Wednesday, November 28, 2018

(LML) Special Rapporteur - Consultation for persons affected, family members, other stakeholders

Leprosy Mailing List – November 28,  2018

Ref.:   (LML)  Special Rapporteur - Consultation for persons affected, family members, other stakeholders

From:  Alice Cruz, Quito, Ecuador

 

Dear Pieter,


I came to realize that I may have not been so clear regarding the call for participation on my online questionnaire (LML, 26-11-2018). When I say: persons affected by leprosy, their family members, carers, health professionals and others who may have experience with leprosy, I mean that the questionnaire is open to any stakeholder, including persons who did not have had leprosy, but who have worked or somehow engaged with leprosy, such as experts and/or medical professionals and/or NGOs professionals.

May I kindly ask you to share this clarification?

 

English: https://goo.gl/forms/ZTHmuYhXl2CjNDow2

 

Portuguese: https://goo.gl/forms/ecRzjI8B0P9IbQxm2

 

French: https://goo.gl/forms/64pb1MM0zrBxcEkh2

 

Spanish: https://goo.gl/forms/ocLg5zmdRerX0tqF3

 

With warmest regards,


Alice


Alice Cruz

Special Rapporteur on the Elimination of Discrimination against Persons Affected by Leprosy and their Family Members


Website: www.ohchr.org/EN/Issues/Leprosy/Pages/LeprosyIndex.aspx

Email: srleprosy@ohchr.org  

Facebook of the Special Rapporteur: https://www.facebook.com/srleprosy/

Tweeter of the Special Rapporteur: https://twitter.com/srleprosy

Instagram of the Special Rapporteur: https://www.instagram.com/specialrapporteurleprosy/?hl=pt

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

 


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Tuesday, November 27, 2018

(LML) Brazilian Hanseniology Society congress, Palmas, 2018

 

Leprosy Mailing List – November 27,  2018

Ref.:    (LML) Brazilian Hanseniology Society congress, Palmas, 2018

From:  Joel Almeida, Mumbai and London

 

Dear Pieter,

 

I had the privilege of being invited to this, allowing me to meet many great and inspiring colleagues and persons affected by Hanseniasis.

 

Others are better placed to describe the generally high quality of the presentations, and the warmth of the hospitality. I want to highlight the most impressive aspect for me:

 

There were many young attendees.

 

Our Brazilian colleagues are doing something exemplary. In conversations with the younger attendees about what drew them to Hanseniasis, it was usually the example of an inspiring professional. The meeting was near the Tocantins river, which enriches life wherever it flows. So too do our Brazilian colleagues, improving all the lives they touch. 

 

Brazil is far from elimination of ... leprosy services. Instead, they are innovating and trying every potential solution, without glossing over the size of the problem.

 

There is a lot to be learnt from their example.

 

Congratulations to the president Dr. Claudio Salgado and all those on the team. 

 

Also, to the sponsors including the Novartis Foundation and the Sasakawa Foundation / Nippon Foundation. Their support enabled something very good and inspiring to happen, encouraging the next generation who are the budding leaders of tomorrow.

 

The future seems increasingly bright for the people of Brazil and other endemic countries, given this approach of continuous improvement at the front-lines. That is where science and implementation meet, impacting human lives. That is where meaningful outcomes are available.

 

We have reason for optimism. Congratulations and thanks to all involved.

 

Joel Almeida

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com


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Monday, November 26, 2018

(LML) Special Rapporteur - Consultation for persons affected, family members, other stakeholders

Leprosy Mailing List – November 26,  2018


Ref.:   (LML)  Special Rapporteur - Consultation for persons affected, family members, other stakeholders

From:  Alice Cruz, Quito, Ecuador

Dear Friends and partners,


I have the honour to address you in my capacity as Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, pursuant to Human Rights Council resolution 35/9.

 

I would like to inform you that I will dedicate my next thematic report to the situation of women and children affected by leprosy and their family members with focus on stigma and discrimination. This report is due to be presented at the 41st session of the Human Rights Council in June 2019.


Accordingly, I am seeking the views and inputs of persons affected by leprosy, their family members, carers, health professionals and others who may have experience with leprosy.


Please kindly take part in this consultation and submit the completed questionnaire below, which will substantively inform my forthcoming report no later than 15 January 2019:

English: https://goo.gl/forms/ZTHmuYhXl2CjNDow2



Participation to this consultation will remain confidential. Should you need any further information or clarification to this end, please do not hesitate to contact us by email to: srleprosy@ohchr.org


Thank you in advance for your valuable contribution to the work of this mandate.

