Fw: Ref.: (LML) Hosting a LML session at ILC 2022

Leprosy Mailing List – April 18,  2022

 

Ref.:  (LML) Hosting a LML session at ILC 2022

From:  Laila de Laguiche, Curitiba, Brazil

 

 

Dear Pieter,

 

Greetings to all wishing you an excellent Easter!

I appreciate the comments from Ben Naafs in his April 10th email.

Acceptable and gold standard quality of care is an extremely variable attitude in the approach to Hansen's disease in the world today. 

On the one hand, we have countries with horizontal care and others with vertical public health programs. Some countries have compulsory notification and others maintain complete silence. Some countries follow WHO guidelines and others have their own protocol. The diagonal approach with interrelationships between the different levels of health care is not yet widespread and puts many health programs in a difficult situation to adapt, requiring great logistics for the integration of different levels of patient care.

I think the LML group could have a BrainStorming session in order to define a score applicable to any country where the strengths and weaknesses of each type of patient approach in different health services could be objectively demonstrated. Not to punish or classify, but to guide in which direction to go. 

 

It is up to us experts to show what is possible and what is desirable as a gold standard. For example, could the follow-up of patients after discharge from Hansen Virchoviano's disease be a standard in all countries? What are the advantages and disadvantages? Should the discharge be based on medication as it is currently? Or would it be desirable for the discharge to be after the period of vulnerability for leprosy reactions in the years after Multidrug Therapy?

I continue to think about other contributions to this challenge that is huge for LML, maybe too big, but we can't miss this opportunity.

Laila de Laguiche - Curitiba - BRAZIL
Alliance Against Leprosy

 

LML - S Deepak, B Naafs, S Noto and P Schreuder

LML blog link: http://leprosymailinglist.blogspot.it/

Contact: Dr Pieter Schreuder << editorlml@gmail.com

--
You received this message because you are subscribed to the Google Groups "Leprosy Mailing List" group.
To unsubscribe from this group and stop receiving emails from it, send an email to leprosymailinglist+unsubscribe@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/leprosymailinglist/e4db2d91-c149-46d1-8dbd-1d6567454c7fn%40googlegroups.com.