Leprosy Mailing List �C January 4, 2025
Ref.: (LML) (LML) WHO Goodwill Ambassador's Leprosy Bulletin NO. 124, December 2024
From: Takahiro Nanri, Tokyo, Japan
Dear Dr. Schreuder and Friends,
Warm greetings from Sasakawa Health Foundation/ Sasakawa Leprosy (Hansen's Disease) Initiative in Tokyo.
We have issued WHO Goodwill Ambassador's Leprosy Bulletin NO.124 December 2024 "Persons affected by leprosy as partners in change." In this issue, we feature:
MESSAGE FROM THE AMBASSADOR
Last month, Nov. 19�C23, I visited India, where more new cases of leprosy are detected per year than anywhere else in the world. In the years that I have worked for the elimination of leprosy, I have visited India more than 60 times and traveled to nearly every state, urging approaches that address both the medical and social aspects of the disease. Read More
50th Anniversary of WHO�CTNF/SHF Partnership
With support, I embarked on a journey to reverse stigma and became an advocate
José Ramirez, Jr., Chair of Board of Directors, International Association for Integration, Dignity and Economic Advancement (IDEA)
My introduction to Hansen's disease happened when I was diagnosed with the illness in Laredo, Texas, in 1968 after many years of unexplained pain, blisters, and fevers. Read more
NEXT GENERATION
An opportunity to strengthen myself as a person affected by Hansen's disease and as a woman
Luzia Alves, Facilitator, MORHAN Piauí
My name is Luzia Alves. I am 35 years old, married, and a mother. I live in Teresina, the capital of the state of Piauí, Brazil. I am also a woman who has been cured of Hansen's disease. This is my story. Read more
Taking on the responsibility of being a leader has changed me
Ashwini Nannaware, Member Leader, Saksham Kushthanteya Swabhimani Sanstha (SKSS)
I am Ashwini Pundalik Nannaware from Mohali Naleshwar village, Sindewahi block, Chandrapur district, Maharashtra state, India. I studied up to pre-degree (12 years of school) in arts, and I have a family of four: my husband, a son, a daughter, and myself. Read more
VIEWPOINT
Immune-mediated leprosy reactions before, during, and after multidrug therapy (MDT)
Dr. Venkata Ranganadha Rao Pemmaraju, Program Advisor for Medical Issues, Sasakawa Health Foundation
Leprosy, also known as Hansen disease, is a chronic infectious disease caused by Mycobacterium leprae (M. leprae) or, less commonly, Mycobacterium lepramatosis. Multidrug therapy (MDT) is the recommended treatment for the disease. Read more
AMBASSADOR'S JOURNAL
Goodwill Ambassador confirms value of supporting higher education for young adults from leprosy colonies during 4-day trip to India
In November, WHO Goodwill Ambassador for Leprosy Elimination Yohei Sasakawa visited India's capital city, New Delhi, for the first time in two years. Read more
INITIATIVE NEWS
Empowering persons affected by leprosy to know their rights and how to claim them
Contributed by Dr. Alice Cruz, Program Advisor for Human Rights Issues, Sasakawa Health Foundation
While we still lack systematic evidence that would enable us to identify good practices for eliminating discrimination on the grounds of leprosy in an accurate manner, tangible outcomes have surely resulted from access to justice and strategic litigation in at least three countries:, Read more
We hope that you would enjoy reading the latest Leprosy Bulletin.
Takahiro NANRI, Ph.D.
President, Sasakawa Health Foundation
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Sasakawa Leprosy (Hansen's Disease) Initiative
Sasakawa Health Foundation
Tel：81-3-6229-5377, Fax：81-33-6229-5388
email: hansen@shf.or.jp
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LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
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