamış.
Clinical findings in patients with leprosy who are infected with COVID-19: a case series from Elazığ, Turkey.
Bruna Canci, Erica Gomes Pereira, Karen Sakata-So, Lucia Nichiata.
The development of a Portuguese mobile application for clinical support in detecting leprosy suspects.
M. David Prakash Kumar, M. Sathish Paul, B. Siva.
Computer designed orthotic device for offloading plantar ulcers—Technical paper.
Desi Oktariana, Fifa Argentina, Zen Hafy, Eddy M. Salim, Nova Kurniati, Kemas Yakub Rahadiyanto, Evi Lusiana.
Association of −819 T/C IL-10 gene promoter polymorphisms with susceptibility to leprosy in South Sumatera Indonesia.
Anna T. van 't Noordende, Wim H. van Brakel.
Towards a cross-neglected tropical disease perception study toolkit: a prototype toolkit developed in the field of leprosy.
Short Reports
Geoff Warne, Monty Mukhier.
Application of digital technologies to leprosy programmes.
Geoff Warne, Monty Mukhier.
Tackling the worldwide loss of leprosy expertise.
David Scollard.
Occasional series of scientific tricks and tips: The best presentation of the meeting.
Thank you.
LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
Leprosy Mailing List – June 16, 2021
Ref.: (LML) Notice about the future of printed copies of Leprosy Review
From: Paul Saunderson, Ålesund, Norway
Dear Pieter,
I would be very grateful if you can forward this message about the future of printed copies of Leprosy Review, to your readers:
The mailing list for printed copies of Leprosy Review has become very out-of-date and we assume that most readers can now access the online version, which gives free access to all current and past issues of the Journal via
We will continue to send printed copies to training institutions and medical facilities, where a number of people may be able to see each issue, but personal names will be dropped from these addresses. We will be happy to receive updated addresses from such institutions, and requests from other institutions that do not currently receive printed copies of the Journal. Any institutions that no longer require printed copies because of online access can help us by advising us of this, by email.
The current issue (June, 2021) will be the last one sent to individuals on the current mailing list, and from September onward, all individuals will be removed from the list, unless you specifically send us an email, containing your current mailing address and requesting a printed copy. We will be happy to send a printed copy, free-of-cost, to anyone who needs it and who makes a specific request by email to me: <psaunderson@leprosy.org>. Please mark the subject of the email "Request for printed copy of Leprosy Review".
Many thanks.
Paul Saunderson
Editor Leprosy Review
LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
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