 

Alice Cruz

Special Rapporteur on the Elimination of Discrimination against Persons Affected by Leprosy and their Family Members

Website: www.ohchr.org/EN/Issues/Leprosy/Pages/LeprosyIndex.aspx

Email: srleprosy@ohchr.org  

Facebook of the Special Rapporteur: https://www.facebook.com/srleprosy/

Tweeter of the Special Rapporteur: https://twitter.com/srleprosy

Instagram of the Special Rapporteur: https://www.instagram.com/specialrapporteurleprosy/?hl=pt

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

 


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Sunday, November 18, 2018

(LML) Seeking good quality images of eyes for RehApp


Leprosy Mailing List – November 18,  2018

Ref.:   (LML)  Seeking good quality images of eyes for RehApp

From:  Annick Mondjo, Libreville, Gabon

 

 

Dear  Dr. Schreuder,

 

 

I am a LML reader involved in a leprosy program in Africa since 2005 and would be glad to contribute to illustrate the leprosy module of the smartphone App. (LML, November 14, 2018). For this purpose, I have selected a few of my best eye images of red eyes, cloudy eyes and trichiasis.  I hope some should have a sufficient quality for  Ms Jannine Ebenso's project.

 

https://www.dropbox.com/sh/rj8m580w0my5nk9/AADsRMd5Yi2--czTeytDATSza?dl=0

 

Best regards.

 

Dr Annick Mondjo

Directeur du Programme de Lutte

contre les Maladies Infectieuses

Ministère de la Santé et de la Famille

BP 50 Libreville

GABON

 


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Wednesday, November 14, 2018

(LML) Seeking good quality images of eyes for RehApp

Leprosy Mailing List – November 14,  2018

Ref.:   (LML)  Seeking good quality images of eyes for RehApp

From:  Jannine Ebenso, Brentford, UK

Dear LML readers,


The leprosy module of the smartphone App 'RehApp' is almost completed, however we lack some good quality images of the effects of leprosy on the eye. If you have any of the following kindly send them to me as soon as possible.


2.2.3 Red eye

2.2.4 White spots on cornea (corneal ulcer)

2.2.4 Cloudy eyes (cataract)

2.2.5 Eyelashes touching the eyeball


Please make sure you have permission from the owner of the images before sending them. Thank you.


Warm regards,


Jannine


Jannine Ebenso

Head of Quality Assurance

The Leprosy Mission International, 80 Windmill Road, Brentford, Middlesex, TW8 0QH

T: +44 (0)7879647895  E:jannine.ebenso@leprosymission.org  S: jannine.ebenso2008W: www.leprosymission.org

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.co


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Tuesday, November 13, 2018

(LML) Infolep monthly update with a selection of leprosy publications - November 2018

Leprosy Mailing List – November 13,  2018

Ref.:  (LML) Infolep monthly update with a selection of leprosy publications - November 2018

From:  Jiske Erlings, Amsterdam, the Netherlands

Dear colleagues,

Welcome to this month's overview of leprosy research publications recently added to the Infolep portal.
Feel free to contact me for full text versions if a link to the full text is not included or for assistance with your literature research.
Please share this mailing with others that might be interested in this service.

Jiske Erlings, j.erlings@leprastichting.nl
Infolep Information officer

 

 

 

Highlighted publications

 

 

Global leprosy update, 2017: reducing the disease burden due to leprosy.
Wkly Epidemiol Rec. 2018 Aug 31;93(35):445-456.
Download
Also see the separate Table 7: Global leprosy situation by WHO region, country and territories, 2017.
Download

WHO Guidelines on leprosy diagnosis, treatment and prevention.
Download


 

 

 

New publications

 

 

Evaluation of the leprosy control programme surveillance system in Kwara State, Nigeria, 2010 - 2014.
Aderinola OM, Abubakar A, Poggensee G, et al. Asian Pac J Trop Med. 2018; 11(Suppl S1):22.
Download PDF
 

Detection of Mycobacterium lepromatosis in patients with leprosy in India.
Ahuja M, Lavania M, Singh I, et al. Infect Drug Resist. 2018; 11:1677–1683.
Download PDF
 

