Leprosy Mailing List – July 30, 2022
Ref.: (LML) LML sessions at ILC 2022
From: Santoshdey Rathod, Ahmedabad, India
Dear colleagues,
To me this question seems to be most relevant:
'Are ILEP members by their effort to raise money not increasing the stigma? How do you raise the money needed for care when the WHO and governments fail?'
Just a context: "How a beggar uses his deformity to demand money on the street". When we as learned members 'talk and discuss about stigma'. Most of the times; unknowingly we are accepting and encouraging more stigma towards a leprosy affected person.
'Stigma' should not be a 'leveraging tool' for generating funds. There has to be/should be healthy ways to generate funds for NGOs and related organisations.
1. We can do comparative analyses of money spent on other infectious diseases, say 'HIV' and/or 'Tuberculosis'.
2. Economic loss to the PAL is well studied and prevention of this Economic loss could be highlighted.
3. It is more about owning up responsibility of leprosy care by the governments as have seen recent government involvement in COVID 19 illness.
4. We have to accept and show the truth that 'Leprosy is still a concern and not an eliminated disease.'
I am posting these suggestions in good faith and kudos to the people who thought of this question because this aspect needs to be discussed.
Humble regards,
Dr. Santoshdev Rathod
Deputy Medical Superintendent, SCL General Hospital
Professor of Dermatology, Smt . NHL MMC, Ahmedabad
Joint Scientific Secretary, ILC 2022.
LML - S Deepak, B Naafs, S Noto and P Schreuder
LML blog link: http://leprosymailinglist.blogspot.it/
Contact: Dr Pieter Schreuder << editorlml@gmail.com
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