Epidemiology and spatiotemporal patterns of leprosy detection in the state of Bahia, Brazilian Northeast Region, 2001⁻2014.
Amorim de Souza E, Fuentes Ferreira A, Heukelbach J, et al. Trop Med Infect Dis. 2018 Jul 31;3(3).
Download PDF
 

Leprosy relapse between the years 2005-2015.
Almeida KT, Menezes AMF, Alves KAN, et al. J Nurs UFPE online. 2018; 12(10):2528-34.
Download PDF
 

The TLR1 gene is associated with higher protection from leprosy in women.
Alvarenga Niitsuma EN, da Fernandes GR, Lana FCF. PLoS ONE. 2018; 13(10):e0205234.
Download PDF
 

IL8 and IL17A polymorphisms associated with multibacillary leprosy and reaction type 1 in a mixed population from southern Brazil.
Aquino JS, Ambrosio-Albuquerque EP, Alves HV, et al. Ann. Hum. Genet. 2018.
Read abstract
 

A phylogenomic study quantifies competing mechanisms for pseudogenization in prokaryotes-The Mycobacterium leprae case.
Avni E, Montoya D, Lopez D, et al. PLoS One. 2018 Nov 1;13(11):e0204322.
Download PDF
 

Mid borderline leprosy in type Bα Blaschko linear pattern: a rare phenomenon.
Chetan R, Shailesh M. Int. J. Dermatol. 2018.
Read abstract
 

Psychiatric comorbidity among male patients with leprosy and its relation to low levels of free testosterone.
Dessoki HH, Soltan MR, Ezzat AA. MECPsych. 2018; 25(4):145-149.
Download PDF
 

Second coming: the re-emergence and modernization of immunotherapy by vaccines as a component of leprosy control.
Duthie MS, Casper C, Reed SG. Future Microbiol. 2018 Oct;13:1449-1451.
Download PDF
 

Impact of using eHealth tools to extend health services to rural areas of Nigeria: protocol for a mixed-method, non-randomised cluster trial.
Ebenso B, Allsop MJ, Okusanya B, et al. BMJ Open. 2018 Oct 18;8(10):e022174.
Download PDF
 

Profile of Person Affected by Leprosy with Clinical Relapse among in High Endemic State of India.
Gitte SV, Nigam C, Chakraborty AB, et al. Journal of microbiology and infectious diseases. 2018; 8(3):103-107.
Read abstract
 

The Overview of Anti-PGL-1 and Anti-IDALLE L-ESAT 6 IgG Antibody Titers in Household Contact of Leprosy.
Hadi MI, Faizah H, Alamudi MY. International Conference on Sustainable Health Promotion. 2018:1-4.
Download PDF
 

LEPRASIM, an Agent-Based Model to simulate leprosy in Indonesia.
van der Hoek SA, Augustijn PWM, Bakker MI. 12th International Symposium on Geospatial Health 2018. 2018.
Read abstract
 

Family support to leprosy patients with low self-esteem.
Kurniajati S, Palupi KD. The 2nd Joint International Conferences. 2018; 2(2):576-582.
Download PDF
 

Practices for self-care in Hansen's disease: face, hands and feet. Lima MCV, Barbosa FR, Santos DCMD, et a. In: Rev Gaucha Enferm. 2018 Oct 22;39:e20180045.
Download PDF

 

Live Mycobacterium leprae inhibits autophagy and apoptosis of infected macrophages and prevents engulfment of host cell by phagocytes.
Ma Y, Pei Q, Zhang L, et al. Am J Transl Res. 2018; 10(9):2929-2939.
Download PDF
 

Molecular detection mutation of rpoB gene Mycobacterium leprae in relapse and default of leprosy patient in Jayapura City, Papua.
Maladan Y, Lestari WCS, Tanjung R, et al. Health science journal of Indonesia. 2018; 9(1):31-36.
Download PDF
 

An enhanced regimen as post-exposure chemoprophylaxis for leprosy: PEP++.
Mieras LF, Taal AT, van Brakel WH, et al. BMC Infect Dis. 2018 Oct 5;18(1):506.
Download PDF
 

Evaluation of mast cell profile in the skin lesions of leprosy.
Mohit, Dixit S, Sharma R, et al. Annals of international medical and dental research. 2018; 4(6):5-8.
Download PDF
 

Alternate anti-leprosy regimen for multidrug therapy refractory leprosy: A retrospective study from a tertiary care center in North India.
Narang T, Bishnoi A, Dogra S, et al. Am. J. Trop. Med. Hyg. 2018.
Read abstract
 

The analysis of influences of family stress factors with ABCX theory on family with leprosy in Jombang Regency, East Java.
Nasrudin, Yusuf A, Hargono R, et al. The 2nd Joint International Conferences. 2018; 2(2):264-270.
Download PDF
 

The effectiveness of group couselling on the person-centered theory to improve the self – esteem of persons effected by leprosy in Bankrang colony Phitsanulok Province.
Phusem W, NaRanong L, Wongtim S. Journal of nursing and health sciences. 2018; 12(1S):121-132.
Read abstract
 

Impact of community-based adherence support on treatment outcomes for tuberculosis, leprosy and HIV/AIDS-infected individuals in post-Ebola Liberia.
Rogers JH, Jabateh L, Beste J, et al. Glob Health Action. 2018; 11(1):1522150.
Download PDF
 

Erythema nodosum leprosum triggered by antecedent influenza vaccine and respiratory tract infection: A case report.
Sandre MK, Poenaru SM, Boggild AK. J Cutan Med Surg. 2018.
Read abstract
 

Self acceptance as self esteem predictor in leprosy patients.
Sari DAKW, Erawati. The 2nd Joint International Conferences. 2018; 2(2):198-205.
Download PDF
 

Potential of AKR1B10 as a biomarker and therapeutic target in type 2 leprosy reaction.
Soares CT, Fachin LRV, Trombone APF, et al. Front Med (Lausanne). 2018; 5:263.
Download PDF
 

Polymerase chain reaction (PCR) as a potential point of care laboratory test for leprosy diagnosis-A systematic review.
Tatipally S, Srikantam A, Kasetty S. Trop Med Infect Dis. 2018; 3(4):107.
Download PDF
 

Widespread dermatophytosis in a patient treated for leprosy type II reactional state after MDT/WHO-MB release.
Tavares Rodrigues F, Pereira Cardozo MR, da Costa Nery JA. Am. J. Trop. Med. Hyg. 2018; 99(4):813-814.
Download PDF
 

The resurgence of leprosy in India: Findings from a survey assessing medical professionals' knowledge and preparedness.
Thangaraju P, Venkatesan S, Selvan TT, et al. Educ Health Prof. 2018; 1(1):24-27.
Download PDF
 

Leprosy in children under 15 years of age in Brazil: A systematic review of the literature.
Vieira MCA, Nery JS, Paixão ES, et al. PLoS Negl Trop Dis. 2018; 12(10):e0006788.
Download PDF
 

Distribution of CD4+RORg-T Th17 and CD25+ FOXP3+ Treg in leprosy patients with reversal reaction.
Yuniati R, Riawan W, Widasmara D, et al. JPAD. 2-18; 28(2):123-128.
Download PDF
 

Intrinsic activation of the vitamin D antimicrobial pathway by M. leprae infection is inhibited by type I IFN.
Zavala K, Gottlieb CA, Teles RM, et al. PLoS Negl Trop Dis. 2018; 12(10):e0006815.
Download PDF

 

 

 

 

Journals & Newsletters

 

 

Disability, CBR & Inclusive Development: http://dcidj.org/

Hansenologia Internationalis: http://www.ilsl.br/revista/atual.php

Indian Journal of Leprosy: http://www.ijl.org.in/index.html 

Leprosy Review: https://www.lepra.org.uk/Pages/FAQs/Category/volume-89
Leprosy Review Repository (1928-2001) : http://leprev.ilsl.br/arquivo.php

Plos Neglected Tropical Diseases: http://journals.plos.org/plosntds/
 
Revista de Leprología:
http://www.leprosy-information.org/resource/revista-de-leprologia
 
WHO Goodwill Ambassador's Newsletter for the elimination of leprosy:
http://www.smhf.or.jp/e/ambassador/index.html

 

 

 

Websites & Services

 

 

WHO Global Leprosy Programme
http://www.who.int/lep/en/ & http://www.searo.who.int/entity/global_leprosy_programme/en/

The Global Partnership for Zero leprosy
http://zeroleprosy.org/

LML - Leprosy Mailing List - a free moderated email list that allows all persons interested in this theme to share ideas, information, experiences and questions.
https://groups.google.com/forum/#!forum/leprosymailinglist

InfoNTD - Information on cross-cutting issues in Neglected Tropical Diseases (NTDs) https://www.infontd.org/

 

 

 

GDPR & the Infolep newsletter

 

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com


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